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Old 10-11-2006, 04:02 AM   #16
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marissamm HB User
Re: FDA approves Autism medication!!!!

risperdal also increases prolactin levels and can cause male breast enlargment,that is what happened to my son he gained tons of weight and developed boobs he came off it last year and he still has boobs he is on a diet and we will see if they go down if not he might want surgery to get rid of them, so just be careful. cause it is embarrasing for an 18 year old male to walk around like that.

 
Old 10-11-2006, 06:51 AM   #17
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Re: FDA approves Autism medication!!!!

Oh my, now this is a very good example of an odd side effect that you will not hear from your childs doc, a pamphlet in the office or even on the warnings section that comes attached to the bag the prescription comes in.I hope loosing the weight helps your sons problem,he must be frustrated,I'm sorry.Does he have any problems with diabetes?(if you don't mind me asking).
My 15 yr old son has recently become very interested in sports-swimming,basketball,running,weight lifting,etc... When he was on Zyprexa (4 yrs ago), he went from 86lbs to 135lbs between spring break and summer vacation...WOW. He wasn't as verbal as he is now so I have no idea if it bothered him or not,I do know that being on a diet was brutal-for all of us- he wasn't interested in anything close to activity,unless you count the ever so wonderfull phase he went through with "running"- while at home,the store,mall,school,parks,pretty much any given situation.It took two years to take the weight off and he did loose his male "boobs".
I hope things go well with the diet,good luck and everyone have a great day!!

 
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Old 10-11-2006, 09:26 AM   #18
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Re: FDA approves Autism medication!!!!

The gynecomastia is a very common side effect w/atypicals. If you walk around a middle school or high school, you can pretty much pick out the guys on atypicals. Boys who are just overweight tend to tubbiness w/much less of a boob issue because usually they don't have elevated prolactin in most cases.

 
Old 10-11-2006, 02:44 PM   #19
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Re: FDA approves Autism medication!!!!

hi rbecca, my son is going to be tested next week for diabetes, his breast size is a good c cup bigger than me, i didn't fully research risperdal like i should have i did when i got a computer and was horrified i had to ask his doctor to test his prolactin level, and that was the discovery risperdal. i hope his boobs are lost when he looses weight. id not the maker of risperdal will be paying for my sons surgery.

 
Old 10-12-2006, 08:04 AM   #20
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Re: FDA approves Autism medication!!!!

marissamm- it's good that you're having him tested,there are easier ways to test for diabetes than many doc's use,there is the old glucose tolerance test-drink the sugary slime(blood draw 1st),then more blood draws every 30 min to 1hr for 6hrs is the one my sons doc did.The other one(forgive my spelling) is called a hemoglobin A1C-this can be done with 1 blood draw and sent off to the lab-results in a few days-and no slime to drink!! or many doc's have the propper equipment (that you can actually buy yourself over the counter at many drug stores) that only requires a simple finger stick,similar to a regular blood sugar monitor,and the test results are back in under 10 minutes.This test (the A1C), gives an avarage blood glucose level over the prior 3 month period,and a # "score"- you want below 7) You might want to ask your sons doc about that,since it is his 1st testing they may still want to do the annoying version it all depends on the situation and the doc, just thought I'd toss that in,because I just recently found out I'm diabetic!!! YIPPEE

As for the "boobs"- I can see elmhar has done the research on the side effects of "atypicals" also, and although weird, unfortunatly,yes- elevated levels of prolactin are common,don't feel bad for not getting your hands on ALL the info- I mean, the doc's SHOULD give out the information,the good,the bad, and the UGLY....but that just doesn't happen in the real world. Somwhere back a page or so I remember reading about someone who had waited to see a specialist and when they finally got to see the overpriced expert they were advised to start on a atypical,and when asked ?'s regarding it the expert said something like - well we really never now how this will work on your child...-
Not at all helpfull, but at least it was an honest "expert". I remember having a pediatric neurologist say to me "he's autistic, what do you expect me to do about it?"

