I have no clue where to start.
4 years ago my daughter developed a rash on her leg, off to the pediatrician who sends us to the dermatologist, who takes a biopsy of her rash and sends us off to a rhumatologist after biopsy came back no specific rash. Off to the Rheumatologist who does a RA panel blood tests and comes back with a positive ANA 1:40, which is low, but she repeated it to make sure not a false postitive... and again 1:40. So here we are with this positive ANA, a high CRP ( creative protein) a high EOS, extremely high ASO (strep level- Non active) Dnase B titer (active) , EBV (Mono- non active), 4 years of the allergist, Infectious disease, rheumatology visits, cardiology, every 3 months for blood, 1 year and still on, penicillin 2x a day, nobody can tell me what is causing this high ASO in my daughter and why her joints are in pain, or what they could do about anything!
My daughter has not had strep in 2 years until this past May, her levels NEVER in 4 years were normal, 520.. 684... 837...1260..1450..1700 they vary , but when she got strep her CRP jumped to 11, ( normal is .2) her ASO jumped to 1700.. ( normal is under 300) Now I get a phone call Friday they want my daughter to start Penicillin shots instead of the pills because she got the strep in may and we cant have her getting strep again, if so it can develop into rheumatic heart disease. I am at my wits end! I have no clue what to do, I don't want to subject her to painful Dep penicilling shots, so i was going to see if i could see another doctor. But I was curious anybody had this or similar? And what did you do? Did it ever develop into heart disease?
Thank you so much for taking the time to read my post