For over a year now I have been having a terrible time with a number of symptoms. It all started out with head pressure and dizziness which led into an explosion of eye floaters. The eye floaters continue to get worse. Along with this I have had pain around my eyes and into my temple areas. It's almost like a strain feeling. I have had my eyes checked and everything is fine. Also, they didn't see any floaters but I see tons. I spoke with a specialist who knows about these kinds of floaters and he said it could be inflammation causing blood vessels leak blood cells into a part of the eye that the opthamologist can't see into.
Aside from the floaters I have a lot of pain, weakness and twitching in my muscles. I can't really tell if the pain is in my muscles or if its deeper than that, like in my bone. All I know is there is pain, and it's throughout my body... in my arms, legs, and hands. I also experience a great deal of twitching. This has been going on for a year as well.
I can't seem to even do 30 minutes of physical activity without it feeling like I have been through a marathon. Also, whenever I sit down or have my legs crossed my lower legs really start to hurt really bad.
My muscles also hurt when I press in on them... they are tender.
I did have an elevated ESR, however it was right after having stomach surgery. So the doctor thinks it's from that. I have requested it be repeated again. Are there any other tests I should request?
I do feel like I have inflammation throughout my body.
Can anyone else relate to any of my symptoms?
The following user gives a hug of support to xyz120: sairam19 (10-16-2011)
I am really surprised to see you have exactly the same symptoms as me. It started with vertigo and dizziness. Then left leg numbness. Then eye pain in both eyes which led to be an inflammation of vitreous part of my eyes. I have had MRI of brain and spine and also did spinal tab to rule out MS.
After that I started to have muscle weakness and twitching all over my body. the twitches are all over my body, but the weakness is mostly in left leg and arm. I am not sure it is ALS/MND as ALS is not accompanied with eye inflammation. I have had any imaginable test done. All bloodworks, ESR, CPK, ANA, C-reactive Protein, my MRI's and etc, they are all normal. Except the spinal tab, whioch reports abit of abnormality that I don't understand what is that. have yet do an EMG test to see if have muscle wasting and I really want to know I have ALS or not.
Anyway, I am see my opthamologist this friday to see if I need an eye biopsy and also I am seeing a neurologist to do an EMG. I would suggest you do all the auto-immune related tests and may be do an EMG.
You might also want to see an immunologist. My symptoms started 2 and half months ago and is progressing very fast.
Please let me know if you could find any test useful, or if you progressed or got a diagnosis.
I've got Autoimmune disorders and things your explaining sound to me like sjogrens disease, although i can't confirm it not being a doctor.
The twitching sounds like damaged nerves to me, ask your doctor to send you for a nerve test as i had those which showed i have damaged nerves.
Regarding your pain and aches sjogrens causes that and i was sent to a opthamologist and said my eyes are ok but told me to watch for floaters.
I've got leaking blood vessels at the moment which give me black eyes and also red blood spots and i'm now being tested for Anchor vasculitis.
I can only suggest one thing to be refered onto a rheumotologist. x
I had similar issues, minus the eye floaters. I had serious thumps and twitches yet nothing showed on any test, even the EMG, which floored me because I could visually see the twitching yet it wasn't picking up on the machine. I still get them after a year (Nov. 4 is one solid of year of this) but they've died down a lot. I was told it was C-Spine related but my rheumatoid doc, who I have not seen in almost a year, was leaning toward Fibo should they not find anything wrong. I am about to hit all the testing again, including a visual evoke test. I am suffering from GI issues now too. Finding an autoimmune problem is a total odyessy in fustration, at least it has been for me. I admit the EMG tests were scary but they tell you right then if there's anything noted, unlike the millions of other tests I did that I had to wait for. I was happy about that at least. I was so flipped that I had to take my mother with me and I'm 41!