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Old 08-07-2004, 06:54 AM   #1
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Join Date: Aug 2004
Location: New York
Posts: 12
adaisy HB User
Hi I'm new here

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Hello everyone. I found this board and am delighted to see so much support and education from others enduring the same problems. I am only 24 and hurt myself at work in Dec. while I was 34 weeks pregnant. I recieved no treatment from the doctor I saw (he said it would go away once I had the baby) until after I delivered in feb. Apparently there was nothing they could do (crap). I went to PT where it was decided they couldn't help either. I couldn't do Mckenzie because I couldn't lay on my belly.(more crap, as I found that,that is not the only modality Mckenzie method has). Basically I suffered while pregnant taking only tylenol every 6-8 hours. After delivery my back pain felt better at least better than the lower half of me and I was relieved that I was healing. Around 3 weeks after delivery I started having sharp shooting pains down my right leg and a searing pain on the outside of my right calf. I was a mess. Finally in april after taking only Ibuprofan 800mg q 8 I consulted with an ortho spine specialist. He thought my problems were severe and tried for months to authorize an MRI. This shouldn't be hard considering comp has time limits for approval or denial, but they kept losing the paperwork or blah blah blah. Finally in june I get an Mri that shows HNP at l4-l5 and l5-s1 and also pronounced buldging of l3-l4. So I've done the PT with no results on this relenting leg pain, consulted with a neurosurgeon, who says I am a canidate for a laminectomy but said he didn't want to operate on me because of my age and the multiple level injury. I'm now with a PM who has given me trigger point injections at si joint and neurontin (please excuse my fogginess). I am scheduled for nerve block and facet joint injections. I just finished a round of oral steriods and didn't notice any difference. Since June I have had a change in symptoms and the pain is no longer just from movement it is now constant and accompanied with numbness all down my leg and into my toes. Often I can't even stand up straight and I walk (if thats what you call it) all hunched over limping. I haven't slept in weeks which really sucks considering my 6 month old baby has slept through the night since 6 weeks. I really have all I can do to even care for myself let alone her. Some days Her dad has to stay home from work because I can't even bear weight on my right leg (it shakes and gives out) making walking impossible. My PM wants to do an emg to determine what level is more symptomatic (for nerve blocks maybe) and to see to what extent my nerves are damaged. My question is why do all my dr's let this continue? Do they really think anyone can live this way? I have been dealing with this for 8 months I know alot of you have dealt with it longer but I am running out of hope. Sometimes I wonder if these drs don't just keep you coming back like a dentist does (no offence) for the monitary gain. I applied for SS at the end of june after my ortho suggested it, (another blow to my hope) haven't heard anything but am expecting a denial based on my age. Is there any treatment I'm not already doing or is this it? Also I have started feeling like maybe Drs think younger patients should be more capable of toughing out their pain as I am only taking Neurontin 600mg at night and tylenol 3 at night. I have a tens unit as well, none of these even touch my pain which I have made well aware to all of my drs. I would honestly rather deliver 25 children in rapid successive order than feel this pain. Any suggestions on what more I can do? I can't live like this.

 
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Old 08-07-2004, 07:48 AM   #2
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Join Date: Jul 2004
Location: Los Angeles
Posts: 249
Jenna'sMom HB User
Re: Hi I'm new here

Gosh, I'm so sorry you've having these problems, especially with a new baby. Congratulations and welcome to mommyhood, it's a wonderful place and will get better for you when you get your back problems resolved. Holding your daughter while you're in bed is just as good as holding her when you're standing up, it doesn't matter to her!

From some of the posts I've read here it sounds like you need to get a workers comp lawyer. You hurt your back at work right? It's not your fault that you were pregnant at the time so they had to hold off on treatment. Your employer should be taking care of you.

You should not have to live in constant pain. Maybe you could go back and see the Ortho that thought your problems are severe. