Monas, just wanted to welcome you back, and to say that there's no reason to apologize for not being here as often as you'd like!! We all have times when our plates are pretty heavy, and understand what you're going through!! We're all just glad you're back, take care!!
Hi sweety, i've missed you heaps. It sounds as though the right decision was made then to have surgery. You couldnt have gone on like this. Have you a date yet? Sounds as though its under a month away anyway. I wish i could be there with you, what hospital will you be at?
I am 6 weeks post op as of yesterday and doing well. No paain except when im in bed and moving or relaxed and try to move. Or of course when i bump into a couch like i have recently been doing, that hurts. I think as i become more mobile i am forgetting that i am still not capable of as much as I think I am.
What have you decided to regarding uni? It's going to be so close, too close in fact for you to go back first semester?
Cant wait to hear from you
Lots of love and hugs
i've missed you too!!!!!!!! trust me i have been thinking about you whilst i haven't been round! i'm sorry i disappeared for a bit.
so your becoming more mobile thats great! you been back to see the doc or anyone since we last spoke?
what's a typical day like for you now?
i still don't have a date yet, i got dad to ring up and ask the receptionsist why we hadn't heard yet and she spun some ***** about them not even having finsihed setting dates for this year, which i doubt very much is true, then she went on to say i would know by xmas day!! and then she laughed and said what a great present!!! god she p!sses me off!!!!
anyway, i got a letter from the rehab joint i'll be going to after my op and i have a pre op appt there on jan 21st so my op will be soon after that. i hope! i enrolled yesterday like my teacher said to do, so i dont lose my place and then we'll just play it by ear, i have pretty much the same teachers as last year and they are all really understanding so we'll just see what happens there. as for work i havent reduced my hours, they are actually increasing due to extended trade for xmas. my boss will be really stuck if i ask to reduce my hours and i dont want to make things hard for her this time of year... saturdays are the worst 7:30-6:30 supervising the front end all by myself, it's difficult as most of the staff are new and i'm running all over the place. i finally snapped last saturday and told her i need someone to help me, so i got a helper for a few hours better than nothing i suppose.
my op will be at knox private hospital thats good for my family cos its 5 mins away from home but my rehab hospital is in brighton which is about an hour or more away, thats why they want me to stay there for a week or two after my 7 nights at knox cos of the travelling i'd be doing. but we'll discuss all that on jan 21st when i meet them.
are u able to drive yet, or go shopping and stuff?
you gotta watch out for those couches mate the sneak up on ya! haha
20 days till i go to queensland i cant wait to get away!!!!!! its going to be great!
have u heard from shg lately? how's he going?
Well i was 6 weeks post op yesterday. Things are on their way to normal. I am on no pain meds simply because i dont like them, i sleep the same hours as i used to except when i move i wake up because it is when i am relaxed that i feel it the most, but i go back to sleep. I walk at a good speed now though not as fast as i used to walk - i am a speed walker! I still have trouble sitting it has to be at a 90 degree angle, no couches or anything comfortable. I went to the movies the other day - i love the movies. I took my doughnut pillow and another cushion and that was good. I cant have a bath yet - well i could but its just not worth it in case o slip or something. I can drive too. That's ok but i try and avoid freeways because i can not turn around and look behind me before changing lanes. I also have hydro 3 times a week except at the moment because I have a cold. I am also back at work, only 3 hour shifts. My boss is great and we're going to see what hours i can do each week as it comes until im really strong. I had my brace on and i thought everything would be ok but truth to tell i was quite sore actually, still am. I see my surgeon tommorrow though he is not doing x-rays because i had so many in hospital. Normally after 6 weeks some evidence of fusion can be seen so i hope that he has another way of telling how things are progressing. I can not wait to get the all clear regarding exercise as I have some serious serious resistance training and cardio work to do before i'll be happy with myself.
I simply have no patience and believe me thats one thing you'll need lots of to get through this kind of procedure without troubles.
Ok, tell me one more time exactly what they're doing to you at Knox, i ask because you will be there for a week and then at a rehab hospital for 1-2 weeks after, thats a long time. However im sure they know what they are doing. How's those arms coming along? stronger? I hope so.
