It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Autoimmune Disorders Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 12-14-2012, 05:38 PM   #1
Newbie
(female)
 
Join Date: Dec 2012
Posts: 5
sleepyheadzzz HB User
7 years of Issues - looking for some direction

I'm hoping someone out there might be able to give me a bit of guidance or point me in a direction to investigate. I had a number of tests a few years ago but at the time I didn't think to get the results and I didn't know what to ask for. Since then, I've changed doctors and have an upcoming appointment to see if she has any ideas of what's been going on with me. I'm wondering if any of this sounds familiar to anyone.

One of the big reasons I'm so actively investigating my issues again is that I'm going to be TTC in the next two years and I want my health to be under control before that point.

I'm 27 years old and have been dealing with a number of strange GI symptoms since I was about 20. I've had Type 1 Diabetes since I was 10; my 23 year old sibling has rheumatoid arthritis - because I already have an autoimmune disease and because all my symptoms seemed to start around the same time, I strongly suspect I have a second autoimmune disease that's undiagnosed.

Before the age of about 20, I had no GI or digestive problems either than heartburn, and I never noticed any discomfort after eating the foods that now cause me issues.

All symptoms began around age 20 - previous to that, I had no regular food or allergy issues.

- regular diarrhea 2-7 times a week, 2-5 times a day - sometimes watery and loose, sometimes full on diarrhea - I don't notice cramping too often but it's definitely there at times; there are also some small anal fissures, but they've never been infected or really caused me much discomfort - they occasionally bleed during bowel movements and sometimes there is a burning feeling

- unable to tolerate most artificial sweeteners (diet coke and gum give me bad cramps)

- unable to eat egg yolks
(began at 20 - previously no issues, I ate scrambled eggs almost every day for breakfast during high school with no stomach issues);
when I've accidental eaten anything like mayo I have diarrhea within 30-60 minutes, nausea, headache, foggy feeling, very hard to think, usually lose my appetite for 2-3 days, food moves right through me;
I can tolerate egg whites with no problem
(I accidentally ate about 1/2 teaspoon of mayo on Wed and 30 minutes after I had diarrhea, a terrible headache, brain fog, no appetite - 2 days later I'm still experiencing these symptoms)

- yeast infections off and on, typically 8-12 per year, nearly every month (first occurring at age 21); after cutting wheat out for a while and having a negative ceoliac test, I tried to re-introduce wheat into my diet recently and experienced weight gain, an increase in heartburn, and yeast infections - the infections have been monthly for the last 8 months, and nearly monthly for 5 years except for the 9 months I was gluten free (clearly a sign that for some reason my body hates wheat or gluten)

- heartburn issues all through high school and twenties - disappears when I take wheat out of my diet; heartburn is usually triggered by any kind of starch or acid.

- sore, crampy, burning feeling in my stomach when I eat sometimes, especially starchy foods

- tea of any kind (green, black, herbal, caffeinated, non-caffeinated - specifically peppermint, orange pekoe, chai, lemon, chamomile, chocolate, vanilla, cranberry, and ginger) always makes me extremely nauseous and gives me a headache very similar to the "egg headache"; began noticing around age 22 - there hasn't been a tea I've tried in the last 4 years that DOESN'T give me these symptoms
I attempt to test this every so often on an empty or full stomach, but either way, I immediately feel like i have to throw up and get the same kind of headache the eggs give me

- unable to tolerate probiotics (5 billion active cells, 1 billion active cells, different brands) - they are guaranteed to make me throw up on an empty stomach and even with a partially full or full stomach I usually come very close to throwing up. The probiotics have been helpful with the yeast, but I have to ensure I only take them after eating a large meal;
I tried to take one in the middle of the afternoon yesterday after I had eaten lunch and 30 minutes later I was throwing up and had a similar headache to the egg/tea headache

- I have been tested for Celiac disease but had already stopped eating wheat. I prefer to eat a gluten free diet even with no knowing as I've felt healthier overall, however, I haven't been strict about this over the last year.
- I don't seem to have obvious reaction to gluten the way i do to eggs and tea

