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Old 08-25-2008, 10:27 AM   #1
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Exclamation I'm New Here, I need advice

I'm new to the message board so excuse me if I haven't posted correctly. I have a son that will be five next month and I was wondering if he had autism since he was about 2 years old. I would ask him a question like how old are you and he would simply repeat the question. But as of the age of maybe 3 1/2 to 4 years of age his speech has improved tremendously. He learned his numbers and abc's by the time he was two. I don't know if it has anything to do with me reciting his abc's to as an infant to soothe him. By the time he was three he could count into well into the hundreds, knew his shapes, colors and sounds. He has always been very affectionate with me and his dad and certain members of the family. I notice he is more out going at home. Now at the age of almost five his speech has gotten much better, he talks to family members that he would'nt talk to in the past. He gives out kisses and hugs to extended family members, and loves to play with his cousins and the kids at daycare. My concern is mainly his speech. He asks for what he wants its just that his sentences are sometimes broken up or kind of out of order but this does not happen all the time. I mostly see a differnce in his behaviour when we take him to the doctor, he hates to be examined or he throws terrible temper tantrums when whe does not get what he wants. I have had two doctors that were not his doctors mention autism to be simply because he would not comply with the examination. But the doctors never asked me any of the key autism questions that are red flags, and I have been wondering about autism since. Please give me some insight??
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Old 08-25-2008, 11:23 AM   #2
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Re: I'm New Here, I need advice

Oh I miss Chicago!!! I'm from Schaumburg and there,as well as many areas, you call the school district your child would go to and talk to someone in "Early Intervention". I don't know if you're in the city-if you are, Easter Seals(sp?) is a good resource for anything that may or may not affect your childs education. These Early Intervention programs throughout the school districts are FREE!! They want to catch things asap so they are prepared.

Good luck becca

Last edited by rbecca; 08-25-2008 at 11:25 AM. Reason: spelling.......

 
Old 08-25-2008, 11:47 AM   #3
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Re: I'm New Here, I need advice

I'm on the wait list for two schools now for their pre-k program because my son's birthday is after the september 1 deadline. Personally I don't think my son has autism but the fact that he will not comply with the doctor during examinations is a problem. He has always had good eye contact, shows emotion, he knows when me or his dad is angry with him. If I hurt myself such as hitting my toe on furniture he asks me If I am okay. He plays with his action figures, he uses voices when playing with is action figurs, he has no proble taking baths or showers in fact he loves the water. He is fully potty trained, he pees standing up and puts his potty onto the toilet to poop. He rarely has any accidents at all. His speech as improved. He follow directions well. Loves to play video games and loves for me to play with him, he is very social. He just has terrible tantrums when he does not get his way. Does any of this sound like autism???

 
Old 08-25-2008, 12:46 PM   #4
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Re: I'm New Here, I need advice

MY little brother has autism and hes 6, He is briliant with numbers and math and he knows colours, shapes, abc's ect. He however cant talk properly, his speech has improved significantly with speech therapy at school and he is really socail. Did/does your son do any obsessive behaviors like rocking? Also my little brother sometimes(not often) repeats the question or avoids it entirely. I dont know if this helps but i would do a bunch of google research on autism and asbergers. Hope this is insightful!

 
Old 08-25-2008, 01:33 PM   #5
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Re: I'm New Here, I need advice

he doesn't sit and rock or anything like that. he seems to be pretty well rounded as far as things he is interested in. he is good with numbers and tell time, abcs his sounds and can even read a little bit. he doesn't focus on one thing for a long time. he even knows his shapes and can draw his shapes and some letters. right now i am teaching him how to right his name. i forgot to mention that he is a little smart a--. we even argue sometimes, he likes to do the opposite of what i tell him to do.

 
Old 08-30-2008, 08:51 PM   #6
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Re: I'm New Here, I need advice

sounds like he might be just fine, i would get him checked though cause im obviously not a doctor lol.

 
Old 08-31-2008, 12:50 PM   #7
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Re: I'm New Here, I need advice

There are many different forms of autism. There is a whole spectrum. 1 child out of every 155 children has some form of autism. My son (9 yrs) and my nephew (6 yrs) both have autism. My son has never sat and rocked. Not all kiddos do.
However, my son (a twin) was not like his twin sibling. I started seeking help when he was 2. Professionals kept telling me that he was fine, that he was a boy and a twin and that is why he was, "slower" at getting things than his twin. No, I knew something wasn't right. Not that there was anything wrong with him, I wouldn't change him for the world. We need more like him. I'd just change the world.
As an infant, I knew things were a little "Not exactly right” with him. He was just more particular about things. Textures, temperatures, etc, didn’t like to go from the carpet to the hard wood floor….. but it wasn’t anything that stood out like a sore thumb. He was initially dx with Sensory Integrations Disorders. He started speech at 2 yrs, had OT and one heck of an advocate in me. I'm not a doctor, by any means..... Your story just sounds too familiar.
By the time he was 4, my son had never sung a song or sat and colored, sentences were fragmented. Even though I could understand 80% of what he was saying it wasn’t that for the rest of the world. This is when he was diagnosed by the Behavioral and Developmental Clinic the local children's hospital. Again, I'm not a doc...... but you are a mom.... his mom. Follow YOUR instincts and have a behavioral and developmental specialist check him out!!! Good luck Hon!!