So by the sounds of this receptionist you're not going to find out till christmas eve when your date is? Let me know anyway. Have they told you what to expect in terms of how long you'll be in intensive care for and all that?
Man you are a machine! What just about 12 hour days! That's amazing, i would not have been able to tolerate that and my situation was not as bad as yours but then we're all different in our tolerance levels.
I sit exams next Wednesday so i better do some study.
how's it going? that's great you went to the movies and got out of the house what did you see? how did you go sitting for that long?
so your on no meds at all??? thats great, is that ok by your doctors?
how's hydro going? is that one on one with a physio? what sort of stuff you doing?
what did the surgeon say today about your progress and so on?
lots of q's hey!!!
in regards to my hospital stay, it's 7 nights at knox. and then because my rehab place is so far away and i will be needing to go there so often they might get me to stay there. also my parents wont be able to be home 24/7 so its either home help or stay at the rehab place, we work all that out on jan 21st. my pez own a supermarket and dad is a national manager of a big company aswell so it's hard to get a lot of time off.
i dont want to have to stay at the rehab hospital at all but i guess whatever they say goes. it's not definate the surgeon just thought it'd be best due to me living a fair way away the car ride would be painful.
they haven't told me anything about being in intensive care or anything?? i'm assuming the rehab pre op appt will enlighten me a little more.
work is a killer, especially going out sat nites after getting up at 6 and not getting home until god knows what hour... i push my self to go out sat nites, but it's my only time to let myself relax with my mates and have no pressure or worries. i just cant wait to go on hols from work 19 days thank god!!!!!!
anyway i best be off talk soon, i hope everything went well at the surgeons!
The movies was fun. I love the movies, i saw 'Cabin Fever' it was really quite crap but scary and thats the main thing. Luckily it was only 1.5 hr movie. I took my doughnut pillow and another cushion to go behind my back so it was quite comfortable. The doughnut pillow means there isn't any pressure on your spine because the spine is aligned with the hole in the pillow so there's no pressure on the spine. I use this pillow whenever i sit for long periods of time. I hope to go to the movies again next week, i want to see 'Mystic River' its just awful at Westfield with all the school kids!!
Yep im on no meds, thats a decision i was encouraged by my doctor to decide to do. I also think i've been through enough in terms of having things pumped through my body that are not supposed to be there. I will see my surgeon in a few hours and i know he's going to say to me 'take them if you're uncomfortable'. I am uncomfortable but thats only because I have started working again. I wouldnt work but i need the money i can not rely on my parents for money, i want to do it myself and its good to get away from the house for a bit.
I was doing hydro 3 times a week but i am bordering on a cold so i thought it best not to continue with the hydro until the weather is warmer here so my cold wont worsen. I do hydro at a private hospital close to home. I originally had 2 sessions with the physio i had been with for a few years and she was in the pool with me showing me what to do. After i knew what to do she wrote a program which i do each time I go. I dont need her there as the program is all written down. So I buy an 'independant pool visit card' which costs $110 for 10 visits and i just go along and do it myself. It takes about 30 minutes.
At the moment i am only doing stretches because i can not safely stretch out of the water because of the weight bearing effect. I also do simple things like walking back and forward in the water and sideways and i do some upper body work with paddles just pushing them through the water. Im normally quite tired after 30 minutes of that even though it doesnt feel like much at the time.
I swear i would not be able to do what you do. I am umming and ahhring about whether to see my mates if i have worked 3 hours and its not even busy at work. Just imagine how much energy you'll have when yu come back after surgery.
I'll let you know how I go with the surgeon and i'll post again tonight.
I could imagine you would be tired my sweet. The surgeon's actually didnt go as well as I had thought. Nothing bad but i had thought at 6 weeks post op I would be able to start doing a little more exercise and move a little more freely etc. However, i am allowed to do nothing more than i have been doing for atleast another 6 weeks. No exercise, bending, twisting going out for too long, sitting for too long all the usual.
It's odd because my Physio had told me that the fusion is relatively solid within 6 weeks. I think when she said this to me I had gotten my hopes up and thought i was more capable than i obviously was. When I saw my surgeon he said at 6 weeks there is no point in doing an x-ray because there wont be much sign of fusion. Hmm, well i have lost a little faith in my physio who has worked with fusion patients before, i would have thought she'd know this. So in another 6 weeks he will have an x-ray done and we will see then how the fusion is looking. That will be on the 23 of January (i think). So until then i have to be very good to allow my body to get on with its recovery.
