feel like im going mad - Autism Spectrum Message Board

vinnysmum · 06-14-2007, 03:27 AM

hi been looking at this site for a while now. and decided to post just to say how much strength you;ve all given me throught this prosess. we've been in the system for bout 1 and half yrs and finally gonna get a dx the end of nxt month. but now i feel like im goin mad as im not sure i want a dx now if that makes sence.its not that i feel the dx is'nt rite because i'v known since vinny was bout 6 mths that something wasnt right. it just feels so final. although i'v always known i was hopeing someone was gonna say theres nothing wrong and everything will be ok. the funny thing is iv always excepted that he was autistic. i just feel so confuzed at the moment. hope this makes sence. bye for now.

meechieny · 06-14-2007, 08:31 AM

You need to see a diagnosis as just a "thing." It is a just a name that you need to get the help and services that is going to help your child become the person they truely are. Personally what I am trying to do for MYSELF at this time in our life, is to train my brain not to think about "Autism." Obviously I'm not totally there yet because I check this autistic site everyday

, but now I am using it for more of a tool to help my son rather than some obsessive way to get over my pain for him. Does this make any sense? I no longer want to see my son as autistic, I want to see him as a sweet boy who is having a hard time with an "issue" at the moment and I need to help him find his way to get over it.
If you can, try not to focus on the diagnosis, but your babe. Who cares what they are going to call it? Autism, Auditory Processing Delay, Sensory Intergration Dysfunction....hey they can even call it the hoakie pokie disease....what ever, just do what you need to do to make his life better. Take care. I hope you start to fell better about all this soon.

Brandiof4 · 06-14-2007, 11:22 AM

Hi there
I know it is hard to except, but knowing for sure is best. Even if you get an autism diagnosis and he is not, he will qualify for speech therapy and other services. Services that any child could benefit from and if he turns out not to be autistic then that great. Point being a little extra attention will not hurt but not enough attention will. Get the ball rolling in the right direction, what every that direction may be. When children are this little time does matter and the earlier the better.

keljrich · 06-14-2007, 10:31 PM

I know exactly what u are going thru!! Last week my 4 1/2 year old son was diagnosed with autism. Like u, i knew it from 6 months..that there was 'something' not quite right...So i have fought for him and pushed for this all the way..Then when it happened 'just like that' one dr's appoinment (after 500) It felt very weird and I felt like Maybe i had done him some kind of injustice..that maybe it wasn't right. Though I too have been convinced he is autistic for a long time. Its very hard to come to terms with once it is put out there just like that one day..though I keep telling myself he is the same child and all the hard work has been done..all the behaviours ,etc are still the same. Nothing changes..but it does help him with funding and thats the positive thing.. to get all the early intervention happening for him...I hope you go okay. let me know how it goes..it is a very hard thing to go through!