Teri

 
Old 08-31-2008, 05:06 PM   #8
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brattybratteddi HB User
Re: I'm New Here, I need advice

First I would like to welcome to the board, From the experiences of my son I had noticed he wasn't making all the kiddo's milestones at those timelines. He was always eating like a horse 4-6 baby food jars at a sitting 4x's a day and formula bottles as well an average of 6 with 2 tablespoons of cereal in them as formula in itself was just not enough for him. Around 10 months and we had recently moved upstairs into our own place from his grandma, it was like over night a lightbulb had switched off and he reverted to just plain formula would take his sippy cup or eat any solid, but not chewable food anymore. Meaning he wouldn't eat the babyfood jars stage 1 or 2 anymore, or anymore mash potatoes and apple sauce. Mom and I had seen a show on TV talking about Autism and its characteristics and seen my son fit perfectly to a tee to the characteristics. Hands flapping, not really liking to be touched or soothed, having bad temper tantrums (literally banging his head into walls, or throwing himself into cupboards) and different other sensory issues. Having had a computer at this time I began to researching everything thing I could about Autism and arguing with doctors that somethings just didn't seem right behind on all milestones, and about all these characteristics in regards to Autism and the reverting to just plain formula. This was a little boy who amazed doctors when I told them how much he ate, to now eating/drinking formula. Doctors kept saying he was fine, and that they can't check for Autism until he 8 years old. I had been turned in numerous of times to CPS, because of nosey neighbors thinking it must be something we are doing and why he isn't making these milestones, why he is still on formula at ages 2 and 3. Needless to say even though they came and were called when they came to investigate saw that he wasn't being neglected but because there was a report, they had to check regardless. By now I was working with Early On, and program who deals with children who are behind their peers. They put a stop on all the CPS complaints and had refered me to another pediatrician that specializes with children with special needs or disorders. This pediatrician had sent us to a neoruologist and he's the one who had diagnoised my son with mild to moderate Autism. Things had improved for a while except with his eating habits (another sensory issue and more CPS calls) I had even gone to a nutritionist who had confirmed the sensory issue and this is why he would only eat pudding (in the instant cups) yogurt (completely blended no chuncks) and formula for a while and gradually moving on to milk. (would cost an average of $10 a day at least for this) He even could tell the difference from jello pudding that you make and wouldn't eat it LOL. To me pudding is pudding and I was just trying to find cheaper and more economical ways to pursue this diet of his. Living on a limited income and only person working at the time $10 a day was quite high and average to $300 a month without feeding the 3 of us, and 2 other step children who were at my house quite often. LOL. Anyways yeah I had all kinds of grief from neighbors or ignorant people who are clueless to these things more grief with CPS as a result. Disadvantage to living in a small neighborhood where everyone knows you name, and you business and have no lives themselves and want to mess with yours for fun. He started PPI at the age of 3 going to school, all types of different therapies physical, occupational, sensory, and what not. Today he is very high functioning, very verbal, outgoing uses minimal eye contact, still flaps his hands and working in cutting this down, he is in the 3rd grade (behind a grade because I couldn't get him potty trained for reg. Kindergarden so stayed in PPI for an addtional year. He is main streamed in science, lunch, gym and recess with the regular 3rd graders with a parapro. Still had a counselor who comes to the house ever 2 weeks, no meds other than doc q lace for constipational issues. See some ADHA and OCD issues with him and he abscess with science, natural disasters been predicting the weather more accurately than the meterologist since the age of 2. If he says its going to rain, or snow it will and will be sometime today. Even predicted us getting hit with a tornado at the age of 4 (which they down graded to a microburst in my area) Though still a funnel cloud and did major damage to the highschool that was 1.5 miles away from where we lived. He is doing good still some minor things going on, but his future looks good and has a good chance on living independently when he grows up with some intervention or check up for social workers. So keep your head up with early intervention a lot is possible. And with more, and more research on this complicated disorder things can change and you son or daughter could have prospects of living a "normal" life as they grow up. I have done a lot of research on this disorder, and a term paper for school. Early intervention, and different therapies in my honest opinion is the key to success. I wouldn't change my son for the world.

