Re: Bronchiolitis Obliterans
Hello and welcome. I'm so sorry you've been diagnosed with this condition, which, from what I just read, seems rare. To find people on the boards here who either have it, or have something fairly close, I think your best bet is to perform an "Advanced Search". (Look for its link in the second of the blue bars just underneath the HB logo.) I'm thinking perhaps the "Lung & Respiatory Disorders" group may be of help...?
Also, have you checked for national or international organizations?
I also read that Bronchiolitis Obliterans can accompany certain autoimmunes, Rheumatoid Arthritis for one. Were you tested for RA or "close cousin" autoimmunes? There are active boards here for those conditions.
I'm sorry that I have no first-hand experience, but I hope someone on the various boards will have more detailed knowledge, and that this helps you locate such person(s)! Sending my best wishes, sincerely, Vee