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Old 10-10-2011, 02:38 PM   #1
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peyto HB User
Angry autism dilema

I have posted before regarding my son who is now 2 years and 10 months. He was assessed by a speech therapist who felt strongly that he was autistic and referred him to the child development centre. The doctor assessed him and agrees with the speech therapist. She said she just needed more info on how he interacts with children and wants us to go back for poss diagnosis in the coming months.I spoke with his special needs nursery who said that he does not interact with other children but does with adults but it is always on his terms. The doctor has arranged for the specialist autistic team to work with my son,,which is great ,however I am unsure about whether he meets the criteria. I have been on an emotional roller coaster the past 6 months, one minute thinking, yes its definately autism and the next unsure.
Most of the time he looks perfectly normal although he does have some quirky behaviours such as constant hand flapping and toe walking and also head shaking and looking at things from strange angles. Socially he thrives attention almost all the time, he'll grab your hand and force you to do what he wants or if he wants you to sing he'll sing a line over and over and then if you don't do it he'll grab your lips.
He tries to interact with very young children, however he will often grab them and not let go or keep kissing then or look at them within an inch of his face with his head to the side. He is also too familiar with strangers.
He plays well with family although once again always on his terms and loves rough and tumble and chase. He has some sensory issues regarding sound and food.He did not point until recently and did not respond to his name at all until he was two and does not consistantly now. He'll often ignore us unless it is something stimulating etc.
He gives fantastic eye contact when he interacts but hardly any if we try to interact with him.Alot of his behaviour is very repetitive.
He has a delay in language ,4 words at age two, 25 at two years,four months. Now he has around 80 and has very suddenly began to speak some sentences, such as; where is daddy,where is the ball,go outside,go on light,wash it hands. He deos not however answer questions and his understanding is very poor. He also repeats words over and over, sometimes as much as 30 times until you repeat. He does this with songs also, such as eieio or we will we will rock you. He'll often greet people in this way. He often, but not always sounds as if he has an accent and people have remarked on this.
One thing that has suprised me is that he has just began to engage in some pretend play. It is at a very basic level and tends to be very repetitive, for ex;putting a figure in a toy car and saying hello daddy, opening the boot, closing the boot, taking the figure out and then repeating over and over.
He has just started to make nee-nor sounds when pushing toy cars and vroom sounds when riding his bikes. I know children usually engage in pretend play much earlier than this and it is usually more developed, but I have read that autistic children do not play pretend, which leaves me to be confused especially that his speech is now improving.Up until recently he would just line toys up.
Is he still likely to recieve a diagnosis now he has made this progress or is this still typical of a child on the spectrum.If it wasn't autism how do I explain his difficulties and behaviour.PLEASE HELP

 
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Old 10-10-2011, 07:15 PM   #2
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Smile Re: autism dilema

Hi your son sounds just like my son was at the same age. We also did not think he had autism because he was/is very loving,good eye contact likes people and liked to play with siblings. However all the things you describe like not understanding directions,no speach and repetitive behaviours were there. He was diagnosed with autism at three years old. When/if you get your diagnosis even though you dont want it, it will make you feel better because you can move on from the indecision and just do what you need to do. The good thing is as he gets older and gets help he will slowly come out of it to some degree and it wont be so hard. Get a good speechy and ot and look into natural medicines also gluten free worked wonders for my son, thats what we did and our son has progressed so much in just 2 years. Good luck and i wish you well.

 
Old 10-11-2011, 05:45 AM   #3
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peyto HB User
Re: autism dilema

Thankyou for responding to my question.Did your son ever show any pretend play?

 
Old 10-11-2011, 03:46 PM   #4
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Smile Re: autism dilema

At your sons age my sons only pretend play was talking into a phone. So your son has more pretend play which is good. Now my son has heaps of pretend play, he also never used to point to anything or follow where we pointed to, but now points to everything and listens better. When are you booked in to get him assessed? The hard part is waiting to know when you just want a yes or no.

 
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peyto (10-12-2011)
Old 10-12-2011, 01:46 PM   #5
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peyto HB User
Re: autism dilema

Thankyou again for your reply, it's nice to know I'm not on my own with this. The doctor said that we will get an appointment for possible diagnosis between october and february. The wait is causing me so much anxiety.I just need to know so that I can move on. I find myself constantly observing him for signs.Everything feels different now.I'm scared they'll say autism and I'm also scared they won't as then I have no explaination for his diffficulties and behaviour.Did you have to fight for a diagnosis and did they ever question his pretend play?

 
Old 10-12-2011, 08:10 PM   #6
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tysonsmum HB User
Smile Re: autism dilema

I can remember that feeling of just wanting to know, its horrible they make you wait so long. We actually didnt have too much trouble getting a diagnosis. First we went to a pediatrition as we knew there was something wrong but never did we think autism and at first neither did the doctor, then one visit my son had a meltdown so he told us to see a doctor that specialized in autism and he pretty much diagnosed him straight away, but the appointment to see him was 3 months waiting so i know how you feel. In the waiting i actually started acting like he did have autism to get the ball rolling and took him off gluten and talked to a dan doctor so when i got the diagnosis i was already prepared. They ask you about pretend play and other things but at the end of the day if you get a good doctor they just know by how your son responds and interacts with things they do. I wish you luck and please do let us know how your appointment goes whatever the diagnosis.

 
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