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Old 05-10-2011, 07:40 AM   #1
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Unhappy Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

I got some blood test back which said i have enlarged red blood cells, low RBC count, a high Rehmatoid Factor, and a slight above normal ANA...I am being refered to a neurologist and now a rhematologist but im scared to death because my symptoms are similar to MS and now that it says i could have an autoimmune factor that scares me even more as it could be another indicator of it. I have searched through lists of autoimmune disorders and none of the symptoms seem to fit how im feeling...i was wondering if any of you have any ideas?
My symptoms are:

Tingling/numbness in legs hands/sometimes face
muscle weakness
fatigue
feeling as if I have a bladder infection ex. frequent urination, trouble urinating etc.
neck pain
memory loss/trouble concentrating
Raynauds (cold extremeties that turn purple (fingers/feet/toes)
Other than those i dont have any other symptoms no stomach problems etc.
my thyroid/diabetes tests came back normal so im hoping for any hope that it could be some other issue besides MS any help/comments/opinions would be really appreciated thanks in advance

 
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Old 05-10-2011, 08:12 AM   #2
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

Hi sorry to hear of your problems but pleased you can come here to share them,you are not alone.
I'm in the *UK* so some of the words I may use will be different to yours.
You sound exactly like me several years ago,frustrated and needing some answers.
I have the same things and was diagnosed as having ME,fibromyalgia and chronic fatigue syndrome,also I have major leg problems which is osteoarthritis plus muscle wastage,but definitely not MS. My foot goes purple so I'm in for some nerve conduction studies next week.
My face actually looks like I've had a stroke when it is numb as my mouth falls to one side,however the strange thing is its only ever the right side of the body.
Please let me know how you get on and I hope I have helped even if its a little.
Jacq

 
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Old 05-11-2011, 08:30 AM   #3
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

Thank you so much for replying and you did make me feel better especially after mentioning the ME. I had never heard of that before and I didnt know that CFS could cause tingling/numbness also? Did your dr. still screen you for MS when you told him your symptoms? What symptoms were you having before your dr. diagnosed you? Is ME/CFS an autoimmune problem? Sorry for the million q's You've given me so much hope that it may not be MS which brightens my day so much!

 
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Old 05-11-2011, 08:49 AM   #4
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

Hi so pleased I've helped you feel a little better,yes I was tested several times for MS and the initial diagnosis that I first went with was the fibromyalgia,this itself makes your immune system low. The symptoms back then were not actaul numbness just the constant fatigue and pain with arthritis,however as time went on I noticed more things occuring such as the numbness etc this is when the ME was diagnosed,I believed these were the same things but apparently not according to the specialist.
To look at my walking you would think I have MS but its actually the muscle wastage in the legs that has caused it.
Just remember everybody is different and it does get frustrating,it has taken years for my diagnosis and I'm still having tests for neurological issues now.
Stay in touch and keep your chin up
Jacq

 
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Old 05-23-2011, 09:14 PM   #5
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Smile Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

There is also pernicious anemia and sjogren's. I have both, and have been told they can each cause theses types of symptoms. Best of luck to you.

 
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Old 05-23-2011, 09:27 PM   #6
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

I have numbness and tingling in my right thigh all the time, also sometimes I feel something like bugs are crawling on my arms and legs, Turns out it is from nerve damage , I was tested for MS and did not have it ,so many things other than MS could cause this . My neurologist determined this to be neurological, hope this helps,
Take care

 
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Old 05-28-2011, 06:35 AM   #7
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

