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Old 07-08-2011, 06:55 AM   #1
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mysteriousmilli HB User
Help please

Hi, this is my first time on this board and I hope someone can shed some light onto my symptons and potential causes. 3 years ago I had glandular fever (Mono) was quite ill with it, and last year I had a GF flare up. Almost 4 months ago gland behind my right ear swelled considerably and was painful and sore, I went to the doctor who sent me off for blood tests. My IgA levels came back elevated. I have had 2 more repeat tests since then and both have come back elevated. Protein electrophresis test has come back negative. Ultrasound showed a cyst on my thyroid (which I knew about), and lumps down the left side of my neck and on lymph notes but they are benign. I am due for a chest xray next week looking at my mediastinal glands. Getting a repeat test next week also for GF and other infections. Then repeat IgA test and serum ACE first week of august. Other symptons include extreme fatigue, tiredness, general feeling of malaise. I get night sweats down the central part of my body, ie from neck to belly button - not very severe, my clothes aren't soaking but its def noticeable. I get regular headaches. No weightloss, in fact I struggle to lose weight. Ive got a "heavy" leg feeling.

My doctor seems to just want to keep having one more IgA test before referring me to a specialist, I just want to feel normal and healthy again. I sleep anything between 8-12 hours a night, its good quality sleep but I still feel exhausted. No anaemia. He seems to think its due to a viral infection and at somepoint it will just disappear from the test results.

I had a spotty rash in my hair, upper torso and back, it seems to have cleared up, I put it down to the disgusting conditions at my old gym (showers smelt of sewerage), as its virtually cleared up since I left the gym.

Can't think of anything else to add or I've forgotten, any ideas what I might be dealing with here would be very much appreciated. Thanks.

 
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Old 07-11-2011, 04:09 AM   #2
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mysteriousmilli HB User
Re: Help please

BUMP

Any help or advice gratefully received. Seem to be getting worse on a weekly basis.

 
Old 07-18-2011, 07:59 AM   #3
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mysteriousmilli HB User
Re: Help please

Update:

Chest xray come back normal. Negative retest for glandular fever. Although the doctor wants to speak to me about a couple of the other tests. Got appointment tomorrow.

 
Old 07-18-2011, 03:22 PM   #4
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Faraday HB User
Re: Help please

I don't have any expertise in the area at all, but just wanted to reply to let you know you're not completely alone!

 
Old 07-19-2011, 01:58 AM   #5
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Re: Help please

Thank you! Seems the receptionist got it wrong. Xray clear, serology negative, retest for mono positive. Think we are getting somewhere now.

 
Old 08-01-2011, 02:43 AM   #6
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Re: Help please

Just thought I would update you ended up in hospital for 3 days last week, was coughing up a large amount of blood. D-dimer was high, so I got a tinsaprin injection then a cat scan 18 hours later!! (doc thought blood clot), no clot on my lungs but they didn't scan my legs, but hopefully if it was a small clot the tinsaprin would have dispersed. No real idea why i was coughing up blood or my d-dimer was high - was told maybe asthma, maybe severe chest infection maybe viral injection! No idea if this is related to my other health issues either!! Had IgA test today so will get those result back on Friday. Was tested for sarcoidosis last week thats negative. I really thought being in hospital might move these issues forward but it doesn't feel like it right now. Back at work today as I only get 10 days paid sick in my first year at this job and took 5 last week. Lets see what this week brings.

 
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