 
Old 08-31-2008, 05:14 PM   #9
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brattybratteddi HB User
Re: I'm New Here, I need advice

My son was ultra sensitive to the paper on the table that they use in doctor offices. And in getting immunizations or general shots it was a tag team of 6 people holding him down, and the nurse to give the shot ever since infancy. They can be really strong. To this day he still is afraid of tongue depressors and as a result its a major meltdown if I have to bring him to the doctors. lately because I have stated his fears of tongue depressors, they just have him open his mouth wide enough to look in. He has had a lot of ear infections, bronchitis, tonsilitis and showing signs of asthma since 7 months.

He is reading in around the 1st grade area even though in 3rd grade and instead of writing from top to bottom in regards to writing his letters he goes from the bottom up.

He is real emotional and highly sensitive and takes everything literally, no jokes are allowed, no singing a long with the stereo and other things. But he is very well manner, tells me what he is doing, play by play usually and he doesn't wander either.

 
Old 09-02-2008, 10:53 AM   #10
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Re: I'm New Here, I need advice

i understand that there are different extremes to autism. In my case my son sings along to songs, and dances and loves music in general. My major issue with my son is his fragmented speech and temper tantrums. If he has autism then I will do what needs to be done for him. My point is that how many of the red flages does a child have to have to fit in the spectrum.( removed ) my son's results were not autism. He is a very happy and loving little boy. But I have to admit I do not want my son to be autistic. I don't know any parent who would. But if he is me and his dad will continue to love him and give him the therapies that he needs to function properly in this world.

Last edited by moderator2; 09-02-2008 at 02:35 PM. Reason: not allowed to post doctor's websites - please read the posting rules

 
Old 09-02-2008, 12:25 PM   #11
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Re: I'm New Here, I need advice

Oh Hon, I'm not saying he does or doesn't have autism. I’m not a doctor and I am sure you would do anything necessary to make sure all your son’s needs were met. It's just that my son's is so mild that most people can't tell and by the time my son was older he did sing along w/ music and loves to dance. Again, it’s just that your original post sounded very familiar to me. Like the Echolalia, being more comfortable at home, the speech, the tantrums. Again, I’m not a doc, but those were things I noticed with my son. I knew my son was "ok". I mean, he made a HUGE masterpiece out of blocks with complete symmetry when he was three, but I just felt that something was off….. Something wasn’t exactly right.
I know that it took me taking him to the local children's hospital to see the developmental and behavioral specialists for his diagnosis. Is there a children's hospital or something in your area where he might be evaluated.
For us, it wasn't so much a specific “number” of "flags" as much as how he ranked on all the "flag" testing..... Does that make sense? It's kind of hard to explain. I’m sorry.
I mean, I've had autism experts look me straight in the eye and say, "Oh, you can totally tell he is autistic." Yet, the teachers can’t tell so easily. They've said things like, "I would have never known," but they've also said things like, "Well, I see how important the structure/routine is," or "Yeah, you can't tell him it's raining cats and dogs out. or he'll go and check." But he is completely mainstreamed and gets almost all A's. Bratty said he son is real emotional and highly sensitive and takes everything literally; my son’s that way too. My son is too trusting and will actually go up to young and old and ask if they want to be friends. He doesn’t “GET” that he just can’t do that sort of thing. Ok, for example, I have a password with my children. Like if someone stopped by at their school and said, “Hey your mom said for me to pick you up.” My kiddos could say… "Ok then, what‘s the password?” I questioned all my kiddos separately…. Went through a scenario with them…. I said, “Ok baby, say someone does approach you, even someone you know we all know. What do you do?” 4 out of my 5 school age children, even my 5 yr old said, “I’d ask them what the password was.” I said, “Ok..... and if they don’t know it, what do you do?” “Oh, we run and scream really, really loud!” Now, when I went through everything with my 9 yr old son and we got to the point I asked what you would do if they didn’t know the password….. he says, “Well, would it be ok for me to give them a hint? “ UMMMMMMMMMMMMMMMM NO! It’s just that some things just don’t “connect” with him. It’s so hard to explain.
It could easily be that your son just has a regular speech issue, is an almost 5 year old boy and just doesn’t like his doc. You noted that: “He has always had good eye contact, shows emotion; he knows when I or his dad is angry with him. If I hurt myself such as hitting my toe on furniture he asks me If I am okay. He plays with his action figures, he uses voices when playing with is action figures, he has no problem taking baths or showers in fact he loves the water. He is fully potty trained, he pees standing up and puts his potty onto the toilet to poop. He rarely has any accidents at all. His speech as improved. He follows directions well. Loves to play video games and loves for me to play with him, he is very social. He just has terrible tantrums when he does not get his way. Does any of this sound like autism???”
When I think of my son and what is quoted about there’s not many differences. We needed to work a little on the eye contact, he can show emotion, knows when I’m angry, but might not really understand why sometimes. He plays with his action figures “now”….. he didn’t do imaginative play when he was younger. When I hurt myself he’s the type that would almost start crying to see someone in pain. He will come over and start rubbing my back and make sure I’m fine. He never liked baths or showers only because water would get into his eyes, but washcloths totally help that. His sister was the same way though and she’s not autistic. He was completely potty trained day and night at age 4.He loves video games more than he needs to. My son follows direction really well and wants to please us and his teachers very badly. You just have to break down the directions into smaller pieces. My son is very social, except he doesn’t socialize very well and plays better in small groups. By that I mean, ya might just have to explain things out to him and he didn’t use to initiate playing with others. Like, he’s almost 10, but he plays better with his 6 yr old brother than kids his age… or better relates to them, I guess. For example, I have to prompt him when he makes calls to his friends. One time he was returning a call to one of his friends and the first thing out of his mouth was, “Why did you call me?” OK buddy, not cool. That’s something my 5 year old might say.
Again, It could easily be that your son just has a regular speech issue, is an almost 5 year old boy and just doesn’t like his doc and that my son has just adjusted and learned what response society is expected out of him, in any given situation. Maybe he's observed everyone long enough to "fake" the appropriate/expected reaction or response. I really don’t know. Some sort of defense mechanism? Maybe, maybe not. I've had my (just turned 5 year old last month) ask me why I laughed at something on the TV the other day. I told her it was because it was funny. I just think you have enough “flags” to warrant a specialist is all.