There is alot than you can look up online, but if you can get your hands on a PDR- there is where you'll find all the nitty gritty stuff,like I said before the pill book is good,& also the PDR pocket guide, but if you really want everything,the 5 pound PDR is the way to go- I got lucky and my parents neighbors had one for $2 at their garrage sale,the older lady had no idea where it had even come from-only that it annoyed her when it came time to dust because it was so heavy!!!!!!!!

Good luck @ the Dr.'s - have a great day

 
Old 10-12-2006, 03:38 PM   #21
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Re: FDA approves Autism medication!!!!

hi rbecca i will mention that to the doc about the easier test, ya i dinally baught a pdr so i can really research meds,so i know what i am putting in my kid.

 
Old 10-15-2006, 10:10 AM   #22
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sharealways HB User
Re: FDA approves Autism medication!!!!

Thank you for these helpful posts and I would only do rispedol or any medication as a last resort after reading. we stopped dairy and wheat foods and see a little improvement so I guess we need to eliminate more to get him really GFCF.

 
Old 10-18-2006, 09:03 AM   #23
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rbecca HB User
Re: FDA approves Autism medication!!!!

sharealways-
Boy, I don't envy you at all with the GF/CF diet !!!!!!! but congrat's for trying.
I tried it with my son,I did see improvement,but he was such a picky eater that finding things that he would eat was near impossible(that I could afford at least).I wasn't strong enough with it and his school didn't support it at all-if someone had a b-day they would give him cake & ice cream even though they knew about the diet.Now I can see the valid point that if everyone else had cake,and they wouldn't give him any that he would feel like crap,but still it just made it impossible to follow through with it for me. I'm very glad that you are seing positive results,and other than the possibility of a ticked off kid - no side effects!!!!
How old is your child?

Have a great day to all !!!

 
Old 10-18-2006, 09:09 AM   #24
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Re: FDA approves Autism medication!!!!

OK, so it is weird to reply to my own reply but after reading it I don't like the way the first line sounds......

Let me try that again---
The GF/CF diet is a terrific idea, and it can produce really good results,I think it is wonderfull that you are exploring this and commend you for doing so !!!!!

There, that sounds much more like the COMPLIMENT that I was going for!!

 
Old 10-18-2006, 09:26 AM   #25
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Re: FDA approves Autism medication!!!!

marissamm-

I hope your visit to the doc goes, (or went) well.
Hopefully your son will not have diabetes- however, it's not the end of the world, just another bump in the road......And anyone reading this knows better than most about bumps in the road, don't we ?!?!?!
Fortunatley(sp?) there are oral meds -v- just insulin injections (if indicated). I know... more research, I can say that I take two of them since my dx last fall w/out any problems that aren't more than just a royal pain in the behind - of course all Rx's affect everyone differently, but that's where the PDR comes into play !!!

Let me know how it's going, have a great day, becca

 
Old 10-18-2006, 01:16 PM   #26
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Re: FDA approves Autism medication!!!!

There is a lot of debate regarding Risperdal and these other antipsychotic drugs used to treat children with autism. Some people see good effects and other people liken giving them to your child equivelant to a "mental lobotomy". There are many people and doctors who are very against these type of drugs being used in children with autism. I worked at a mental health nonprofit for a while that was very big on getting people with shizophrenia and other mental issues on these drugs, and I have seen first hand the effects of some of these drugs. Many have serious side effects such as large amounts of weight gain and an increased suseptability to things like diabetes, some involuntary kind of shaking reactions (can't think of the term) which can be permanent. Opponants of the drugs have all kinds of evidence that it can increase behaviors, that positive behaviors are temporary, ect. And there are increasing lawsuits against Risperdal.
I've heard enough people like the original poster who have had positive experiences with it that I figure it must work for some people, and in personal cases I have seen some people with problems such as schizophrenia benefit from the drugs, although I would add that I did see alot of side effects in those cases and the people were verbal and could verbalize exactly how those side effects affected them and it was a big issue for them. Many felt the side effects were barely worth it.
I had thought of using antipsychotics and was even prescribed some before, but upon doing research I got really freaked out and decided I would try anything else before putting my child and his developing brain on these drugs.
I've seen the posts about gfcf diets, I and many of my friends have had amazing results on gfcf diets. The only thing about trying them and seeing if they work is you have to be absolutely diligent about eliminating every trace of gluten and casein to get a good idea if it works. I've seen so many people say "We tried it for a month and it didn't work'. My friend gave me good advice and said "Consider the first month a wash, your kids will be getting gluten and casein in that month while you are learning what is truly gfcf, and it is a trial and error time". Meaning, you go on the diet, and you don't realize that the french fries you are giving him are being cooked oil that fish sticks and mozzeralla sticks are being cooked in and you are exposed to cross contamination. You are giving him a sauce that has wheat as one of it's natural ingredients. It takes a good month of diligently checking all sources of foods before you start to get the hang of it. And it's not the type of thing you can do halfway and then say it didn't work. I would say try diligently for 6 months before quitting, and that means getting on gfcf sites and learning more, calling companies and asking if their products are gfcf and being extremely careful when taking the kids out to eat (we rarely do, or we bring their food, too much cross contamination).
My kids are gfcf and so am I and we have seen amazing results, and if we slip a little we see behaviors go up.

