It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Autoimmune Disorders Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 10-24-2012, 11:16 PM   #1
Junior Member
(female)
 
mctdonna's Avatar
 
Join Date: Oct 2012
Location: spanish,ontario canada
Posts: 13
mctdonna HB Usermctdonna HB User
Not Alone in the Fight!!

Wow, I am blown away by all the threads related to Lupus, Scleroderma, MCTD, ILD,Raynauds....Definately not alone, while I know this effects everyone differently the symtolagey is the same, and the doctors treatment the same, I used to come home from the doctor so upset I would get a Migrane for days, You see I have spent my whole life it seems with this dreaded illness, from the age of 8 i remember going to the hospitol to see my mom, who they thought had lupus and they obviously thought she had muscle problems hense the biopsys everywhere her legs,angkles, arms i mean they used my poor mom as a quinny, i resently found out she is in the scleroderma record books in toronto, so she obviously was very sick and let them do what ever, as back then docs were gods and no one questioned when my sister got sick we looked everything up and we used the blood tests to define what they were looking for, she was terrified and now i am, we have 6 family members and now my son and grandson, thats why my mom let the docs do all the stuff to her, she was on so much predisone it was i know now very deadly she died very young, but the fight still goes on now i will be in that same registery so they can learn from me to save my grandbabies. This dreaded illness is worse then the big C and no one gives a dam. Lupus, Scleroderma numbers are rising in Canada, the US, and in Europe......Someone must do more. Dont have the strength to do battle so i have decided to blog this way and contribute my knowledge in the hope it helps someone even it is only short lived...keep laughing and smileing God Bless
__________________

 
Reply With Quote
The following user gives a hug of support to mctdonna:
luca689 (10-25-2012)
Sponsors Lightbulb
   
Old 11-17-2012, 09:24 AM   #2
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 5,067
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Not Alone in the Fight!!

Hi, mctdonna. I disagree with only one thing in your post: I think posting is a way of doing battle! I'm very sorry to read about your mother's life being so badly affected and foreshortened. Is scleroderma the disease your mom had? And that your sister maybe has, or does have? And the one you yourself fear?

The reason I ask is, I only recently started posting on this particular board, and there may be others here who have it or fear getting it. If you want to find out, you could do any/all of the following:

1. Scan all the thread titles on this board (time-consuming, many pages!)
2. Try the search box. Type in "scleroderma", then opt to search just this board---or search ALL the boards.
3. Start a brand-new post, and include "Scleroderma" in the title to grab people's attention.

I hope you try any/all, and that you keep posting here. Bye for now. Sincerely, Vee

 
Reply With Quote
Old 11-17-2012, 12:49 PM   #3
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 5,067
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Not Alone in the Fight!!

Hi. Here's a better (corrected) explanation of search. Sorry I didn't do a better job on my first try. Take good care, bye, Vee

To search ALL the boards, in the blue bar (it's right above the title of the board you're currently on) select "Advanced Search". A new screen comes up. Type key word(s) in the box in the upper left (e.g., scleroderma). Use the drop list to the right to define the extent of your search (the default value is already "all open boards").

To search only the board you're on, locate the page numbers towards the upper right of screen. Look right below for a hyperlink = "Search This Board", and select it. A pop-up box appears. Type in your key word(s), then choose "Show Threads" or "Show Posts". ("Threads" gets you whole entire threads that include posts with your search term, while "posts" brings up only those single posts, standalone, without the surrounding "thread".)

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:41 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!