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mariestorm1 04-16-2004 06:40 AM

thorasic disc problem
 
Last August I fell on a customers site due to water on bathroom floor.
Since that time I have had chronic lower back pain. This pain has affected my right leg (gives out) so I have to use a cane. I cannot stand ,sit or walk for more then 10 minutes at a time which puts me in extreme pain so I must lie down. I have had Xray's, MRI, nerve conduction tests which all came back negetive. I have been to physcio which made it worse. I am teken right now Oxycontin 20mg morning and night along with Oxycodone 5mg every 6 hours for braek thru pain.I also take Diazepam 5mg twice a day. Since these pills give depression they also gave me a anti depression pill.
With all of these pills I still feel the pain and now I feel sick to my stomach every day. I have not slept a full night sleep since the accident last August and I feel down all the time.
A few weeks ago I saw another physcio person who after she accessed me, I have had problems with my higher back. She cracked my back, rolled on it and made me cry. For two days I could not get out of bed or off the couch by myself.She then requested a MRI for my Thorasic spine. This came back as a bugling disc on my T7,T8 and something else for my T9.
I am so convinced that this was not the orginal problem I had.
I do not get staight answers from my Doctor, or spe cialist.
When the last person spoke about my thorsic spine they said if there is a problem it can not be fixed and that I should not lean forward because that it will make it worse.
I am a Black and white person and cannot accept any of the not straight answers I get from the medical people I deal with.
I was receiving Psychotherapy & Counselling (EMDR, TFT, Gestalt therapy, but the Doctor said that I'm in too much pain for him to help me at this time. I am going to be referred to someone else to help me cope with the pain, anger and depression.
How I see all of this is that I hurt my lower back and since that time with all the tests, my higher back is now a issue. I also have developed, lost of memory( possible Drug side affect) pain in legs, bottom of both feet hurt, numbness in head and arms. In the last two days I have now got a pain in my right shoulder and right knee.
I try talking to my Doctor and all she does is change the pills or tells me I should try injections in my back.
I am lost and feel so alone dealing with all of this.
Is there someone else that has gone through anything like this

Mariestorm

Kayley 04-16-2004 07:28 AM

Re: thorasic disc problem
 
Hi Marie
I'm sorry to hear all you're going through. I have a herniation at T-6 and T-7, which causes pain to wrap around my chest. I was also told there was nothing that could be done for me, but I kept trying anyway, and finally found out there is a doctor in AZ who specializes in thoracic herniations. His name is Curtis Dickman, and he's at the Barrow Neurological Clinic in Phoenix, AZ. I obtained special permission for my insurance company to see him, but as it hurts me to fly, I'm going to have a phone consultation with him first.(we haven't scheduled it yet, waiting for him to get my test results). He does have his own website if you want to look it up. I'm not sure if I'm supposed to post it, or I would.

You said you feel lost and alone and that's how I feel too because there are not many people that have this problem, it is very rare to have a herniation in the thoracic area. I have found that for me, coming here and to other online support groups helps immensely. Just to be able to correspond with people who go through pain every day like we do makes me feel not quite so alone. I hope and pray you get some help for your pain. Take care :angel:
Kayley

carol632 04-16-2004 09:34 AM

Re: thorasic disc problem
 
[COLOR=DarkRed][FONT=Palatino Linotype]HI, Marie and welcome to Healthboards. I am going to suggest that you make an appointment with a neurosurgeon or an orthopedic spine specialist. You need to get a clear answer to the questions you have about your back. It sounds to me like you have a bad disc and some nerve impingement. Take you last MRI films with you to the new doctor. You have been getting the run-around.

Please do not allow any more "adjustments" on your back...you could end up paralyzed! Get a diagnosis from a specialist and then make another appt. with one more doctor for a second opinion. Yes, I know, a lot of running around from one doctor to another. But, if you want clear answers it is best to get at least 2 opinions.

