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Old 11-03-2009, 06:12 PM   #1
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Exclamation My son just was re evaluated by a ...

My son was evaluated by a neuro psycholgist today. He has been recieving special ed services since the age of 4. He primary diagnoses has always been somewhere along the autisc spectrum disorder and cognitive delays, and ADHD . When very young , he took medication to control his hyperactivity. However, he grew out of the hyperactivity by the age of 13 .
The Regional Center provider was the one who set us up for this in depth evaluation , and felt that it would be benificial . Iwas not too keen on the idea , however , felt that it could be positive once my son hit the age of 18. My son still is in special day classess , and recieving the great services , and did have a school evaluation done last year in the spring, however, I was told the school psycholgist is not able to give diagnoses, even though my son does attend a special school.
Today was the big day, we waited over three months for it. Even though my son had gone to previous Dr's , neurolgists, and psycholgists, he has never gone to one of these specialists before. I actually was feeling very nervous as I was getting ready to take him. It was an out of town drive.
The Dr. talked to me first, than had my son do tests , pencil and paper tests, I was not in the room with him. Because I thought i would be a distraction .
Than I went back to talk to the Dr. afterwards. The Dr. told me , My son has Autistic Disorder.
Rather clearly . He now has a confirmed and concrete diagnoses , that I quite knew all along, but to hear it from a specialist , made me sad.
I also found out that very soon the term "Aspergers Disorder" is going to be taken out of the Diagnostic manual for good.
I would like to share with other parents who are concerned about their own children's development go through your local regional center. As well as your local school district.

 
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Old 11-13-2009, 10:01 AM   #2
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Re: My son just was re evaluated by a ...

You said that you were told that Aspergers Disorder is going to be taken out of the Diagnostic Manual soon. Did your childs doctor say that is will be now called/clasified under Autistic Disorder. Is that a change in the DSM/diagnostic codes used in the Autism Spctrum Disorder?

 
Old 11-13-2009, 08:47 PM   #3
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Re: My son just was re evaluated by a ...

Looks like there may be a reason to take Asperger's out of the diagnostic manual, along with a number of other conditions. But not for our benefit. Excerpts from the New York Times published online March 6, 2008, an article titled "House Approves Bill on Mental Health Parity":

After more than a decade of struggle, the House on Wednesday passed a bill requiring most group health plans to provide more generous coverage for treatment of mental illnesses, comparable to what they provide for physical illnesses.
. . .
Under the bill, if an insurer chooses to provide mental health coverage, it must “include benefits” for any mental health condition listed in the latest edition of the Diagnostic and Statistical Manual of Mental Disorders, published by the American Psychiatric Association.

So, take it out of the manual, and insurance companies don't have to provide coverage. Sweet loophole, huh?

Last edited by roses4lace; 11-13-2009 at 08:47 PM.

 
Old 11-13-2009, 08:53 PM   #4
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Re: My son just was re evaluated by a ...

Wouldn't Asperger's still be included in the Autism Spectrum Disorder diagnosis?

Mscat - think of it this way; your son is still the the same kid that you love and the diagnosis will allow him to continue to receive the services that he has and needs for his continuing progress. I'm sure now that the nerve-wracking test is over, you're relieved (I sure would be) and can just focus now on progress and improvement. It sounds like you're fortunate to be in a district that provides such good services.

 
Old 11-14-2009, 09:32 AM   #5
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Re: My son just was re evaluated by a ...

I found this on-line. It seems the change will be from a specific Dx of Aspergers to change to High Functioning Autism, HFA, with different classification under that. I will miss the "label" Aspergers, differentiating it from Autism, although there is Autism Spectrum Disorder that is used frequently also. I think they are just re-adjusting classifications not really removing Aspergers as a legitimate diagnosis just reclassifying it, At least that is what I got from the information I read.
I found this information about a Conference that took lace in Feb 2008:

Autism and Other Pervasive Developmental Disorders Conference (February 3-5, 2008)

 
Old 11-15-2009, 11:06 AM   #6
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Re: My son just was re evaluated by a ...

Quote:
Originally Posted by Cathy01 View Post
You said that you were told that Aspergers Disorder is going to be taken out of the Diagnostic Manual soon. Did your childs doctor say that is will be now called/clasified under Autistic Disorder. Is that a change in the DSM/diagnostic codes used in the Autism Spctrum Disorder?
Yes. Either a person will have autism , or not. Not PDD or Asperger's anymore. My understanding of what he was trying to tell me was that their are so many more people being diagnosed as having autism that their is confusion about the Asperger syndrome and PDD diagnoses that it is going to be taken out of the DSM all together very soon. It was is our local paper a week ago, which I had missed .
My son he is 16 years old, and it was only confirmed that he has austistic disorder , in which he has had over the years , of services he has been in special education .
Being my son's biggest advocate is the most important , and making certain that he recieves the best and most services that he gets is the most important for him is my main goal. My son is verbal , and I still do think he is on the higher functioning end of the spectrum , and in my honest opinion feel that autism is a spectrum disorder.
I also know that Autism is NOT a mental disability. It is a developmental disablity . This is very different then a mental disability . I wanted parents to be aware of the changes that are coming very soon in the DSM and how it may affect your children, or not. It is only a matter of terminalogy. That's all.
Make certain that your child will NOT lose services under the new guidelines . And be prepared if you need to . I would talk to your child's Doctor about this , because most of the professionals already are aware of these new changes that are about to happen.
mscat

 
Old 12-12-2009, 08:52 PM   #7
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Re: My son just was re evaluated by a ...

My understanding is that they are modifying the guide to include things like asberger's and pdd-nos into a diagnoses of autism instead of holding them seperate. This will allow children who just miss a diagnoses of autism to receive the same services without discrimination. Of course this only makes sense as these children need just as much help with the issues they do have.

 
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