Re: Controlling Inflammation in AutoI Disease?
Hi, "LL". I haven't tried going without conventional medicine because of the many years I wasted taking wrong meds for wrong conditions. When I was finally dx'ed with lupus, I was pathetically eager to have an appropriate med (Plaquenil) prescribed. Because it's helped so much (plus I now avoid sun), I wouldn't consider backtracking. Even on this "appropriate" med, I've had minor hits (like vitamin deficiencies), which I was able to address PDQ only because I have regular checkups & labs done. Within the world of lupus, I know I'm lucky, and I don't want any more years to slip thru my fingers.
I eat prudently, excercise, take several vitamins and supplements recommended by my doctors, keep my weight sensible. But I wouldn't give up having my rheumatologist monitor for the most serious things possible (like kidney problems). My understanding is that CREST scleroderma has potential for lung damage (interstitial lung disease, pulmonary hypertension), heart damage, esophageal damage (from reflux), etc.
So personally I'd want to be monitored ongoing by a rheumatologist. Have you looked for one who's open to alternative approaches, who might mix conventional and alternative, but always depending on how you're doing at a given time? But that's me, not you---and it's always about personal choice! How are you doing? I hope the answer is, as well as possible, given your condition. Best wishes, sincerely, Vee