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Old 09-19-2011, 10:52 AM   #1
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ddd15 HB User
positive ANA and high RNP, what could this mean?

My daughter has been in serious pain for 2 years. Originally diagnosed with complex regional pain syndrome, now added to that ehlers danlos syndrome, and several months ago had some questions raised about autoimmune disorder. She has seen numerous doctors, been hospitalized for several weeks, tried SO many drugs, treatments, etc. I just know in my gut that all these dr's are missing something. Something I keep thinking about is this blood work. She has seen three rheumy's that say it's nothing to be concerned with, but I just can't believe it's not relevant.

She has a positive ANA, elevated ESR, elevated RBC, low MCV, low MCH, low CPK, and here's the one that seems so crazy...her RNP/sm is 300.

Isn't the RNP so high that it HAS to be MCTD? I can't understand why none of the rheum's seemed to care about this.

Do you all have any idea what else this could be? Should we keep looking for a diagnosis?

 
Old 09-19-2011, 02:29 PM   #2
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Re: positive ANA and high RNP, what could this mean?

Hi,
I am sorry to hear about your daughter and your struggles. I have MCTD and my RNP is always elevated. I suggest you go to the Lupus healthboard where so many people have more answers for you than do I. MCTD and lupus can have elevated ANAs but the RNP rates are an indicator for MCTD. I Please visit the lupus group and post. They are always helpful.
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Old 09-19-2011, 04:26 PM   #3
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ddd15 HB User
Re: positive ANA and high RNP, what could this mean?

thanks so much...I'll repost over there!

 
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