Good luck to you.
Carol[/FONT][/COLOR]

mariestorm1 04-17-2004 03:23 PM

Re: thorasic disc problem
 
[QUOTE=Kayley]Hi Marie
I'm sorry to hear all you're going through. I have a herniation at T-6 and T-7, which causes pain to wrap around my chest. I was also told there was nothing that could be done for me, but I kept trying anyway, and finally found out there is a doctor in AZ who specializes in thoracic herniations. His name is Curtis Dickman, and he's at the Barrow Neurological Clinic in Phoenix, AZ. I obtained special permission for my insurance company to see him, but as it hurts me to fly, I'm going to have a phone consultation with him first.(we haven't scheduled it yet, waiting for him to get my test results). He does have his own website if you want to look it up. I'm not sure if I'm supposed to post it, or I would.

You said you feel lost and alone and that's how I feel too because there are not many people that have this problem, it is very rare to have a herniation in the thoracic area. I have found that for me, coming here and to other online support groups helps immensely. Just to be able to correspond with people who go through pain every day like we do makes me feel not quite so alone. I hope and pray you get some help for your pain. Take care :angel:
Kayley[/QUOTE]

mariestorm1 04-17-2004 03:29 PM

Re: thorasic disc problem
 
Thank you for taking the time to answer me. I know that most people I know don't think that this is a big thing. I know that they never had to deal with the not knowing and all the pain and sleepless nights and trying to function every day.
The last Physcio person I went to told me that she did not think that I would ever go back work. This also takes alot of hope to get better away.
I am going to insist on seeing another Doctor and see what they have to say.
I will keep in touch.

Mariestorm

mariestorm1 04-17-2004 03:32 PM

Re: thorasic disc problem
 
[QUOTE=carol632][COLOR=DarkRed][FONT=Palatino Linotype]HI, Marie and welcome to Healthboards. I am going to suggest that you make an appointment with a neurosurgeon or an orthopedic spine specialist. You need to get a clear answer to the questions you have about your back. It sounds to me like you have a bad disc and some nerve impingement. Take you last MRI films with you to the new doctor. You have been getting the run-around.

Please do not allow any more "adjustments" on your back...you could end up paralyzed! Get a diagnosis from a specialist and then make another appt. with one more doctor for a second opinion. Yes, I know, a lot of running around from one doctor to another. But, if you want clear answers it is best to get at least 2 opinions.

Good luck to you.
Carol[/FONT][/COLOR][/QUOTE]

mariestorm1 04-17-2004 03:39 PM

Re: thorasic disc problem
 
Than you for your advice on seeing a neurosurgeon or orthopedic spine specailist, that is what I was trying to get my Doctor to do . She keeps wanting to send to get a massage, or physcio again, she doesn"t seem to understand that my back hurts too much for anyone to touch
at this time and it just makes the pain worse. Then she increases my pain pills which is not doing anything but makes me feel ill.
I will let you knmow the out come.
Thank you again for caring.

Mariestorm

injured betty 04-17-2004 08:44 PM

Re: thorasic disc problem
 
[QUOTE=mariestorm1]Than you for your advice on seeing a neurosurgeon or orthopedic spine specailist, that is what I was trying to get my Doctor to do . She keeps wanting to send to get a massage, or physcio again, she doesn"t seem to understand that my back hurts too much for anyone to touch
at this time and it just makes the pain worse. Then she increases my pain pills which is not doing anything but makes me feel ill.
I will let you knmow the out come.
Thank you again for caring.

Mariestorm[/QUOTE]

Sounds like you either have an HMO, bad insurance or a pill pusher. I would find someone else to go to if I could.

