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Old 05-17-2005, 05:15 PM   #1
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jeffreys mom HB User
Kolby's Mom

Michelle, This is in response to our last posts about services. It seems with your sons dx that he should qualify for more services than he is getting. I remember from a prior post of yours that you said you were still waiting for his written evaluation. Have you received this yet? If not, this is the tool to getting more services based on the recommendation of the dr. doing the eval.
Kolby should be getting ABA services whether it be in your home or in school which addresses many issues including food issues. How old is Kolby? Is he already three?

 
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Old 05-18-2005, 05:27 PM   #2
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Re: Kolby's Mom

Quote:
Originally Posted by jeffreys mom
Michelle, This is in response to our last posts about services. It seems with your sons dx that he should qualify for more services than he is getting. I remember from a prior post of yours that you said you were still waiting for his written evaluation. Have you received this yet? If not, this is the tool to getting more services based on the recommendation of the dr. doing the eval.
Kolby should be getting ABA services whether it be in your home or in school which addresses many issues including food issues. How old is Kolby? Is he already three?

Kolby is now 3 1/2 turning 4 in December of this year. In March he just had his 3 year evaluation done and was diagnoised then. Prior to that (his 3 or so hours of therapy) were only based on a speech delay and sensory intergration dysfunction. Since now he has been dx with autism they put him in a class. In fact his first day was today. OMG how hard it was to leave him. I handed him over to the teacher and he covered his eyes. I had to walk away while he cried. I got home, called the teach and she said he was fine. That made me feel better. And OMG was he the dearest little guy when I went to pick him up. He had this big back pack strapped on him and he was walking out of the school like a big proud little man. He thought he was going on the bus and was all ready to do so. He saw me and broke from the line and gave me a hug. But quickly wanted to get back in line to take the bus. I told him next week he would start taking the bus. Well that eliminated my fear about his fear of the bus. Perfect day!!!!
I think things went well today and he even tried to tell me what he played with at the school. Now Kolby doesn't make conversation but it seemed like he was trying. When I asked him what he played with at school he said "Played numbers". Like your son he loves the numbers. They have the foam ones there that he has played with before. So maybe he was trying to tell me where he was cause he thought I didn't know.

Now back to therapy....I knew in my heart that he was autistic the summer of 2004. But when they came to the house to test him, he passed their test.
He did show lots of signs of sid so they have been treating him for that. It saddens me that this all takes so long because Kolby should have had his 3 year evaluation back in December. He would have been placed in this class since then and would have been further along. But it is what it is now.

When your son turns 3, will he have to be evaluated again and be switched to a different program? Under 3 in my area is called early intervention.
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Old 05-18-2005, 08:35 PM   #3
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Re: Kolby's Mom

Michelle, I'm so glad for you and Kolby that things went well for him today. I will keep my fingers crossed that it continues to go smoothly.

My son is in Early Intervention Program now with a seperate ABA program from an outside company most of which happens in my home. The school system will be coming in to evaluate him shortly for placement in their Special Needs Program. I have heard what a struggle it can be to get the recommended services as the school system basically tries to decide what they think the child needs. I'm preparing for the battle since I want what his developmental pediatrician is recommending for him. Bottom line is I want as much as I can get while he is still young and more easily redirected.

Well .... Good luck with school and keep me posted on how he is doing.

 
Old 05-19-2005, 03:43 PM   #4
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Re: Kolby's Mom

Make sure you bring his therapist with you to the eval. They give a lot of input. Write everything down that you want them to know. Like say Jeffrey is having a good day, they may say he is fine. You want them to have all the information. I was lucky and had the best OT ever. She did a lot of talking for me.

Kolby had a great 2nd day of school!!! When we left the school he said "Bye School!" I could eat him up he is so cute! And so brave! I think he is going to be fine. He is playing with the other kids.
Michelle
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Old 05-19-2005, 06:02 PM   #5
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Re: Kolby's Mom

Thanks for the advice. I'm so glad to hear things are going well with Kolby. Is he in school part day or full day? Is he in an intergrated class room or is it all PDD kids? You must be on cloud nine that he is adjusting so well. Look out for day three... sometimes this is when it hits them. My daughter was great day 1 and 2 then day three was when the tears came. That was the one and only time she ever cried at school and she was just barely three at the time. I hope it keeps going well.

 
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