I had also started back at work last thursday for 3 hours. He said at this stage 3 hours is too much and as you'd know that's the minimum shift length but i have only got one shift this week and then probably 1 the week after and then i am full time for 2 weeks. He said by that stage I should be ok. He said it was really a amtter of seeing how i am feeling at that stage and take it from there. When he said this, after ym immediate feelings of dissapointment I thought of you. I thought you will unlikely be back at uni unless your doing only a couple of subjects or something like that. Whatever happens dont forget your back is the most important thing right now, you can study later but dont mess the recovery up. Be more patient than me because I have had to do some serious thinking lately to tell myself to slow down. It's a bit depressing but what choice is there.
Rest up, you'll need it, i can only imagine the hectic hours you'll be doing over the next couple of weeks. I'm thinking of you. You're made of steel my girl!!
how's it going?
what you getting up to today? its meant to be 37 today so i was planning on getting a tan but its cloudy
The more i read about you the more i start to realise i am being a bit impatient in regards to me wanting to go back to tafe really soon. I know this is a major operation in which the outcome will alter my life so i should be a little more relaxed. i guess i wont really believe i can't go to tafe until the time actually comes then i suppose i wont want to.
just knowing you shouldn't even be working yet makes my idea of " oh i'll just go to tafe and get the notes stand around for a bit come homw and do some work" seem really stupid and un-realistic.
that must be soooo annoying for you not being able to step up your exercise at all hehe i have also realised i was being to eager thinking about how great it's going to be to be able to go to the gym and get fit again, it's going to be a long long process! i am the most impatient person who always wants to do the best and the most! not sit back and say 'ok i'll just do a little walk around the block'. hehe
how are you going remebering not to bend or twist? must be difficult, i wont have a brace so i hope i remember! how was work? were u able to perform your required duties?
i can't wait two weeks till im on holidays from work thank god! finally my body will get a little rest
we're going to byron bay now aswell on our way home from queensland should be great! i have a feeling i will be extending my trip once i get there, aslong as im back by the 21st for my pre op it'll all be good
i just re-read this post and it's all over the place sorry bout that! hehe
anyway i gotta go to the doctor, thats the annoying thing about work cover you have to go to the docs once a month to get a medical certificate! me and my doc are like mates now we see so much of each other and the receptioists have everything set out for me when i rock up hehe!
Yeah i do you exactly how you feel, i am so impulsive.. most of the time actually. I just get an idea in my head and i run with it but now it seems i have to slowly walk with ideas!! hehe. I have to keep myself in check all the time, a number of times a day to remind myself of my situation.
I wanted to go to the shops on the weekend and dad was really angry with me because he's worried he said 'you think you're normaly but you're not, you've just had a major operation, don't come to me when you've over done it'. The thing dad forgets is that i taught him everything he knows about my condition and i've been dealing with it for years, there's no way i would ever do anything to jeopardise everything that's been done.
Yeah, i am thinking you wont be going to tafe next semester, like you said you want to do everything to the best of your ability and im guessing that includes your recovery. Therefore take the time to recover 100%.
Can you explain to me what the other proceudres that you are having are as i've not heard of them?
I have also come to realise that exericse is going to have to be a bit of a fantasy for now. I'll build up my energy for when i am ready, that's certainly better than pushing it now and ruining my chances of ever recovering. It's not so bad because i am doing Gym instructors licence and my personal training course over the holidays so i'll be heaps busy - its all by distance education so i can go at my own pace. That will keep me busy.
Work was ok, but you could tell from the look on my face that i was not feeling the best so im glad in a way that i had told them i wouldnt be able to work for a longer period of time as it looks like i'll need to rest up a bit more.