- I have had one allergy test that said I was midly allergic to eggs (In the allergists words, "I'd be surprised if you had any kind of reaction."), midly allergic to pears, and kiwi's but all food related allergies tested extremely mild and I was told I would not have to worry about them.
- I recently was told that medications such as trazodone can interefere with the test - I was taking both trazodone and citalopram but was never told they could affect my test - I'm finding articles all over the 'net that say you shouldn't be taken either of these for 3-7 days before an allergy test. I'm not taking any medication either than my insulin now, so I would like to be re-tested

- I have my thyroid tested regularly (every 1-2 years) and nothing unusual has ever presented
- I have blood tests every 6 months but they usually only check my A1C and glucose levels
- I had ceoliac tests until I was 13 (due to type 1 diabetes) and nothing unusual ever presented

What I'm really looking for is a bit of guidance as to what I should be asking for or looking into - I really don't know where to start - even a book or website suggestion to start to get a better understanding of GI disorders would be a start for me. I often feel like I don't do a good job of explaining my symptoms and that I downplay them a bit to doctors but I'm sick of not knowing what's going on with my body.

If I know what foods to avoid and what kind of diet I need, I'll be happy to start following it - I just don't know where the heck to begin and I don't want to be put on extra medications. The only foods I know for sure that irritate me are: egg yolks, tea, wheat, and artificial sweeteners.

 
Reply With Quote
Sponsors Lightbulb
   
Old 12-18-2012, 02:52 AM   #2
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,822
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: 7 years of Issues - looking for some direction

Sleepyheadzzz, hi and welcome. Did your GI symptoms start after starting Trazodone and Citalopram? I think GI problems are one possible side effect of both. Weirdly, only yesterday a friend & I read up on side effects of her meds (they're very similar to yours), because she's having similar symptoms. She's seeing a gastroenterologist on Friday.

And on the AI front: Celiac isn't the only AI that can cause GI problems. Crohn's and Ulcerative Colitis could too, I think. Anyway, I'd definitely see a gastro, especially since you're passing blood occasionally---that shouldn't ever be ignored! Drop us an update when you can. Good luck! Vee

 
Reply With Quote
Old 12-18-2012, 09:14 AM   #3
Newbie
(female)
 
Join Date: Dec 2012
Posts: 5
sleepyheadzzz HB User
Re: 7 years of Issues - looking for some direction

Quote:
Originally Posted by VeeJ View Post
Sleepyheadzzz, hi and welcome. Did your GI symptoms start after starting Trazodone and Citalopram? I think GI problems are one possible side effect of both. Weirdly, only yesterday a friend & I read up on side effects of her meds (they're very similar to yours), because she's having similar symptoms. She's seeing a gastroenterologist on Friday.

And on the AI front: Celiac isn't the only AI that can cause GI problems. Crohn's and Ulcerative Colitis could too, I think. Anyway, I'd definitely see a gastro, especially since you're passing blood occasionally---that shouldn't ever be ignored! Drop us an update when you can. Good luck! Vee
If only it were that simple. Unfortunately, these problems began before I began taking those meds. Thanks for the reply though. I plan to look into crohn's and ulcerative colitis too. I've recently been looking up information about leaky gut syndrome and I have many of the symptoms so I just want to know what's underlying it all so I can start addressing it properly.

I have an appointment set up with my GP and I think we'll probably start from scratch with exploring all the options.

 
Reply With Quote
Old 12-18-2012, 01:48 PM   #4
Facilitator
(female)
 
Join Date: Feb 2004
Posts: 4,822
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: 7 years of Issues - looking for some direction

Hi. I'm glad you're starting fresh, it makes sense. I had invasive GI tests repeatedly; they're not exactly fun but not nearly as bad as one might expect. Wishing you answers & relief, Vee

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



VeeJ (47), ladybud (36), luca689 (29), jennybyc (9), neveragain444 (3), awlright (2), veggie2 (2), gbear76 (2), JDR13 (2), upssamc (2)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 09:31 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!