I just read yesterday while doing research on Rheumatoid Arthritis which I was just diagnosed with a couple months ago, (but I first started out with fibromyalgia and osteoarthritis) and read that having rheumatoid arthritis can cause symptoms of numbness and tingling in the arms, hands and fingers, especially at night, which I have very badly and never knew why... my family dr. called it neuropathy or something like that but never did anything further to find out why. Because RA causes inflammation, widespread through out the body in varying areas, it can cause it in the arms or wrists which can press on the nerves, which would then be called " Carpal tunnel syndrome" which I always believed was only caused by repetitive use on a computer or something... but now have learned otherwise. interesting fact, huh? No WONDER I'm suffering with this horrible numbness in my arms and fingers at night. It drives me crazy! I want to add something else besides what I just wrote... have you ever had your vitamin D level tested? This is a very important vitamin to have regulated in our body and if depleted or even low level of, you can have a wide degree of uncomfortable symptoms such as bone and joint pain, weakness, lethargy, osteoporosis, etc.
I know, because I suffered with vit. D deficiency and had no idea why I was so sick. Thank Goodness the rheumy dr I was seeing at the time thought of testing it when I came back to his office for a follow up to a new medication he had me on and it didn't do a thing for me, and i was only getting worst... so he tested it and come to find out, it was extremely low.. no wonder I could barely turn my neck in the car when I was driving to see if uncoming traffic was coming. I began thinking I was turning into a hypocondriac due to all the aches and pains I was feeling all the time not to mention I felt like I had some type of major illness that was going undiagnosed. I started feeling like a new human being again once I got the prescribed vit. D into me.
this is just part of the story besides having to have endured years of pain and have negative blood work for an autoimmune disease.. which has finally reared it's ugly head. NOW I can begin treatment and begin to have my life back again, I HOPE.
I wish you well and hope you get an answer soon. don't give up trying. I understand how difficult and time consuming it can be to get to the root of a diagnosis.
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Old 02-06-2013, 04:53 PM   #8
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

Quote:
Originally Posted by friendlily View Post
I got some blood test back which said i have enlarged red blood cells, low RBC count, a high Rehmatoid Factor, and a slight above normal ANA...I am being refered to a neurologist and now a rhematologist but im scared to death because my symptoms are similar to MS and now that it says i could have an autoimmune factor that scares me even more as it could be another indicator of it. I have searched through lists of autoimmune disorders and none of the symptoms seem to fit how im feeling...i was wondering if any of you have any ideas?
My symptoms are:

Tingling/numbness in legs hands/sometimes face
muscle weakness
fatigue
feeling as if I have a bladder infection ex. frequent urination, trouble urinating etc.
neck pain
memory loss/trouble concentrating
Raynauds (cold extremeties that turn purple (fingers/feet/toes)
Other than those i dont have any other symptoms no stomach problems etc.
my thyroid/diabetes tests came back normal so im hoping for any hope that it could be some other issue besides MS any help/comments/opinions would be really appreciated thanks in advance

 
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Old 02-07-2013, 08:42 AM   #9
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

The most likely cause is peripheral neuropathy, and your low red cell count with enlarged red cells (macrocytic anemia) most likely points to a Vit B12 deficiency or folate deficiency. Both can be measured in the blood and supplemented if low. Both deficiencies cause peripheral neuropathy and are common in AI diseases. If B12 is low, it means pernicious anemia, and with treatment your blood cells should return to normal and your tingling and numbness should improve or resolve as long as you stay on B12 replacement or folate if that is deficient. The Vit D suggestion is good also as many with AI disorders are Vit D deficient too, which needs corrected to help you absorb calcium and keep bones strong.

 
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Old 07-24-2013, 06:52 AM   #10
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

Vitamin B-12 defciency is one of them, and it's very important not to rely on the ordinary blood test. I suggest you get the book "Could it be B-12 - An Epidemic of Misdiagnoses" by Sally M. Pacholok, R.N., and Jeffrey J. Stuart, D.O.

When B-12 deficiency comes from an autoimmune disorder, it's called pernicious anemia.

Other than that, among autoimmune diseases, lupus can cause all kinds of strange symptoms, and so can Behcet's Disease, and others. But check the book first. If you want to find it online, Amazon probably still has it.

 
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Old 07-24-2013, 07:04 AM   #11
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Re: Please Help,what other autoimmune diseases cause tingling/numbness besides MS?

With a positive RA factor and elevated ANA, I would be considering rheumatoid arthritis, lupus, mixed connective tissue disease, plus Vit B12 deficiency/pernicious anemia. Peripheral neuropathy can cause all the numb, tingling sensations, and responds to treatment if started early. Muscle weakness can occur in myositis, an inflammation of muscles, that can be part of lupus, MCTD, and polymyositis, dermatomyositis. You have too many other things happening that indicate an autoimmune OTHER than MS. Many autoimmune disorders mimic MS early on, so I would pursue the rheumatology workup. If you want to post your lab results, that would be helpful too.

 
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