Mobity 04-20-2004 05:08 AM

Re: thorasic disc problem
 
Hello again Marie,
My husband wanted me to tell you his story and asked me to tell you that he would be happy to answer any questions you have. He is not very good on the computer so I am going to write this for him.
On July 4, 2000 we were watching the fireworks display sitting in those funny little white plastic lawn chairs, when his back started hurting around the middle of his back on the left side of the spine. He described it as a burning pressure that got worse as the evening went on. The pain never got better and only intensified as the days went on. Soon, like you, the pain radiated around to the front of his chest just under his nipple. Both sides hurt but the left side was worse. At first lying down would help relieve it but eventually nothing really helped except pain pills. He could get the pain to get worse just by bending forward.

X-rays showed nothing and an MRI showed only mild bulging disks at T9-T10, T10-T11, and T11-T12. Our doctor prescribed Celebrex and sent him to a pain clinic where he got four epidural injections, which didn’t help at all. Neither doctor seemed to believe that he was in that much pain. He was advised to lose weight and do stretching exercises.

Having had lumbar spine surgery before all this started he knew that there was something seriously wrong with his thoracic spine, but he met frustration again and again with every new doctor he went to. They all said there wasn’t that much wrong with his back. He finally went to a neurosurgeon who looked at the MRI he brought in and ordered a milogram with CT. He then referred him to another pain clinic where he had literally dozens of nerve blocks. When he was given a radiofrequency lessening – he heard the radiologist say “time for a discogram”. But when he asked the neurosurgeon about it the neurosurgeon told him that it wasn’t the discs it was the narrowing. He also assured my husband that a surgery would be beneficial. He claimed it would be a relatively simple surgery for him because he was a really good surgeon unlike others who he compared to car mechanics.

We went to our family doctor who reviewed all the tests and reports. How I wish we had listened to him, when he said he didn’t think my husband should have surgery. But the neurosurgeon explained that even a little narrowing could sometimes cause a lot of pain. “Nerves are funny things,” he said.

In April of 2002 hubby had surgery. The neurosurgeon did foraminectomies and foraminotomies (I’m sure they are spelled wrong.) at all levels. In order to access these areas he also removed the spinal processes from T8 to T12.
When my husband awoke from surgery the original pain was still roaring and now he had even more pain caused by the surgery. He was also leaking spinal fluid at an alarming rate from two durmal tears. General consensus (4 doctors) was that it was not only the wrong type of surgery but in the wrong locations..

After just a few weeks hubby went back to the surgeon complaining that the original pain was still there. At that point, the surgeon pretty much abandoned him telling him that there was nothing else he could do. He referred him to another neurosurgeon who wouldn’t see him because it was to soon after his surgery – he told him that the original neurosurgeon had to keep treating him. OK, no doctor and he’s only a few weeks post op. In a panic he called our family doctor and got in to see him right away. Our doctor nearly cried when he saw my husband’s back. He then called a doctor at CINN (The Chicago Institute of Neurosurgery and Neuroresearch. That doctor sent us to another pain clinic with instructions to not only treat the pain but to find out the cause. The pain doctor was given free reign to treat and diagnose.

Hubby again went through nerve blocks only at higher levels. After months of unsuccessful treatments, they decided it was time to do a discogram. This revealed discs that were so collapsed the doctor had to abort the procedure.

What hubby wants you to know is that you have to get the pain diagnosed in the proper way. All of his tests were done with him lying down. A standing MRI might have revealed the disc problems but the discogram was done late in the day and with him seated and bending forward. We now know that there isn’t a lot of hope for surgery at this point and pray that someone somewhere is coming up with a process or invention that will help in the future. But at least we know what is causing the pain and our family doctor no longer things it is insignificant. The pain doctor sees hubby once a month and gives him pain meds.

Marie, diagnosis has to come first and you must find a physician that can give you the right answers. If you aren’t happy with one find someone else. Shun doctors that want to tell you that it is all in your head or it isn’t as bad as you make it out to be. I would hate to see you jump in to a surgery just because some quack claims he can cure it.

