It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Autoimmune Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-09-2011, 01:49 AM   #1
Junior Member
(female)
 
Join Date: Aug 2011
Location: Conway, South Carolina, USA
Posts: 25
Blog Entries: 3
lizabet61 HB User
Severe reoccuring mouth ulcers, headaches and joint pain

Any ideas, Doc says has to be autoimmune, but can't figure it out. Son at age 16 developed what they thought was severe herpetic stomatitis, but it was not. MOuth was so ulcerated that lips scabbed completely shut and he was hospitalized for dehydration and secondary bacterial septicemia after swimming in the ocean near a storm water runoff drain. over next couple years had to be hospitalized again for dehydration and inability to take anything by mouth due to pain and ulceration. Had biopsies done that came back severe inflammation. negative for cox sackie and neg for herpes. Labs show low immunoglobulins, thats about it. Now 27 years old still having severely painful and reoccurring ulcers with hip and back pain and daily headaches. Has seen rheumatologist, ENT, oral surgeon and general practitioner. I WANT SOME answers. What would you suggest? Anyone had similar symptoms?

 
The following user gives a hug of support to lizabet61:
sahara 123 (11-23-2011)
Old 10-09-2011, 01:51 AM   #2
Junior Member
(female)
 
Join Date: Aug 2011
Location: Conway, South Carolina, USA
Posts: 25
Blog Entries: 3
lizabet61 HB User
Re: Severe reoccuring mouth ulcers, headaches and joint pain

the only thing that seems to treat this and heal it is Prednisone dose pack/// Please help!

 
Sponsors Lightbulb
   
Old 11-22-2011, 09:43 AM   #3
Inactive
(female)
 
Join Date: Feb 2009
Posts: 3,894
Blog Entries: 12
jennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB User
Re: Severe reoccuring mouth ulcers, headaches and joint pain

He needs to be checked for Behcet's Syndrome...features everything you mentioned, especially the mouth ulcers. Rare in this country. Hard to pin down as well. Causes inflammation of the mid sized arteries all over the body so symptoms include headaches and joint pain and all sorts of weird things. Can cause aneurysms to form so it can be life threatening if not diagnosed.

You can do a search on it and find lots of info.

Last edited by jennybyc; 11-22-2011 at 10:33 AM. Reason: spelling

 
Old 01-05-2012, 09:05 PM   #4
Junior Member
(female)
 
Join Date: Jan 2012
Location: PROCTORVILLE
Posts: 28
missi46 HB User
Re: Severe reoccuring mouth ulcers, headaches and joint pain

Behcets, it took me 20 years to be diagnosed. There is a new clinic in NYC he could go to.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Positive ANA/Joint Pain/Fatigue Schmiddy330 Autoimmune Disorders 15 07-04-2012 09:26 AM
positive ana, positive rf, muscle and joint pain... help??? mandi_hart330 Autoimmune Disorders 9 05-06-2012 01:28 AM
Positive RNP and symmetric multiple joint pains autumn2011 Autoimmune Disorders 0 09-05-2011 09:13 AM
Severe joint and muscle pain is ruining my life. Morcar21 Autoimmune Disorders 1 08-17-2011 01:54 PM
Who biopsies mouth/lip ulcers? neveragain444 Autoimmune Disorders 4 05-25-2011 07:05 AM

Tags
joint and back pain, mouth sores



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (56), ladybud (52), luca689 (30), jennybyc (9), Wondering189 (3), neveragain444 (3), msnova74 (2), awlright (2), veggie2 (2), gbear76 (2)

Site Wide Totals

teteri66 (1166), MSJayhawk (999), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (667), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 11:27 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!