Thank you very much for all of your help. I am currently in the process of researching about scleroderma. I find that the more information and educated I am on this disease the better off my life now and in the future will be. I appreciate the information especially that there is treatment for fatigue like Plaquenil, I will be seeing my doctor today to discuss visiting the Cleveland Clinic but will mention this medication and see if he would recommend it for me. I have noticed that besides my problems with my hands that fatigue and flu like symptoms each morning have made daily life challenging. I pray I can be properly diagnosed and find a rheumatologist in the area that will be not only thorough but help treat some of the major symptoms I am currently having. I also spoke with my health insurance and they were very helpful by setting me up with a case manager, registered nurse and will be getting me in touch with a nutritionist and a social worker to help with medical costs that they may not cover. I am certainly finding that a majority of the rheumatologists in the buffalo area are not taking new patients or are booked 3 to 4 months ahead.
It has been a catch 22 for me recently. I was working as a full time manager and since I have been sick more often than not I am currently on temporary disability which I have found out is not enough money to keep my home and I am not physically able to work full time to keep health benefits active. It is frustrating to see that a person who is not sick who may be fired from there position would get more help financially from unemployment but when you find yourself in a position of being ill and unable to work like myself the temporary disability is no where near unemployment. I am not sure where to begin, I have always held a full time professional position and I do not know if social services helps in any way?
Is it possible to get to the point of managing your symptoms where there are people who can maintain or return to work full time? I understand from what I have read and what information I have received from my doctor that this is a life long battle and if any one has any more advice or is now or in the past dealt with similar concerns please message me.
Luca689 thank you for the information that you provided to me, it is very helpful and if you have any other advice please message me.
Thank you in advance to all for your time and thoughts.