We will be here if you need us. Please feel free to contact us any time. We know what you are going through and we care.
Hugs
Mo

mariestorm1 04-20-2004 04:17 PM

Re: thorasic disc problem
 
Thank you so much for taking the time to explain your husbands nightmare.
I am so sick of all the pills I take and the effect they have on me ie: gain wait tired all the time, feeling sick to my stomach most of the time) I see my Doctor next week and insisting on seeing a different specialist, maybe two. All I want is to feel the way before the accident and I do not want people guessing what to do next, That is way my higher back is now a problem, it was just my lower until the new physcio person did a accessment whick she rolled on by back which I heard cracking sounds and my upper back has not been the same since, but of course it was nothing she did.
She did this and then asked for a MRI on my thorstic spine to be done, which then showed a problem. The xray that was done before I saw her showed no problem,
I think that they do not no what the problem is, try treating it and they end up doing more damage. I will keep in touch and let you know what they intend to do next, One thing is I do not want surgery or needles in my back, Physcio did say that it is rare to have disc problems in the higher back and that there is not much you can do for it.
Lets see what another Doctor thinks.
Thanks again

summerbreeze 08-06-2005 01:37 PM

Re: thorasic disc problem
 
Hello,
I'm new here and seeing how the last time anyone replied to this was back in April of 2004, I'm not sure if I'll even be read! :(
Anyway, 5 years ago I had a lumbar lamenectomy after a serious car accident. At first, I was to have a cervical operation, but when I began falling while I was teaching, and MRI showed that the spinal cord in the lumbar area was 90% shut off, so we had to do the lumbar first.
As time has passed, my neck area still hurts badly, but I've opted to just "deal with it". What is frightening now, is the thoracic area has outdone the cervical in pain! This started a year and a half ago when my uncle gave me a really big hug at a Christmas gathering! I had immediate pain between the shoulders and mid back area and ALSO pain in the chest area. Now.......I'm finding myself slouching into the middle, having to lie down frequently to get the pressure off the area and just having this feeling like someone punched me in the middle of my back!
Its kind of a funny situation because I'm still fairly active. I work out and ride my bike......but I never get rid of the pain totally and sometimes its so bad.......I stay in bed for a day or 2 on Vicodin!
Here is my question......if I had a herniated disc, would I be able to do things like I mentioned...work out? ride a bike? walk? If so, am I playing with fire here in that I can cause more harm being active? I repeat that some days its so bad, I just can't go on! Anyone have something similar?
Someone had told me of a procedure where a balloon is put into the spine and its non invasive surgery. What is that? And what is normal recovery time from that?
Sorry for all the questions......I'm just preparing myself for a visit to my orthopaedic surgeon in the Fall, so if I must have surgery, I don't lose the summer! PLUS, there are only so many questions a doc will deal with at one time, right?
Thanks,
SB

smac401 08-06-2005 07:15 PM

Re: thorasic disc problem
 
Dear marie,

I also know what you are going thru? I have had 3 surgeries at levels 3-4 and 4-5 , i also have a herniated disc at t-9-10 . and i also have been told that they cannot do anything in that area. it is most common in sports ie:hockey. I have been going tru this
since 1988. i have had many injections and have been on all kinds of pain meds.

All i evre hear from the specialists is your just a drug addict or your phycho. I cannot get any body to beleive me and my pain. IT IS NOT IN MY HEAD. I have permanent nerve damage and have had 3 surgeries which 2 of them were failed operations.

I have been told i will never work again and that i will most likely end up in a wheel chair with in the nect 5-10 years. I have been told that i need a fusion on l3-4 and l4-5 and possible l 5 - s1. So with all of these options that have been given me what do i decide to do.

I am just gpoing to see my GP and get my meds and try to live a partial normaal existance the best that i can.

smac401

Lorri316 08-12-2005 02:09 PM

Re: thorasic disc problem
 
In 1996 I was diagnosed with t9-10 disc herniation. 2 weeks later a cat scan revealed a "benign" hemangioma at T-8 (basically a tumor, non-malignant, but it has its own groups of blood vessels inside the tumor.

