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Old 06-30-2011, 02:30 AM   #1
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beckyrooonio HB User
Re: Hidradenitis Suppurativa-I'm sick of it!

I see noone has been here for a few yrs. I have H.S. and have for 34 yrs. Would love to have someone to talk to about it!

 
Old 06-30-2011, 11:23 AM   #2
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renko HB Userrenko HB Userrenko HB Userrenko HB Userrenko HB Userrenko HB Userrenko HB Userrenko HB Userrenko HB User
Re: Hidradenitis Suppurativa-I'm sick of it!

Hi Becky, I look at these Health Boards everyday and I never heard of your autoimmune disease and I'm sorry no one has responded to this thread. I just looked up what you have been suffering and I just wanted you to know how sorry I am for you. I have had breast and bladder cancer and got in the early stages but your disease has been with you for such a long time and I feel badly that sometimes our own bodies attack our immune system and cause such deep physical and emotional problems. I just wanted to say hello and to encourage you in your walk and journey with this disease. I hope you have a good support of friends and family. God bless you.

 
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Old 07-06-2011, 06:29 PM   #3
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hollygirl05 HB User
Re: Hidradenitis Suppurativa-I'm sick of it!

Quote:
Originally Posted by beckyrooonio View Post
I see noone has been here for a few yrs. I have H.S. and have for 34 yrs. Would love to have someone to talk to about it!
Hi, I've had it around 10 years, when I was 1st diagnosed with it, I had my sweat gland in my armpit removed. I had 5 boils under there at one time. I just pretty much dealt with it since then, but the last 2 years have been really bad, I have 2 more in my other armpit, 1 on my stomach, thighs, groin ect. I never get a break, when some finally go away, within 1 day, I have more pop up. I finally made an appointment for the 11th. 1st doctor I have seen about this in 10 yrs. I'm curious what he will suggest. He is suposed to know know about this disease, most doctors do not. I do notice stress causes more outbreaks on me, I haven't really noticed what else does, but I'm sure other things cause it as well. I'm like you, fed up with this, not only is it embarassing but very painful. I can't even wear shorts sometimes. Everytime my husband touches me, it hurts. sometimes its hard to walk. I'm guessing i'm stage 3, but not sure. could be 2. I'll find out as much as I can when I see him and let you know what he says. Have you seen a doctor? do you know what stage you are? Sorry you are going thru this, but it is nice to be able to talk to someone who knows what your going thru.

 
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