Re: Where to turn from here
Hello and welcome. I'm sorry for your wife's problems and your shared worry. Has she seen a rheumatologist &/or had all the usual auto-antibody tests for conditions with which scleritis is associated? For example, I've seen RA, lupus, giant cell arteritis, and Wegener's listed---but there may be more, I don't know (sorry).
I recall someone on the lupus board (last 6 months or so?) struggling greatly with optic neuritis, which made her doctors also consider giant cell arteritis and something else. That may/may not be helpful reading...
You could try an "Advanced Search" and "Find a Board" (hyperlinks in blue bar above) to search for scleritis and the AI's you want to read more about.
Another path might be "super eye specialists", like Wills in Philadelphia; and there are other highly rated eye institutions in other parts the country. Or teaching hospitals, like those known for diagnosing the hard-to-diagnose (Mayo, Cleveland Clinic, etc.). If any of her doctors know doctors at such places, maybe they could reach out for you.
I wish I knew more (lupus but no eye issues). I hope others chip in soon. Sincerely, Vee
Last edited by VeeJ; 02-24-2013 at 04:45 AM.
Reason: to correct eye institution names