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Old 05-08-2013, 12:55 PM   #1
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janemad HB User
Phrenic nerve

hi everyone

i had surgery 4 weeks ago to remove my thymus and a mass that was attached to it .i have a illness called Myasthenia Gravis . the surgeon has told me early this week that he also had to remove my left Phrenic nerve and thats why i am having so many breathing problems . does anyone know if i will all ways have breathing problems and am i right in thinking that my left lung will not work now ,
thanks for any advice anyone i give me re this
jane

 
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Old 05-12-2013, 02:37 AM   #2
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Re: Phrenic nerve

Hi, Jane, and welcome! I'm sorry you're having breathing concerns on top of the thymus surgery. Has your surgeon "transferred" you back to your main doctor (is that a neurologist?), and have you asked him (or her)?

On this board, we all seem in a somewhat similar boat, but maybe not close enough...? There might be people better versed in Myasthenia Gravis on the Neuromuscular Diseases board. To try it, in the blue bar above, select "Find a Board"; then when the master list displays, select "Boards by Alphabetical Order".

Or you could try "Advanced Search" (its link is in the same blue bar above) & look for boards (and/or threads) containing keywords like "phrenic nerve" or "thymus" or "myasthenia gravis".

Of course you're completely welcome to post here, whenever & however you wish! I'm suggesting that you scout around only in hopes that people on other boards might have more to share. I wish I knew more myself, but the sole person I've met with MA is someone I met only once & briefly at that. Please let us know whether these suggestions help any. Bye for now, with my best wishes to you, Vee (lupus)

 
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Old 05-12-2013, 05:22 AM   #3
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Re: Phrenic nerve

Quote:
Originally Posted by VeeJ View Post
Hi, Jane, and welcome! I'm sorry you're having breathing concerns on top of the thymus surgery. Has your surgeon "transferred" you back to your main doctor (is that a neurologist?), and have you asked him (or her)?

On this board, we all seem in a somewhat similar boat, but maybe not close enough...? There might be people better versed in Myasthenia Gravis on the Neuromuscular Diseases board. To try it, in the blue bar above, select "Find a Board"; then when the master list displays, select "Boards by Alphabetical Order".

Or you could try "Advanced Search" (its link is in the same blue bar above) & look for boards (and/or threads) containing keywords like "phrenic nerve" or "thymus" or "myasthenia gravis".

Of course you're completely welcome to post here, whenever & however you wish! I'm suggesting that you scout around only in hopes that people on other boards might have more to share. I wish I knew more myself, but the sole person I've met with MA is someone I met only once & briefly at that. Please let us know whether these suggestions help any. Bye for now, with my best wishes to you, Vee (lupus)
hi thank you for the reply .i have looked at the boards and there does not seem to be a board for MG

 
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Old 05-12-2013, 07:27 AM   #4
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Re: Phrenic nerve

Jane, although there's no separate board for MG, I think I saw some threads relating to MG on that Neuromuscular Diseases board. I recommend you scout out that board first & see what you find---then maybe post some queries there.

And you could ALSO try a flat-out search of ALL boards with your "keywords", using the "Advanced Search" hyperlink. If you find other boards/posts that look pertinent, you could query in those boards as well.

Let me know if this gets you closer. But I definitely think your neurologist & your surgeon should say something, as they're the experts... Have they addressed your questions at all? Best wishes, Vee

Last edited by VeeJ; 05-12-2013 at 07:37 AM. Reason: typos

 
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