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Old 02-04-2013, 06:30 PM   #16
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gottadance9 HB User
Re: Inflammation w/biopsies but bloodwork comes back negative for inflammatory marker

I hope this post is still a bit active. HELP!!!!!!!!!! At my wits end: 3 years of diagnostic pergatory and getting sicker gradually. Many of the same symptoms as was mentioned here by others along with skin rash/lesions. Dermatologist said skin stuff NOT related to other symptoms BUT I am not so sure. 20 years to get Bechet diagnosis???? Oh my! I am so sorry. I give you tremendous credit for sticking it out that long ubtil a dx. I am barely holding on currently. I had Chronic Fatigue Syndrome and was on disability for several years....took 18 months for diagnosis. Whatever I have now still not diagnosed after 3 years. Aside from all the social stuff and chronic illnesses, no diagnosis makes it so much worse in terms of what to do and how much damage has already been done by this undiagnosed illness! Can my current symptoms be related to Chronic Fatigue Syndrome rearing its ugly head again?? Lastly, to make matters worse, many of the supposedly great MDs I have seen seem NOT to truly believe in CFS or recognize it as a debilitating illness in many people. If anyone can recommend their rheumatologist tio me I would be so grateful. Thanks to everyone for telling their story! Means so much to all of us. Good luck and my best wishes to you all.

 
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