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Old 08-29-2011, 05:02 AM   #1
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Unhappy My child had a ANA Positive @ 1:160 Speckled

3 Months ago i took my 9 year old son to the doctors for an ongoing rash on his hands that wouldn't heal. The doctor did a blood test which came back ANA Positive @ 1:160 Speckled. He then sent him for another test to check for ENA and Connective Tissue Disease which came back negative so the doctor said it was a false positive on the ANA test. Now over the past 3 to 4 weeks my son now 10 has been complaining of aches in his muscles and sometimes joints, he has also been saying sometimes one of his legs goes to sleep and gets pins and needles. I took him back to the doctors last week, the doctor moved his arms around which he had no problem doing. Doctor said its just growing pain and take Omega 3. My problem is mothers intuition tells me its not just growing pains. My boy was born with a murmor and a hole in his heart that closed by 2 years. He also has webbed toes. I found out 18 months ago i have Hashimotos Disease which is genetic although i dont get muscle pain. I live in Australia but read something about a 10 year old American girl who had the same results and it ended up being Lupus. Does anyone have any advice for a worried mother?

 
Old 08-29-2011, 10:33 AM   #2
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Re: My child had a ANA Positive @ 1:160 Speckled

Quote:
Originally Posted by KimberleyM View Post
3 Months ago i took my 9 year old son to the doctors for an ongoing rash on his hands that wouldn't heal. The doctor did a blood test which came back ANA Positive @ 1:160 Speckled. He then sent him for another test to check for ENA and Connective Tissue Disease which came back negative so the doctor said it was a false positive on the ANA test. Now over the past 3 to 4 weeks my son now 10 has been complaining of aches in his muscles and sometimes joints, he has also been saying sometimes one of his legs goes to sleep and gets pins and needles. I took him back to the doctors last week, the doctor moved his arms around which he had no problem doing. Doctor said its just growing pain and take Omega 3. My problem is mothers intuition tells me its not just growing pains. My boy was born with a murmor and a hole in his heart that closed by 2 years. He also has webbed toes. I found out 18 months ago i have Hashimotos Disease which is genetic although i dont get muscle pain. I live in Australia but read something about a 10 year old American girl who had the same results and it ended up being Lupus. Does anyone have any advice for a worried mother?
ANA can be elevated by many passing things that have nothing to do with Lupus, inclusing Hashimoto's, or having a close relative with Hashimoto's. I happen to have Hashimoto's, my husband has Grave's disease and my daughter has a high level of antibodies of both diseases and yet shows no evidence of any clinical disease yet. I think we, as parents, all worry about our kids to no end but I found that having a good relationship and confidence in my kids' pediatricians made a big difference. Keep an eye on your kid and talk to his Dr but not everything is bad news. I even have another autoimmune disease but neither of my kids have shown evidence of anything all the way into young adulthood, although we always are mindful of symptoms - should they ever occur. Hope this helps a little.

 
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Old 08-29-2011, 07:27 PM   #3
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Re: My child had a ANA Positive @ 1:160 Speckled

Thanks for the reply. I will keep an eye on him, i wouldn't worry so much if the symptoms weren't there most of the time (my son doesn't know about any of the symptoms or diseases, i purposely didn't tell him as i didnt want him to invent an illness that wasn't real, i just wanted to observe)and know as a Hashi's patient that doctors can be dismissive of what they dont understand. Hoping its nothing though.

 
Old 08-30-2011, 05:26 AM   #4
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Re: My child had a ANA Positive @ 1:160 Speckled

Quote:
Originally Posted by KimberleyM View Post
Thanks for the reply. I will keep an eye on him, i wouldn't worry so much if the symptoms weren't there most of the time (my son doesn't know about any of the symptoms or diseases, i purposely didn't tell him as i didnt want him to invent an illness that wasn't real, i just wanted to observe)and know as a Hashi's patient that doctors can be dismissive of what they dont understand. Hoping its nothing though.
LOL, tell me about it! Here's hoping it really is nothing but a passing childhood virus, but keep us posted and wishing you the best!

 
Old 08-30-2011, 05:56 AM   #5
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Re: My child had a ANA Positive @ 1:160 Speckled

Thanks, will do.

 
Old 09-22-2011, 12:31 AM   #6
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Re: My child had a ANA Positive @ 1:160 Speckled

I grew up with Lupus, but didn't get diagnosed until I was in my early twenties. I had all the aches and pains, the fatigue, Epilepsy, illnesses that just wouldn't go away. I grew up complaining all the time. In my teens I knew everyone thought I was a hypochondriac, so I quit telling my parents anything. I nearly died from sepsis from a kidney infection because of it. Auto immune disorders do run in families, and it sounds like you need to be proactive on a diagnosis. I was told the same thing....it's just growing pains. As bad as the diagnosis was, I was relieved at the same time. It's not easy as a child growing up feeling like crap all the time not knowing what it is.
I pray it's nothing, but finding out sooner rather than later is better from my experience.
Good luck.

 
Old 09-22-2011, 12:32 AM   #7
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Re: My child had a ANA Positive @ 1:160 Speckled

I grew up with Lupus, but didn't get diagnosed until I was in my early twenties. I had all the aches and pains, the fatigue, Epilepsy, illnesses that just wouldn't go away. I grew up complaining all the time. In my teens I knew everyone thought I was a hypochondriac, so I quit telling my parents anything. I nearly died from sepsis from a kidney infection because of it. Auto immune disorders do run in families, and it sounds like you need to be proactive on a diagnosis. I was told the same thing....it's just growing pains. As bad as the diagnosis was, I was relieved at the same time. It's not easy as a child growing up feeling like crap all the time not knowing what it is.
I pray it's nothing, but finding out sooner rather than later is better from my experience.
Good luck.

 
Old 09-22-2011, 12:38 AM   #8
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Re: My child had a ANA Positive @ 1:160 Speckled

Thanks Backster,
Ive taken him to a different Doctor for another opinion. This doctor has done more blood tests. I rang today and found out one has come back elevated so this doctor has referred my son to a specialist. he's booked in for the 11th October so hopefully i can start to get some answers soon.

 
Old 09-26-2011, 01:03 PM   #9
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Re: My child had a ANA Positive @ 1:160 Speckled

Great! Let's hope you get a quick diagnosis and your son moves toward a happier healthier place.

 
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