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Old 05-31-2006, 12:28 AM   #1
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sallzyx HB User
hypotonia (floppy baby syndrome)/aspergers link?

Please post if your child has hypotonia and also an ASD diagnosis.
(It is where their ligaments are very loose [what used to be called double-jointed], muscles take a long time to react to stimuli, and picking them up is like carrying a sack of potatoes, because they don't move with you. They hit their physical milestones late, or on the late end of normal.)

Ds (2 1/2 yrs old) has been diagnosed with hypotonia, and someone on the hypotonia board said it can be related to aspergers (which we suspect), but I haven't found any actual info on the relationship.

My dh also has hypotonia, and he has all the physical (and other) symptoms of AS- odd gait, odd pronunciation, poor handwriting, etc.

Last edited by sallzyx; 05-31-2006 at 01:59 AM. Reason: need to rephrase my question

 
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Old 05-31-2006, 05:11 AM   #2
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Re: hypotonia (floppy baby syndrome)

my son was diagnosed hypotonia when he was a little fella. It eventually resolved itself with Physical therapy. He's 4 now and you can barely tell that he had it, he's still very cautious when trying new things and has issues with his balance a little bit. We recently had our evaluation and he was diagnosed with having emotional/behavioural issues not autistim,asperger's,pdd/nos like I had suspected.

I'm true believer in therapy does your son recieve therapy????

 
Old 05-31-2006, 06:12 AM   #3
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Tina81980 HB User
Re: hypotonia (floppy baby syndrome)

Hello...My Aspergers son wasn't dx with hypotonia, but I have a 13 month old daughter that is, and even though she is young we think she may be headed down the ASD road with her. She has a 50% delay in speech, she has added 3 new words in the past few weeks but she seems to have forgotten how to say daddy. She hasn't said it for over a week and when I prompt her to it comes out daaadooo. So I'm not sure. She also has some sensory issues, she headbangs almost non-stop and has started biting herself. She recieves PT, SP, & OT weekly so we are hoping she "outgrows" these behaviors. Thank You for asking this question as I was wondering the same thing.
Tina

 
Old 05-31-2006, 02:18 PM   #4
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sallzyx HB User
Re: hypotonia (floppy baby syndrome)

Yes, we are paying for private PT now, while we wait for the Regional Center evaluation. We tried to get OT first, but they were booked and referred us to our PT. She's been really good so far.

 
Old 05-31-2006, 02:34 PM   #5
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Liz Cook HB User
Re: hypotonia (floppy baby syndrome)

in our offline support group we found out that that is VERY common in ASD people and that it often a symptom of it. i asked our OT and she agreed and told us that our son had that (mildly though). we only learned that isaac had that a week before his OT suggested a PT eval. so yes, i would say there is a strong link.

 
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