 
Old 10-21-2006, 04:12 PM   #27
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Re: FDA approves Autism medication!!!!

We tried Risperdal for our son when he was in Kindergarten...NEVER AGAIN!! He went off the deep end. I refuse to let ANY doctor give him any drug in the anti-psychotic family again. It made him worse, he was absolutely insane. I am glad some people have luck with it, but my son has been legally diagnosed with Autism since 2000, and I know I would never do it again. I am very careful about any drug prescribed to him, I research them on the internet before I give him anything. Autism is bad enough to deal with....I don't need any more of those types of drugs to make it worse. It is definately not the "magic" drug for all.

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Old 11-06-2006, 05:52 AM   #28
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Re: FDA approves Autism medication!!!!

Hi. I am familiar with risperdal and infact my son who is autistic was on it for about eight months. We had mixed reviews on it but it was helpful with his motor tic issues. He did gain a lot of weight on it though and had trouble with elevated liver enzymes as well. But, since then we have discovered Abilify and I cannot say enough good things about it. One real plus is it does not promote the weight gain that the risperdal does. It also has calmed my son down enough so he can sleep at night when combined with one clonodine. The two are a good combination to promote sleep, Sleep , or lacktherof was a big issue for years with your son. He is now eleven and goes to his own bed and actually stays there. That was one of his biggest accomplishments. I think the Abilify played a major role in that. We did have to add a small amount of congentin to the regimin just last month for my son as his anxiety starting a new middle school was huge and his tics were increasing again. But, the doctor did not want to increase Abilify yet at his age. So far, the congentin has helped dramatically. I was a bit nervous to introduce another drug...we went years doing the natural route as I did not want to get involved with the antipsychotics. But, I realize that it is a crucial thing for Neil to have them and be able to cope better and have a better quality of life. It is so good to hear that your kids have benefited so greatly from the medication. Take care. Jaynebyrd

 
Old 11-06-2006, 06:49 AM   #29
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Re: FDA approves Autism medication!!!!

Any drug that would cause me to gain more weight is one I definitely don't need! People say I look fine, but I'm about ten pounds overweight for my height and build.

 
Old 11-07-2006, 11:59 AM   #30
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Re: FDA approves Autism medication!!!!

Hello,

I have kept my eye on this post for a while now, and just wanted to make one comment as for one of the most recent posts.

I'm not disputing anything, or intending to be a know it all, just a FYI !!!

Abilify IS a "A-typical antipsychotic", just like Risperdal, Zyprexa, Seroquel, and Geodon. They all carry the same warnings and possible complications.
Everyone responds to medications differently, even those in the same "family" of meds. One may have great success with an a-typical,max out on the dose allowed for them and have to change to another,or have another one added to compensate,and react totally different to the new one.
All of the meds in this "family" come with the risk of serious complications, even death.

I am always very happy to hear that someone has finally found something that helps their child, or themselves, BUT I hate to see people get false hopes off of someone elses good results and request a script based on that.

Best wishes to all

 
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