please help us--suggestions - Autism Spectrum Message Board

allieleu · 09-19-2006, 07:47 AM

We recently received guardianship of our 7 yrs old autistic nephew not potty trained or very verbal need help and support seen some imporvement but not sure what we should be doing to faciletate this along

soozeq · 09-19-2006, 10:32 AM

Hi there:

First of all, welcome to the board. I'm sure that you will find it as helpful and supportive as I have. Taking on a child with ASD is a huge responsibility, and you should be commended.

As far as your question... Can you give us a few more details? Maybe describe to us some of the behaviours that are troubling to you. Tell us a bit about his abilities and areas of concern. At least some of us have probably had some some similar experiences. I think that with specifics, you will find a lot of us here can really offer strong support. Also, try reading through some of the past posts. They helped me a lot when I first got here.

BTW, I have one son, Liam, who is 3 and autistic. I also have a one-year-old neuro-typical (NT) daughter, Kaya.

Suzy

elmhar · 09-19-2006, 11:19 AM

Hi Allie,

Toilet Training for Individuals with Autism and Related Disorders by Maria Wheeler. This book has many practical tips & will give you hope on the toilet training. Ask at your local public library reference/info desk. If the library doesn't own it, they may be able to borrow it for you from another library through interlibrary loan. Or, you could order it through a bookstore.

Is your nephew in any special programs at present?

Best wishes.

allieleu · 09-22-2006, 02:40 PM

nephew has had some improvement since moving in with us in March sleeps most nights with minimal help , does sign some "more please" which is for any food , says"cookie" ,also meaning any food ,eats constantly never seems to get enough, toliet training seems to be a joke he just sits there with no effort at all .speech happens once in a while ,tatrums seem to be decreasing in frequency and intensitity. Would like help with facilatating speech, will sometimes say name, numbers 1-30, ABC's not that others could understand. Pinching is a little better. Have him on the GF/CF diet and it seems to help. We have 7 other kids from 1-18 at home yet and they are a big help. It would be nice to know if we are doing whats best for him or if we are holding him back. His father is disabled not able to care for him and mother passed away. With him being 7 we feel we lost a lot of time and don't even know where to begin. State not much help with SCL and respite hours and other services offered

allieleu · 09-22-2006, 02:59 PM

Quote:

Originally Posted by elmhar

Hi Allie,

Toilet Training for Individuals with Autism and Related Disorders by Maria Wheeler. This book has many practical tips & will give you hope on the toilet training. Ask at your local public library reference/info desk. If the library doesn't own it, they may be able to borrow it for you from another library through interlibrary loan. Or, you could order it through a bookstore.

Is your nephew in any special programs at present?

Best wishes.

He has therappy 2 times a week working on language sign and pictures and
also does physical therapy also uses SCL hours which is pretty much a joke when they can work w/ them is it too long We have him seeing aDAN practitioner very supportive and understanding her son is autistic and help us fix some of his digestive problems Just frustrating to know what to do for him.