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Old 09-16-2008, 04:48 PM   #1
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sdjansen HB User
Question about PDD-NOS with relation to Apraxia and SID

My DS is almost three and a half and is diagnosed with speech apraxia and sensory integration disorder. He fits these profiles very well but lately he has been showing new behavior that as his mom I feel is beyond his diagnoses. For one he is now becoming very sensitive to sound to the point he will put his hands ove his ears when he hears certain things, like a baby crying. In the past the only sensory issue he has had is in relation to touch. Stuff like he cant stand his hands, face or clothes being wet. He screams bloody murder when I wash his hair. He also does stuff like lining up his cars in one long row across the floor, and spins in circles till he falls down.
He is very outgoing and likes people but is very hard to get to make eye contact. I will come down right to his level and say look me in the eye and he will for half a second and then look every other direction then at me. He doesnt talk much but he never has.
His speech therapist and occupational therapist dont seem to think anything has changed in him but my moms instinct is screaming something is changing.
I think they just dont want to repeat the IEP since we just recently did it. How do I go about getting my son tested for PDD-NOS, or better yet is there a test for that. How is is different then autism? anyone have advice for me? am I being paranoid?

 
Old 09-17-2008, 07:02 AM   #2
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Liamsmom HB User
Re: Question about PDD-NOS with relation to Apraxia and SID

I would ask for a full evaluation The sensory issue could just be a part of any number of areas on the spectrum but the lining up of cars would have me concerned. Therapists only spend what 60 mins a week with your child you do know best and you should bust some chops to get what you want as far as evaluations go because the younger he starts with all the therapies the better the outcome. I've recently have had my son put on a waiting list for a sensory gym which can better address his SID issues. They ( the powers that be) tend to keep certain info to themselves for some reason even though it's their job to provide assistance so it boggles the mind that when assistance is asked for it is generally made out to be a massive challenge.

Take a deep breathe and get to making the phone calls take down names and don't be afraid to get firm.

Take care and good luck

 
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Old 09-20-2008, 03:51 PM   #3
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janepona HB User
Re: Question about PDD-NOS with relation to Apraxia and SID

I fully agree with Liamsmom and her comments. It does sound like something more is going on and you should absolutely trust your gut. You know your child better than anyone else. The therapists only spend a short time with him a week and you observe alot more than they do daily. You have valid concerns and they should be addressed. Talk to your child's doctor and get referrals for some specialists. It may cost you out of pocket (if medical coverage doesn't cover) and about a week for the screening process because they will observe your child in different settings (home, school etc...) and at different times of the day. It may take awhile to get an appointment but don't worry. You are seeing changes and you have questions and those questions should be answered so stay strong.

 
Old 06-30-2010, 09:59 AM   #4
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singit HB User
Re: Question about PDD-NOS with relation to Apraxia and SID

Quote:
Originally Posted by sdjansen View Post
My DS is almost three and a half and is diagnosed with speech apraxia and sensory integration disorder. He fits these profiles very well but lately he has been showing new behavior that as his mom I feel is beyond his diagnoses. For one he is now becoming very sensitive to sound to the point he will put his hands ove his ears when he hears certain things, like a baby crying. In the past the only sensory issue he has had is in relation to touch. Stuff like he cant stand his hands, face or clothes being wet. He screams bloody murder when I wash his hair. He also does stuff like lining up his cars in one long row across the floor, and spins in circles till he falls down.
He is very outgoing and likes people but is very hard to get to make eye contact. I will come down right to his level and say look me in the eye and he will for half a second and then look every other direction then at me. He doesnt talk much but he never has.
His speech therapist and occupational therapist dont seem to think anything has changed in him but my moms instinct is screaming something is changing.
I think they just dont want to repeat the IEP since we just recently did it. How do I go about getting my son tested for PDD-NOS, or better yet is there a test for that. How is is different then autism? anyone have advice for me? am I being paranoid?
Hi,omg. This sounds like my little girl. Read my post Chicken Satay and it tells you all about her problems. Her doctors have sent her to be evaluated for some form of Autism. So far the therapist does not see it yet. We have only had one appointment with him. I think he can' t get past the fact that she is social. What I told him is that I've been taking care of children all of my life and I know how to work with them. We have preschool everyday here at home and we have improved in areas like eye contact and answering questions.

 
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