I am posting regarding my 16-year-old daughter. In 2010, we discovered that she was having episodes of VT. She had an electrophysiology study that showed that the arrhythmia originated in the right ventricular outflow tract and the electrophysiologist told us that her condition was not life-threatening. She is experiencing many other symptoms and I feel that they may somehow be related, as many of them came on at approximately the same time. If anyone has any ideas, I'd love to hear them...She has seen tons of doctors and none of them seem to be interested in anything more than their specialty (cardiology, rheumatic, etc) I'm having a terrible time finding a good doc in San Diego to put it all together. The only thing that I can find online that matches her symptoms is POTS. No one seems to want to consider that as an option, though. Lyme disease matches too, but she tests negative.
She has had to drop classes and was even home-schooled for 6 weeks. She's basically a straight A student that can no longer function because she feels sick and exhausted all of the time.
She was put on Zoloft and that has helped a bit, but I don't think that her symptoms are caused by depression. Depression may certainly be exacerbating the problems, though.
Here are her symptoms:
Painful joints- hips are most severe
Migraines and a constant underlying headache
Fatigue (severe on many days)
Fever off and on (only 99-100)
Difficulty falling asleep
Ringing in ears
Feeling of being removed (periodically) which is accompanied by a strange smell
Vaso vagal syncope (sometimes, but not recently)
Vision blacks out when she stands from sitting or supine positions
Cold hands and feet
Cough (one cough now and then-this is not related to illness)
Major decrease in attention span
Has she seen a Rheumatologist? I have many of those same symptoms and was diagnosed with Lupus last year. I am now 50 but, looking back, believe I've had this disease since my 20's I was also put on Zoloft 5 years ago for fatigue, which turned out to be Lupus. I stopped taking this drug 19 days ago and am still going through terrible withdrawal. Please Google Zoloft Withdrawl before you consider keeping your 16 year old on this drug. I wish I had before I started this drug!
I hope you get a diagnosis for your daughter soon. There us nothing worse than seeing our kids suffer. Don't stop till you find a doctor you really like. Please post and let me know how she is doing.
I'm sure y'all checked this out, but has she had an EEG? My mom has seizures and they always accompany an odor that only she can smell. I have POTS and as soon as I reported smelling smoke at times my docs instantly referred me to neurology. Those symptoms do seem like auto immune but I know symptoms match up with many disorders. Just a thought
Last edited by jcjc3195; 08-04-2011 at 11:27 PM.
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