I posted in the brain tumor forum a few days ago, when we were certain that was Grandma's problem. In the interim, we've been told the tumor is not, in fact, the issue and that she has Alzheimer's. While I know that diagnosis has been coming because she's 83, it's a big ol' yeah right moment. My grandmother does NOT has Alzheimer's. Soooo we've been searching for what fits her symptoms and it's down to GBS.
Here's the run down.
Over the course of 4 hours, she experienced ascending paralysis. It began in her legs, with some numbness and tingling, progressed to an inability to bear weight, then move them. At the E.R., she was put on oxygen because of O2 was low. The numbness/tingling/weakness progressed to her arms within about 2 hours. Then she lost lucidity about 2 hours later. So she went from pretty normal to completely gone within 4 to 5 hours.
She has regained lucidity slowly since Saturday. She can hold simple conversations. She understand EVERYTHING that is said to her but simply cannot get her body to cooperate to answer. Once she's "in the swing" of the conversation, she can answer. If she's tired, it takes her much longer to come up with a response. She continues to experience muscle weakness, and now complains of cramps in her legs. She also has difficulty swallowing.
This all followed a lung infection which was treated with antibiotics and Prednisone. The drug course was completed Monday night or Tuesday morning. All of her tests have come back clean, aside from a neuroma (which the doctors swear aren't causing this) and a few oddities that they said "are nothing to worry about." The one that caught my attention in regards to GBS was elevated protein in her CSF.
Since her doctors seem to be fixated in the Alzheimer's diagnosis, I'm not sure how to approach them on this. What further tests can they do (so far blood, CTs, MRIs, and a LP)? Are there any treatments that can be "tested" to see if it is?
Finally, is a neurologist/neurosurgeon even the right KIND of doctor to be asking about this? I think they've avoided any autoimmune conditions because of her age, but it's looking more and more like it isn't strictly neurological.