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Old 02-06-2012, 07:55 PM   #1
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Negative ANA - out of this world anti-phospholipids

Needing some guidance...I have had symptoms for 9 months now, and blood tests show extremely high anti-phospholipid iGa's (10 times the norm) and cardio-lipids. Very thick blood, but the ANA test is negative. One lesion on the brain, and multiple spots which are now thought to be stroke spots a opposed to migraine spots as first thought. Spinal tap was negative.

Has anyone else had any of these issues? I have ataxia, vertigo, falls, numbness/burning/tingling in right arm and leg. Extreme vision difficulty going from darkness to light and vice versa - I immediately begin to wobble and fall with the light/dark adjustment. Nine bladder infections on the past 14 months- headaches and fatigue as well. Tests also indicate nerve and muscle damage in the right leg. Any ideas or similarities with your diseases? Neurologist thinks SLE with CNS/blood complications. She would like to pursue IVIG infusion for the neuropathy. Will this be of benefit to me?

Any help is so very appreciated - Lisa

 
Old 02-07-2012, 05:47 AM   #2
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Re: Negative ANA - out of this world anti-phospholipids

Antiphospholipid Syndrome or Hughes Syndrome, if that is what is eventually diagnosed, is a risk factor for miscarriages and stroke. The Lupus board here has a sticky about it. There are also some very fine folks with a lot of lupus knowledge over there. I have APS and there is treatment for it. I just wanted to mention that lupus can be ANA negative. And from what I can gather, IVIG treatment can be effective for neuropathy, at least for diabetics in the study I briefly looked at, and appears to be used for other types of neuropathy as well. Talk to your Dr about it's risks and benefits to you and your condition as with all medications. If you don't understand something, keep asking until it is explained in terms that you do, or bring someone along with you to your appointment. At least it does sound like you are starting on the path to get treatment and prevent further complications! Good luck and I hope you start feeling better soon.

 
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Old 02-16-2012, 05:27 PM   #3
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Re: Negative ANA - out of this world anti-phospholipids

Hi Lisa,
I've got antiphospholipid Syndrome and had it for years...seeing what your D'dimer result is like also helps to see if you have it for certain and regarding ANA results being negative, they don't always have to be positive for you to have any A1 Disease or Autoimmune Diseases.
I've had DVT and 2 major strokes in my early 20's wheremy body was took completley and it took just over 4yrs to me to finally walk again.
As your specialist also tested you concerning Anaemia as it can play a large part in that also, some of your symptoms sound similar to SLE which i have but always remember when bloods are being tested if your Lupus related, it fluctuates with the bloods and can give off false readings..this is why a good many people go for years having constant bloods done.

I was born with Lupus and never found out till nearly over 4yrs ago and i'd inherited it off my parent's but i've had trouble regarding blood loss and also urine leakage where i'll soon be having another operation for that besides another biopsy.
__________________
Terry
Raynauds phenomenon, Psoriasis, scleroderma, Sjogrens Disease, Antiphospholipid Syndrome, Megaloblastic anaemia, DLE, SLE, Hypothyroidism etc

Last edited by Diamond20; 02-16-2012 at 05:30 PM.

 
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