I guess because I herniated so close to the hemangioma it caused pressure to build up - my ribs always feel tight - as if someone is giving me a bear-hug.

Since then, i have lived in constant pain. I was recently diagnosed (with cervical MRI) with c3-c4 and c-6-c7 central disc bulges. I suppose that is causing the right-sided headaches - lightning strike-type pain that travels down just the right side - I cannot even touch my hair or go outside or look at the monitor/tv when these headaches arrive - they stay about 2 - 3 days. the pain is excruciating.

I am working hard to get an updated MRI of my thoracic spine as it is getting tighter and tighter - i feel as if i am black and blue and the muscle spasms that occur thruout my body - so many places - you all know how difficult it is to deal with pain every second of every day.

Just thought i would share my story - and wish me luck as I wish all of you luck. Thoracic spinal pain has got to be the worst - I think i could live with the arm and shoulder pain, and numbness in extremeties, then ant-bite feeling, and the burning sensations that come and go at whim
Don't you ever feel sometimes that your own body has Betrayed you? I used to be so active, but due to this pain, it's hard to sleep, hard to get up in the morning - knowing the same pain awaits every day.
I try meditation - aerobic non-impact pool therapy - but pain is still there.
Only good thing - I did manage to get myself into seemingly decent "looking" shape - lost 80 pounds with the pool therapy.
Note: do not use weights as part of exercise routine - no-impact - do isometric exercises and stop when you've had enough - do not push yourself - I did that a few times and my legs wouldn't move for 2 days.

Just a little advice for thoracic injuries.
Lorri :angel:

jdlfmc 08-12-2005 03:09 PM

Re: thorasic disc problem
 
Hi Lorri, Welcome to the boards, I have problems though out my spine and permanant nerve damage, I have cord comp. at the T7-8 so I know how painful thoracic pain can be, have you ever felt as if you were having a heart attack?
I sure have I have even had a complete work up of my heart to find out for sure my heart is fine though thank goodness.
I know it hurts me to even try and lift a gal. of milk out of the fridge. I did aqua thearpy for awhile and really enjoyed it but it really flared up the nerve pain so I had to stop.
Anyway thanks for sharing your story and hope you enjoy the boards.
Linda

matt1970 06-01-2007 12:33 PM

Re: thorasic disc problem
 
I am glad I found this site. I managed to rupture the disc at t8-t9 in August of 2004. While working under a desk, I twisted and pushed several boxes that were filled with books and other items. I too was blown off by the doctors. They told me I had pulled muscles, but having rutrued disc in my neck in the early 90's, I knew this was more than a pulled muscle.

After arguing about how badly I was hurting, the numbness and pain shooting into my legs and buttocks, as well as not being able take deep breathes, I finally had my personal doctor send me for an MRI. Unfortunatley, I too have not found anything to ease the pain. I get steroid epidurals every 70 days, and they have put me on Methandone, Hydrocodone, Ultram, Valium, Soma, and Ambien CR. I had been taking Celebrex then Ibuprophen, but it nearly killed me on Chrismas day 2006. I had 2 ulcers just below my stomach, and one had a arterie (sp?) I lost 70% of my blood in about 10 minutes. So, I can no longer take any NSAIDS, which did help tremendously.

In the meantime, the pain, and weakness in my legs have gotten worse, so I had another MRI. I now have ruptured discs at t7-t8, t8-t9, and one bulging at t6-t7. My doctors want me to quit work, and state I will never work again. At this point they are worried that too much exertion or over doing it could kill me due to where these disc ruptures are located.

So, I am considering surgery, but it scares the heck out of me. I don't want to be paralyzed, but I don't want to keep living with pain that is constantly at a 6 - 9. I eat Oxycodone like candy, which I think is causing me to be very forgetful.

I am looking for honest feedback on my situation so I can make an informed decision on what to do.

Thanks!!!

Matt


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