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Old 01-19-2012, 06:40 AM   #1
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Lightbulb Hashimoto's Thyroiditis - Encephalopathy

I was diagnosed with Hashimoto's thyroiditis (an autoimmune, underactive thyroid disorder) back in 1989. I know I had the disorder long before it was diagnosed, particularly during my 1987 pregnancy. I also developed diabetes during my pregnancy. Although the diabetes never really went away, the doctors thought that it did. Sure enough, by 1990 I was really sick from the diabetes as well.

Here it is 24 years later and I look back and across to the present time and realize I have MANY signs and symptoms of Hashimoto's Encephalopathy, yet I've never been worked up for that differential diagnosis. I've been really pushing and self-advocating, and finally found a doctor in Boston who specializes in neuroendocrine disorders.

If you are familiar with Hashimoto's and/or HE (Hashimoto's encephalopathy) or have the disorder yourself, I would appreciate any information you can share. Specifically, besides an MRI and a spinal tap, what blood/lab tests can be done to either rule this out or diagnose the disease?

Thank you!

 
Old 01-19-2012, 07:07 AM   #2
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Re: Hashimoto's Thyroiditis - Encephalopathy

I don't know about the encephalopathy diagnosis part because I thought that it might be a diagnosis by exclusion, but Hashimoto's is diagnosed by the presence of anti-TPO antibodies which is the most common antibody associated with Hashimoto's or Antithyroglobulin antibodies is another one. I do not know if there are others. If there are no antibodies, then it is not Hashimoto's but hypothyroidism by definition. As a side note, Hashi's usually is associated with a goiter and Erb's thyroiditis is the non-goitrous version but I don't think anyone uses Erb's any more and the whole thing is lumped under Hashi's

 
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