It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Autism Spectrum Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 12-30-2012, 10:14 PM   #1
Newbie
(female)
 
Join Date: Dec 2012
Posts: 7
braveheartlionc HB User
Tired with no help feel trapped

My 11 year old is home for school vacation. I'm at a point where I feel like I'm running on empty. She's too high functioning to recieve respite services from the state. At the same time, she can't go anywhere without something happening. Something. I know I sound very mean right now but I'm at my wits end. She cries when we go shopping. She wanders off when we go to the YMCA. We've been through a police investigation from someone attacking her. We've been through her being pulled out of school because of bullying. I know it's selfish of me to say that I'm tired of her going through things - bc she is the one suffering. But I'm starting to feel ambivalent, that now everything and every part of my life is about her and what might happen to her next. I'm tired and there are no breaks and no one understands, I'm starting to resent this whole thing. Is that selfish?!

 
Reply With Quote
The following user gives a hug of support to braveheartlionc:
Jamilla7 (03-15-2013)
Old 01-11-2013, 07:16 AM   #2
Senior Member
(female)
 
Join Date: Oct 2003
Location: PA
Posts: 164
sjs40 HB User
Re: Tired with no help feel trapped

No, you are not selfish. Just an exhausted drained parent! Hope you've had a chance to recharge your battery! Hugs!

 
Reply With Quote
The Following User Says Thank You to sjs40 For This Useful Post:
braveheartlionc (01-20-2013)
Sponsors Lightbulb
   
Old 01-19-2013, 07:05 PM   #3
Newbie
(female)
 
aspiemom13's Avatar
 
Join Date: Jan 2012
Location: Canada
Posts: 9
aspiemom13 HB User
Smile Re: Tired with no help feel trapped

Hi Braveheartlionc,

this is my first post so please forgive me for any unintentional faux pas. I saw your post and wanted you to know that I understand all too well how you feel. It took 8 years of my fighting the medical system to get a diagnosis for my son. I have all but given up everything to continue the fight to get him the help he needs to learn how to cope within the constraints of society. I have yet to find anyone who will really DO anything concrete for him and so the battle continues.
I am worn out, depressed and anxious. I gave up my little business which I was trying to get off the ground as I am on call constantly. It is an unrelenting job being a parent to one of these special children and it can take its toll. I love my son but I hate what he has had to endure and right now feel a huge amount of anger towards those who took so long to diagnose him and still refuse to help him now.
It is not selfish to get tired, worn out and sick of watching what our children must endure day in day out. We each need something just for ourselves (or so I have been told by every single specialist) but I cannot seem to find the time or energy to do so. I think if both you and I could carve a little moment for personal enjoyment/fulfillment/rest regularly it might go a long way to help feeling so overwhelmed. Hang in there.

 
Reply With Quote
Old 01-20-2013, 12:25 AM   #4
Newbie
(female)
 
Join Date: Dec 2012
Posts: 7
braveheartlionc HB User
Re: Tired with no help feel trapped

Wow, that's so frustrating. I'm sorry to hear that. It seems as if the world is almost closed to our kids. When my daughter was younger it was easier to get by, I could just put her in a tumbling class or something. But now she is literally to old to get away with that anymore. I just don't know what to do.

Last edited by Administrator; 07-29-2013 at 12:04 PM.

 
Reply With Quote
Old 03-07-2013, 10:46 PM   #5
Member
(female)
 
Join Date: Apr 2003
Location: United States
Posts: 55
Vicky446 HB User
Re: Tired with no help feel trapped

I'm not sure about services in other places besides where I live, but here you can apply to the Children's Miracle Network for a grant that will cover some respite services. Is that an option where you live? Also, if you have any colleges nearby, you could try contact the psych department and see if they have any students that would be willing to help you out with a bit of respite for volunteer hours?

Fingers crossed that you find some relief =)

 
Reply With Quote
Old 07-29-2013, 11:46 AM   #6
Newbie
(female)
 
Join Date: Jul 2013
Location: Kingston, NY
Posts: 2
ginazp HB User
Re: Tired with no help feel trapped

Hi, I'm in the same boat. My son is 7 and I'm getting help but he is the reason I hate being a parent.

 
Reply With Quote
Old 07-29-2013, 06:03 PM   #7
Member
(female)
 
Join Date: Apr 2003
Location: United States
Posts: 55
Vicky446 HB User
Re: Tired with no help feel trapped

This is a really old post =) Things get better. My kids are growing fast. My three boys are on the spectrum....18, 16 and 12. When my oldest was diagnosed, they said I would probably need to be looking at out of home placement for him down the road. He is now a high school graduate and working at a video game store (dream job for him!). My lowest functioning son (16) will be a junior in high school. He is very self directed, and has some pretty significant language deficits, but he is by far the funniest of the three. My youngest is the highest functioning, but also the most difficult as he is such an angry guy. Honestly, there are probably a couple of times a year that I feel overwhelmed. I think we all have those days. Do find a respite provider if possible. I listed a couple of ways of going about this in an early response on this thread. If you are struggling with school issues...educate yourself. IDEA 2004 was written to protect our kids. Take care of yourself...it's the best thing for you and your child.

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Adderall
Clonidine
Depakote
Folic
Lamictal
  Prozac
Risperdal
Ritalin
Strattera
Zoloft




TOP THANKED CONTRIBUTORS



mscat40 (15), Suzanne44 (5), JackyCJ (4), peyto (3), Administrator (3), elmhar (2), sjs40 (2), tysonsmum (2), March97 (2), jacobsdad (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1007), Apollo123 (906), Titchou (851), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 01:04 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!