 
Old 09-04-2008, 07:25 AM   #12
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Re: I'm New Here, I need advice

Thank you for your post. I'm really just so grateful for all the things my son is doing now at 5 years old. You mentioned that your son just started imaginative play at 9 and that's great also. My point is that you pointed out alot of the similarities between your son and mine and what I've noticed is my son is doing some things at a younger age that your son just recently started doing. I think that is a great sign for my son that he is on his way. Maybe he is a late bloomer and I truly hope so. I guess Im really confused as to what the signs of autism are. It's obvious that the doctors are confused also. You have one doctor telling you one thing and then you will have another doctor say something totally different. Can someone please post the signs of autism. Because it appears to me that my son does not fit. Yet people are posting that he sounds similar to my child or this child. From my understanding of autism, all kids show signs of autism to a certain extent. They eventually grow out of them is that so??? But anyway can someone post the red flags of autism???

Last edited by dyshell710; 09-04-2008 at 07:27 AM.

 
Old 09-04-2008, 10:46 AM   #13
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Re: I'm New Here, I need advice

My daughter was diagnosed with autism at age 3. She was perfectly normal until 2 when imaginative play did not exist. They do not "play" with toys in the normal imaginative way other kids do. She would panic at strangers saying "hi". We could not take her outside the house to any stores or she would scream and kick and panic as if she were scared to death. She had unusual "ticks" when she got excited about certain situations. I know you need specifics in diagnosing, however this is all I can tell you. She was evaluated at children's hospital and diagnosed with mild autism.

DO NOT FRET, HOWEVER - she is perfectly normal now at 12 years old. She is attending a regular school and on HONOR ROLL. She shows horses professionally and has taken the grand champion award this year. NOBODY can tell she ever had anything wrong with her. She had to work harder than anyone else to be "NORMAL" and work through her fears and ticks. Just because it might be mild autism is not a doomsday diagnosis. Hope this helps in some way!

 
Old 09-04-2008, 08:33 PM   #14
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Re: I'm New Here, I need advice

BRATTIBRATTED Finally I found someone who feels the same way I do about their autistic child. I wouldn't change my son for the world either. He is my life and it is the best life there is. He has brought joy in times of sorrow, and can turn tears to laughter. We also discovered his delays very early, and had early intervention started around 18 months of age. He is now 14, in the 8th grade and working at grade level in most subjects depending on how much he is interested in that subject. He was diagnosed with Autism (mild to moderate) at age 30 months, and was changed to Asperger Syndrome at age 11 years.

Last edited by earp1990; 09-04-2008 at 08:35 PM.

 
Old 09-04-2008, 09:35 PM   #15
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Re: I'm New Here, I need advice

My son too is also changing from mild to moderate autistic, to aspengers (sp.) Glad to hear yours is mainly at grade level, something my son is not at and truthfully I think it is because teachers even in AI classroom doesn't always look at the child's potential. Its on of the things I always say and stress at the IEP's because I also want what is best for him academically as well. I have been told he does have a chance of living at least semi independantly once grown if not independently and without the proper education I am a little concerned about this if they don't look at the child's true potential. IMHO

 
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