Hello- I would appreciate any suggestions/help. I am a 32 yo female who has been living in agony for the past 7 months. Here is my story...
Nov 2010-elective c-section. Delivery of healthy baby girl. No complications with delivery. Only complication during pregnancy was excessive nausea and vomiting.
Dec 2010-May 2011--Felt great! Happy and healing well. Back to pre-pregnancy weight. Exercising daily.
June 2011-The nightmare begins...Started getting nauseous everyday, vomiting, total loss of appetite. U/S of abdomen=neg, Upper endoscopy=neg. Slightly elevated lipase (have had this on and off for years and underwent numerous MRI and CT of pancreas which were all negative).
July 2011-Started crying everyday, not eating, anxious, stomach pain. Felt like I was losing my mind. Intense feeling that I was going to die. Admitted to hospital for 3 days due to malnutrition. Lost 10 pounds in a month. My internist thought I was acting hyperthyroid. Thyroid level came back at 5. CT scan of abdomen=negative except some kidney cy. Thyroid labs drawn again came back at .9.
August 2011-nausea lets up, no more vomiting. Chronic constipation. Extremely anxious, tons of energy. Insomnia. Eyes started feeling extremely dry. Vision started becoming blurry. Eyes sensitive to light. Muscles started twitching all day. Hands and feet tingling. Ringing in ears. List another 10 pounds. Bloodwork all within normal range except for total protein was low as well as albumin and lipase slightly elevated. Saw Neurologist. Emg of upper extremities =negative. Neuro said prob autoimmune or endocrine. Muscles started hurting all over. Couldn't open jars or write with a pen because my hands tremored so bad.
September 2011-October 2011-- Started on Zoloft for anxiety/depression (saved my life). Muscles started to not tingle anymore but became extremely stiff and started burning. Headaches behind eyes. Eye pain. Shaky legs. Could hardly walk down the driveway. Could hardly care for my baby. Lupus labs= neg, Sjogrens labs=neg. Endocrinologist feels I have Graves. Iodine scan shows early graves or early Hasimoto's. Thyroid Labs still normal. Not treated for Graves due to normal labs. Referred to Rheumy.
Nov 2011-present-terrible pain in joints like feet, knees, hands, neck, hips. Muscles are weak and shaky. Burning pain. Joint Popping all over body. Cannot exercise. Spleen pain, stomach pain. Labs show hemoglobin= 11.7(L), MCV =15 (L), leukocytes= slightly low, Ferritin=5 (really Low). Lipase still elevated. Tongue feels swollen on and off. Lymph nodes in neck feel swollen on and off. Racing heart on and off. Short of breath on and off. Lips extremely dry. Craving chalk, sand, gravel ( have never eaten it but I want to). ESR=20 borderline high. Lyme labs= negative. MRI of brain and neck= cervical disc bulges not impinging spinal cord. Eyes are puffy. Skin is pale. All cancer markers negative. Bone crushing fatigue with no energy. Lightheadedness.
Thanks for bearing with me. I feel 95 and I'm extremely scared no one will diagnose me. I have a 13 month old who I need to be able to raise. My husband and family think I'm a hypochondriac. I assure I am not. No one would choose to feel this way. I need some hope.
One last weird Sx...I have hyper reflexes in my knees and I get startled very easily. This comes and goes.
Any ideas? Thanks again!!!