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Old 04-30-2004, 08:13 AM   #1
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nycgirl25 HB User
Unhappy I need to vent-very depressed

Okay, so my Doctor had me do a discogram earlier this week, His reason was that he hoped that I would be a candidate for disc replacement since my problem was only on one disc. So I go have the disco (which by the way is one of the most painful things I have ever had done) and then I went back the next day to get the results and apparently my pain is not coming from One bad disc, but from two, not only is the pain from the 2 herniated disc but also from scar tissue and nerve damage from surgery number 1 ( discetomy L4/S1) so then he tells me that I can no longer have a disc replacement, that my options are to wait until double disc replacement gets approved by the FDA, get a dual fusion on both discs or get IDET for temporary relief. I do not want to go through the pain that I went through during the discogram , and everything that I read gives me the feeling that it is just as painful plus the recovery process seems as long as if I got surgery anyway. So I have no idea what to do, I am extremely overwhelmed and confused and in pain and just ready to give up on the whole thing. Please guys give me some guidance as to what I should do.

Regards
Anne

Last edited by nycgirl25; 04-30-2004 at 08:13 AM.

 
Old 04-30-2004, 10:17 AM   #2
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hddancer HB User
Re: I need to vent-very depressed

hello nycgirl,
I have not much guidance to give you since i myself got diagnosed very recently like Feb 2004(on my 30th bthday) and since then been taking some Vax-d , PT , 1 epidural.
All i can tell you is hope you feel better and think positive.
With Vax-d's some days i have pain and some days i feel very better .I am considering nucleoplasty if things dont improve and had asked few ppl here about surgeons in NYC ..Thanks to some replies i got but didn't get any listing for NYC .. You seem to be from NYC .. May i ask if you know of anyone around here ..I was also curious which doctor in NYC were u considering disc replacement..I also wanted to get a second opinion from a doctor who does disc replacements for myself.
I am sorry to have popped up this question in your "vent" thread ..But i thought i may get some useful pointers from you being in NYC area.
And again feel better and hope your situation improves and get on with your passions.
Some of the friends from my dance scene who had herniations so many years ago told that it automatically goes away with time ..I guess it varies from person to person..
anyways, thats my little vent here !!
goodluck with ya

 
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Old 04-30-2004, 10:25 AM   #3
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nycgirl25 HB User
Re: I need to vent-very depressed

to hddancer,
yes i am from NYC, i am sorry that you are going through this , its very depressing but i guess one has to be optimistic and hopeful. I have been dealing with this since 2002 and i have a really good team of Dr's at Beth Israel they are

Dr. David Langer (neurosergeon from surgery number 1)
Dr. Andrew Casden (Orthopedic Surgeon. does disc replacement)
Dr. Stuart Khan A.K.A the butcher ( pain management specialist, i only call him that b/c he performed my discogram)

Hope that this helps, they are all great dr's and have done absolutely everything they can for me.

Regards
Anne

 
Old 04-30-2004, 12:03 PM   #4
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hddancer HB User
Re: I need to vent-very depressed

hello anne,
THank you very much for the providing the list of Dr's. I have few more sessions left to complete VAX-d and if things don't seem to improve by then i will start to see other Dr's.
I had started to feel good after fist few sessions of VAX-D .Now it seems to have come back . I should have had stopped when i started to feel better .
Anyways, looking at all the discussions here i still have a long way to go with pain and in the process i shall come across few butchers like you
said :-)
BTW i have come across online about some hospitals in Europe ( germany)that do double disc replacements for ppl willing to travel and spend money . May be if you really need disc repacements you can look those options .Just a thought .
Well, Goodluck with your future attemps and keep us informed ..
Feel better

 
Old 05-02-2004, 06:02 PM   #5
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katenyc5 HB User
Re: I need to vent-very depressed

hddancer,

I see Dr. James Farmer at the Hosp. for Spec. Surgery in NYC. He's located on York & 72nd St. Excellent -- he is an orthopedic surgeon who specializes only on the back.

Good luck,

Kate
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Old 05-04-2004, 01:16 PM   #6
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nycgirl25 HB User
Re: I need to vent-very depressed

Kate

can you please give me the Dr's phone number?

