Originally Posted by CelestialCastle
Thank you for the compliment. I am so glad that your daughter has improved in so many ways. I am going to find a way to get our government to make something permanent in the health care system for these types of testings as parents as ourselves have so much on our shoulders that we cannot think of everything. This actually should be standard for any disabled child. The only time anyone thinks of things like this is when they are in the situation and blaming themselves for them losing their child. I am in that stage right now. I just can not even get myself to move forward without him. He was a terrific young man, the apple of my eye, my heart and soul. Everyone loved him.
write to the CDC. They called me back. I was shocked. I do not know if the dr or parents are to blame. some do the quick school psych evauls and someone should say, whoa, get some more testng.
My daughter ped was my mine as a child. the moment i brought her in and suspected something was not right he sent her to a children hospital for genetic, blood and metabolic work ups. the state children special health services did thier bit of testing. ct scans, hearing test and then at age 3 out of the blue she had a grand mal seizure. there was little known there about autism. if i hear one more person say they got a auti chld dx by a simple psych I am going to scream! some metabolic disorders are being missed. i know one lady on the het that was 100 sure her son had autism he did not but by time she found out what he had the damage was done.
Glad to have met you and I am sorry for your loss. I had just seen a a tv show on a girl with seizures so when she had one I was like OMG.
Educate the school districts. I am glad to see you are taking a sad event and trying to do good with it. Bless you.