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Old 12-09-2012, 05:25 PM   #1
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magsteps HB User
auto immune hemolytic anemia

I have AIHA. Have been on prednisone since 2001. Have developede many of the side effects, the worst which is osteo and subsequent spinal compression fractures. Previous doctor didn't know who to refer me to, so I returned to a previous physician 4 hours from my present location. He referred me to a bone specialist, took forteo injections for 1 1/2 years to get bone built back up, now took 2 prolia injections. Disturbing to find out that there are some seriou fractures that can develop with this med. For AIHA, also tried Rutuxin infusions, didn't help. Had my spleen removed in 2001. Am now just started on Cellcept to try to get off prednisone. Am anxious to find out if there is anything in the world that I can use successsfully to get of prednisone.

 
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Old 12-10-2012, 12:48 AM   #2
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VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: auto immune hemolytic anemia

magsteps, hi again. I read your other post first, then saw this in which you state it's AIHA, so here's an add'l suggestion:

If you try the Blood Disorders board, on its main page you'll see the link "Search This Board" (above the announcements, on the right.) Select it, key in "AIHA". This will bring up all posts in which that phrase appears. You could post responses to any of those---or start a new thread---or both.

I just tried that search & found a number of others discussing AIHA. Hope this helps some, with warm wishes, Vee

 
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