Autoimmune? Would love some input
Hi all. I'm 27 and with a pretty complex medical history already - CRPS/RSD, gastroparesis, autonomic problems secondary to the CRPS. Osteoporosis, vertebral compressions secondary to the osteoporosis, disc bulges. But would be interested to hear if anyone has similar symptoms or experiences, as right now my doctor and I are struggling (getting close to referral time, I think, but I have so many specialists already that it's getting a little silly...) Apologies in advance for the length of my post.
I'm always tired - I'm in severe pain, get 2-3 hours of sleep a night - but probably 4 or 5 months ago I started getting debilitating fatigue. At its worst I can barely function, struggle even to hold a semi-intelligent conversation.
It's hard sometimes for me to recognise new pain, but around the same time the fatigue started, I also developed additional joint pain and started getting fevers.
Almost every evening now, probably an average of 12 days in a fortnight, I have this horrid fatigue and these fevers ( 100-101.3F) that hit around the same time every day. They last maybe 1-4 hours and then my temp goes back to normal.
In December, I had a short course of relatively high dose prednisone for unrelated reasons - and all my symptoms resolved. This led my doctors to suspect 'something' autoimmune, and an occasional butterfly type rash had us wondering about lupus.
I've had two regular panels so far looking for autoimmune issues - both ANA negative. Had a HIGH WCC and ESR on two others, but also had infections going on at the same time... in the last two months, I've had a UTI, meningitis, gastro and cellulitis.
Currently I'm waiting on results of an extended panel - which checks ANA, CRP, ESR, dsDNA, ENA and so on.
I know none of you here are doctors and there's no medical advice - but can anyone relate to these symptoms?