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Old 11-04-2011, 04:14 PM   #1
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Join Date: Nov 2011
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stilledlife HB User
immune system cocktail

I keep looking at this and I was told not to bother by my last doctor becasue I would not find an answer- but even finding another person with something similar to what I am going through might help put my mind at ease. I went to the Allergy specialist and reviewed my medical history.

1 type one diabetes (autoimmune disorder)

ventricular tachycardia (heart wall cell cluster) ablation corrected.

And unknown Immune system disorder- this one is a little more chaotic then the 1st two and causing me problems.

I was sent to the allergy specialist becasue I kept showing signs of allergic reactions including anaphylaxic shock. The list of things that cause this are pretty big including walnuts, shellfish, milk, latex metals. So I get my skin test and we are shocked to see that I am not allergic to a damn thing. Not a single histamine response. But the doctor does keep me around for about an hour and watches my skin and does get to see one of my mystery rashes that appears and disappears in a matter of 10-45 minutes. He basically diagnoses me with hyper-sensitivity and and in his word "unknown auto/immune system disorder" and tells me I'll be going down the wrong track if I hunt for answers. He said it would be just management and probably psychiatric drugs to keep me from getting anxious from the biological immune system response and making the physical reaction worse and to keep the immune systems reaction from from making me (mental) worse. O boy.

This disorder has been expensive and curious- From causing me to have to have my false tooth replaced with all ceramic becasue my gums started to recede and destroy themselves to get away from the metal tooth- what was left of my tooth rotted quickly and had to be treated quickly. No healing will occur when adhesives, iodine, silver nitrates, or stitches are used. My body will form a liquid and scab barrier to block open wounds from any contact and not heel until the artificial item, such as silver nitrate, is removed. The local surface temperature will also rise to extraordinary temperatures below the item (tape, latex.)

Other problems that can appear system wide include lymphatic swelling behind the knees, arthritis, fatigue, rashes and general swelling in my hands and face, vomiting, and muscle stiffness, early spontaneous miscarriages, the fear that if I eat something that it may cause me pain for the next 24 hours. bouts of myositis. To confusion or anxiety that will set in for short bursts. I have been able to control quite a few symptoms with strict food watching but it does not stop everything. Basically I was thrilled when the allergy specialist told me that I was not crazy- that obviously my immune system is out of wack but that he could not do anything about it- that really no one can- there are no immunologists. So now I am left with the very real reality that I'm really stuck fighting this alone.

So I guess i just want some direction or ideas on dealing with my cocktail.

 
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