My brace is off now and not bending or twisting is now built into my system. I dont think you'll have to worry about remembering not to twist and bend, your body simply wont let you. You'll feel pain (and that doesnt neccessarily mean you've done damage) it may just be the muscles telling you thats not such a good idea.You'll be stiff as a board anyway and although that doesnt sound good you'll want it that way for the fusion to take the best. My advise is make the most of what movement you have now and have a massage before your surgery. With your nightwear at the hospital, make sure its something you can get on and off easily, a nighty is best because you'll still have the catheter in when they get into your own clothes.
well i had a nice day yesterday and laid around on the
li-lo all day in the pool with some mates it was great! very relaxing! got a bit burnt tho hehe
had to work afterwards though
i think one of the most frustrationg things for you would be is that you would 'pretty much' feel normal, then get angry when you can't do little things! you still cant bend right? how do you go showering? putting shoes and socks on? very sill question i'm just curious.
thats funny what you say about your dad, he just sounds like a typical dad hehe
i have another sill question too, you said your stiff as a board so you dont need to worry about bending or twisting, u can twist your next properly though cant you?
as you know i am definatly making the most of my movement b4 my op! maybe a little too much! actually ill admit it drinking till 3 or 4am on sunday mornings is def too much. when i go to qld i really wanted to go jet skiing! dad told me not to come home if i plan on doing that hehe.
How do you feel you went with your exams?
i have to go and do my xmas shopping now!!
anyway i'll speak to ya soon. hope your feeling good.
Well uni exams are over, thank god for that. I did a couple before i went into hospital and I got the results back - 14.6 out of 15 for physiology. I was very happy as that's a chemistry subject and i didnt do chem at school. I did well in my assignments too so will just have to hang out for these results.
Don't feel bad about asking questions, if i were you id be saying tell me it all!!! So dont worry, that's what im here for.
You're right i feel normal well, mostly. When i have been laying down i have quite a bit of discomfort if i'm trying to move because all the muscles have relaxed and so i feel things more. The same goes for getting out of bed in the morning, the most uncomfortable time of day. My prob is that i cant really control how i move in bed and at the moment because it's so hot i am pretty restless in bed tossing and turning etc. I also stretch a lot - well try to when im in bed, it just seems to happen when i move, all my muscles stretch and im not even thinkin about it, it must be because they are so tight.
Still no bending and twisting at least until the end of january and that makes sense because my surgeon wants to see my first x-ray before we adjust anything i guess. Showering is ok but strictly no bending, which is why i mentioned to you about doing squats or anything you can to strengthen your quadraceps because you'll need them. My quads are pretty chunky right now, they've not been this muscly before and its because this is the only way i can pick something up, by squating and if you havent strengthened them up before your op then they will hurt when you all of a sudden begin o use them repetitvely. Believe me it seems that all i di these days is drop things, i never used to drop stuff as much as i have since my op.
I have lost weight too but that's because the day before the op they told me I had to stop taking the pill because it makes blood clot and my body is suseptible to weight gain with the pill. So, at least im getting back to normal little me again. My neck is all i have to rely on if i need to see something without turning but even at first i did not feel comfortable turning my neck around if i wanted to talk to someone behind me, i didnt feel comfortable. You'll be quite weary of your surroundings and how you move, you wont like going in the car at first because its a pain to get in and out of, prob for the first few weeks but you'll be in rehab so it wont be such a bad thing. Actually i would have felt ok about rehab too at least you know there is someone there to look after you so not much can go wrong.
I've also just started wearing normal clothes again, i wear tops generally that end just above my hips, i had felt uncomfortable because it means my scar is exposed but it doesnt bother me now. That was a difficult thing, getting used to the scar, its so big and red and i didnt like touching the area its psychological, i just dont want to hurt anything, im sure it doesnt work quite that way.
Anyway hunny bear im off to lounge around! Have fun with xmas shopping!!
congrats on your exam result!! top stuff!
i thought of yet another question for ya! how long is your scar and how wide? is it raised?
i have 3 scars from my shoulder reconstruction and they are small and i am concious of them and u can barely see them! i guess i'll just have to get used to by fusion scar.. i'd prefer to have a scar and reduce the pain
exactly 10 days till im on holidays from work!!!!!! god i cant wait! 12 days till im in queensland woo hoo!!!
i'll jump on my mates computer when im up there and let ya know how i'm going and to check you didnt party too hard on new years! remember i'll be drinking for the both of us mate!! hehe
anyway its my mates bday today and were going out for dinner so i'll speak to ya soon