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Old 12-27-2006, 08:15 AM   #1
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soozeq HB User
GF/CF Diet?

A few questions for those who've tried it.

What made you decide to try it? I havn't had it recommended to me, but Liam has constant constipation and digestion problems that are affecting his behaviour.

How did it affect your child? Does it change his behaviour, or relieve pain?

What foods are banned/allowed?

Thank you so much. I don't know if we are going to try him on this diet. But, I feel like something has to change. Yesterday he screamed for 2 hours trying to have a bowel movement.

Suzy

 
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Old 12-27-2006, 12:27 PM   #2
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elmhar HB Userelmhar HB User
Re: GF/CF Diet?

Gut probs are fairly common on the spectrum. Some children benefit from dietary changes alone, while others also require medical treatment for dysbiosis -- fungal/bacterial/parasitic infections.

GF/CF diet is the most common initial recommendation for dietary change, but there are kids who responds better to the SCD diet, or diets based on allergy testing.

My own son had resolution of major gut issues with the GF dietary change. He had constipation so severe that we regularly had to remove the toilet deal with blocked plumbing. Also a lot of very stinky gas. This disappeared with GF diet, but does recur with dietary infractions.

The GF portion of the diet is very exacting. No one is ready or prepared to do this -- it's not like a weight-loss diet where you can occasionally cheat & still see positive results. This is because gluten has effects on the gut, brain, & immune system that can last for about 6 weeks. Often people do not see positive results from the diet for many months. In part, that's because of residual gluten as well as the getting-up-to-speed aspect of the diet. It's common for parents to unwittingly make mistakes at first, but after a while the diet becomes second nature like anything else.

Basically a GF diet is avoidance of all gluten-bearing grains (wheat, barley, rye, oats, & their derivatives). This is not as easy as it seems, because of the many derivatives & their presence in virtually all of the modern prepared foods we've become dependent on as a culture. So for starters, bread, cookies, cake, pastries, pasta, breakfast cereals, most snack foods have to be replaced with GF alternatives. Almost anything you find in a box or a can at a grocery store is suspect. Produce-aisle plain veg & fruit, nuts from the shell, plain raw meat without seasoning & additives (you cook it of course) are all OK. So for starters, shopping the fringes of the grocery store for whole foods is a good idea.

Gluten can be present in beverages, spice blends, art supplies incl play dough, home-repair materials, glues, cosmetics, shampoos, hand lotions ... the list goes on & on.

Dana Korn has written many books about living gluten free
-- check your public library. The most recent one was Gluten-free Living for Dummies. (not that you are )

Many kids do well with both GF & CF. My son has done three lengthy trials of CF with no change, however he is the exception. You do see this occasionally. You also run into kids who need soy free, or nut free, or egg or corn or whatever.

The CF portion of the diet is IMO a little easier because current labelling laws require dairy to be labelled. Shopping is easier than for the GF portion, because only wheat is required to be labelled, not gluten. However casein can show up in weird places like canned foods, sausages, 'dairy substitutes', boxed meals, etc.

A great recipe resource for GF/CF diet for kids on the spectrum is Special Diets for Special Kids, by Lisa Lewis, in 2 Volumes. These are spendy books, but my library got them for me to borrow through interlibrary loan ( ask at reference desk). The recipes are kid-tested, replacements for regular kid food.

Other considerations with GF/CF diet: will the whole family follow the diet? Time & monetary considerations. Cheating opportunities if conventional foods remain in the home. Sensory issues. Follow-through at school. Difficulty eating out.

But IMO it is defintely worth a try, esp. if there are gut issues.

Best wishes.

 
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Old 12-29-2006, 07:27 AM   #3
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momof4boys HB User
Re: GF/CF Diet?

I have had my aspergers son on a GF diet since September and I cannot tell you how greatly that diet along with a high b vitamin sups. have helped him. I can have a conversation with him and he concentrates sooooo much more. We did have him dairy free too but we are slowly introducing that back into his diet without any bad reactions. I have also noticed that red dye #40 was a huge behavior problem for him. He is now red dye #40 free and is doing even better. He still has sensory issues but not nearly as over the top as they were before.

GL in what ever you do.

 
Old 12-30-2006, 11:40 PM   #4
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BetsyAnn HB User
Re: GF/CF Diet?

Quote:
Originally Posted by soozeq
A few questions for those who've tried it.

What made you decide to try it? I havn't had it recommended to me, but Liam has constant constipation and digestion problems that are affecting his behaviour.

How did it affect your child? Does it change his behaviour, or relieve pain?

What foods are banned/allowed?

Thank you so much. I don't know if we are going to try him on this diet. But, I feel like something has to change. Yesterday he screamed for 2 hours trying to have a bowel movement.

Suzy
When I first joined the board numerous parents reported improvements with all of these different supplements. I was convinced that there was something to it but I had no idea how to go about determining which supplements to give my son or how much of each supplement to give. I was very overwhelmed so I decided to see a DAN doctor. He gave us a list of supplements to try and told us we needed to do a trial of the GF/CF diet. I really did not think the diet was going to have much effect on my child but I decided to follow the advice of the doctor.

The diet has helped my child so much. After starting the diet he was able to sleep. He stopped stimming. He was more talkative and interactive. His eye contact improved. His play skills improved. He also stopped smearing poop.

I had not realized that my child was in pain. But now I believe he was. He would sleep (I use that term loosely) with me and all night long he would try to climb on my head. He was not comfortable unless his stomache was pressing down on my head. I am sure this somehow helped with the pain he was feeling. After starting the diet this stopped completely.

My son has just the opposite problem from your son. When he gets casein or glutten he getts terrible diarreha. However, I have meet children with constipation that have been relived by the diet.

I say, give it a try, if it doesn't help you can always stop.

 
Old 12-31-2006, 06:03 AM   #5
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soozeq HB User
Re: GF/CF Diet?

Thank you so much for the replies. I've been studying a little bit on the diet. It sounds incredibly complicated, but rewarding if it works. All of you who replied recommeneded a DAN dr. Are they available in Canada? How do you find one? Did you have to pay for it?

We FINALLY have Liam's developmental asessment of the 8th (nine months, we waited). I figure I wouldn't want to try anything new around the time of the eval. But, I really think I might give it a shot after. Although, my husband thinks I'm nuts, and I'll just jump at anything that looks like 'cure'.

Does your whole family follow the diet? Luckily Liam adores fruits and vegetables. I think he would eat them exclusively if allowed. But, he also loves his dairy. Oh, so much to think about!

Suzy

Last edited by moderator2; 12-31-2006 at 08:10 AM.

 
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