 
Old 05-04-2004, 01:22 PM   #7
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Re: I need to vent-very depressed

Hey NYC have you tried neurontin at all for the nerve pain? Also ask about the lidocaine patches. Ive been using the combinatin and have had wonderful results. I had a microdiscectomy/laminectomy on Jan. 26th for a 15mm herniation of L5/S1 and had a second surgery on the L4/L5 just last week. Its a horrible thing to have such pain and we are all in it together. Try the neurontin and lidocaine patches and see if they help. Good luck to ya.
Kevin

 
Old 05-04-2004, 01:22 PM   #8
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Re: I need to vent-very depressed

Hi. It's 212-606-1591. Tell them you were referred by a patient Kathleen, who is a long-standing patient of Dr. Farmer's. Ask to speak to Joanne [that's his main assistant]. Hopefully you can get an appt. soon -- it may take time, though. The man is in surgery most of the week, from what I understand. He did a microdiscectomy for me [L5/S1] in Oct. of 2000 -- he's really a great surgeon. With the Hospital for Special Surgery on upper east side. I highly recommend him.

Good luck.

Kate
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Old 05-04-2004, 01:26 PM   #9
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nycgirl25 HB User
Re: I need to vent-very depressed

Kate

Thanks, i will def. give them a call and see about getting a second opinion.

Kevin
I have tried the neurontin , to no avail :-(
howver i have not tried those patches, i see my neurosurgeon on friday so I will bring it up.

thanks for the support

 
Old 05-04-2004, 01:29 PM   #10
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Re: I need to vent-very depressed

Anne,

Just thought I would add -- I started having some back pain again in January of this year -- this time going down my left side [the previous was going down my right]. I had an MRI with contrast and it showed no new herniations but disc degeneration -- my L5 disc [what is remaining] is breaking off and wearing away. Dr. Farmer suggested a discogram to me, as well as possible disc replacement and/or fusion [if necessary] -- depending on my pain level and for how long. I've been in physical therapy for months and I have good days and bad days, but I'm hoping to work through this thing with PT and exercise.

In any event, I feel that Dr. Farmer could at least give you some very good advice with your problem. You'll like him, for sure.

Good luck, and let me know how it goes.

Kate
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Old 05-04-2004, 05:51 PM   #11
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kvn60640 HB User
Re: I need to vent-very depressed

Hey I forgot to mention that there's a spine center out on Long Island on Jericho Turnpike in Commack. They are doing endoscopic procedures. I believe it's called the Long Island Spine Center or somenthing similar. They have a website you'd be able to find easily with a quick search of endoscopic surgery. Best wishes to ya.
Kevin

 
Old 05-04-2004, 06:14 PM   #12
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tennisnut HB User
Re: I need to vent-very depressed

Hey nycgirl-

Maybe you already know 2-level disc replacements are available in the U.S. and in Europe. I do not believe that having had previous surgery precludes you from qualifying for ADR replacement during the open enrollment period. If it does, then you could decide to wait until the end of the year, when it is expected to be available outside of the clinical trial or have it done in Europe. Having 2 discs replaced instead of 1 does not change the odds of having a good outcome, so that might give you some peace. You've been given some good leads to get more information. You will find that there are options for ADR, I know it.

-tennisnut

 
Old 01-18-2005, 12:53 PM   #13
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larry81 HB User
Re: I need to vent-very depressed

can you recommend others beside dr. farmer(he doesnt take my insurance but i may change)

thanks larry

[QUOTE=katenyc5]Hi. It's 212-606-1591. Tell them you were referred by a patient Kathleen, who is a long-standing patient of Dr. Farmer's. Ask to speak to Joanne [that's his main assistant]. Hopefully you can get an appt. soon -- it may take time, though. The man is in surgery most of the week, from what I understand. He did a microdiscectomy for me [L5/S1] in Oct. of 2000 -- he's really a great surgeon. With the Hospital for Special Surgery on upper east side. I highly recommend him.

Good luck.

Kate[/QUOTE]

 
Old 01-18-2005, 04:55 PM   #14
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injured betty HB User
Re: I need to vent-very depressed

Before buying the Lidocaine patches, ask for a sample.

I bought the presciption and it didn't do squat. I asked my doctor why they were prescribed. He said that they are for surface pain only, such as burns, but as part of the insurance protocol, they have to offer them, and if they take away your pain, or you even believe that they take away your pain, then you are one step ahead.

The nerves are deep inside, the Lidocaine patches only work ontop.

Just another scam,


 
Old 01-19-2005, 04:16 AM   #15
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flyonthewall HB User
Re: I need to vent-very depressed

Check out spine.org.

 
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