Not getting much support for my child
I am concerned about the support i don't get cause my child doesn't have all the signs of classical autism and he is diagnosed because of certain things, behaviors, stims, routines, transition problems etc....
Everyone that comes in contact with him thinks cause he is social, gives hugs (which an OT told me cause of input he gets from hugs he does this at times) and people think cause he does those things that he shouldnt be on the spectrum. He also has behavioral problems and the one Mom that was talking to me said "no not him" and she was going on telling him how sweet he was being, yet few minues before he was giving me a hard time and eating up how she was making a big fuss over him after. He acts up but is more extreme then others his age and for different reasons he does these things yet everyone seems to tell me it is typical and makes excuses for everything he has done. Even his stims some have said (my parents or others) are cause he copies off of other children. I have lots of his behaviors on tape and i feel like not even going to dev pedi next month cause she seems to think it is sensory but nothing is wrong she doesnt want to diagnose even though he was diagnosed by a psycologist. He has stims, and high pain threshold, hyper more than other children, thinks the world is all about him. Cannot be told and if i do tell him no he wont comply with me cause of me correcting him. He then runs to someone else whether it be dad a therapist and gives them a hug and looks back at me while he is doing this. He echoes my whole conversation he cannot have back and forth conversations. Everything seems to be about "him" if he does have any speech or he points out stuff to me which he just started doing but if i point out anything he doesnt care about it. i love hearing his progress and very proud of him but when there are concerns everything gets written off like nothing is wrong and don't give me anything to work on him with either. I ask him do you like school? He says "Acool" and babbles saying things i have no idea what he is saying. The one therapist said maybe vocal stim.
In school they have to give him easier tasks to work on complaince. Yet the speech therapist tells me he comes right to the table when she works with him at school, and i think because he knows the ST and works with her and asks for things that they work on every day cause it is his routine.
He is also obsessed with food he can eat for 3- 4 hrs straight he is chewing on his hand if he isnt eating and actually put a scab on his hand from biting so hard. He has a hard time with new places and has the biggest meltdown and needs food that is the only thing that calms him and when he starts eating he cant stop or else back to meltdown. Yet people write off his big meltdown too though, and all along i am sweating cause he is acting up and hurting himself.
I am mad cause strangers or even some therapists i know arent concerned, i wish they could walk a month in my shoes to realize what is going on and it is a broad spectrum. Just because he isnt rocking in the corner doesnt mean there arent concerns. Is it only me?