Re: ana >1:1280 nucleolar pattern
Hi & welcome. I'm just a patient, but I've always thought ANA of 1:1280 is significant. Did your gastro say if Celiac can elevate ANA, and to that extent? Also, I think there are blood tests for Celiac that can be done in advance of a gastroscopy, but that gastroscopy is viewed as a pretty definitive test. Were those tests run? If YES and were positive, I'd have the gastroscopy. (BTW, you could also check out the Celiac board.)
In addition to the basic ANA, were any specific ANA "subtypes" run? e.g., ones associated with lupus, inflammatory muscle conditions, inflammatory bowel conditions, etc.?
What does your mild cheek rash look & feel like? I ask b/c rashes are common in lupus, BUT also in inflammatory bowel diseases, Celiac, etc. The "itch factor" could be useful info. So could photosensitivity.
Why do you think Celiac isn't likely? (Am only curious, you don't have to answer.) I had flaring GI problems for years, which my drs. thought was something GI-specific. But multiple invasive tests ruled out Crohn's & UC, and Celiac was also nixed. I was finally dx'ed with lupus, but I had other problems in addition to GI nastiness that tilted strongly to lupus...
In your shoes, I'd want to start ruling SOMETHING in/out. An "out" is useful, too, because it forces drs. to switch gears. I hope others chip in soon with more. With my best wishes to you, Vee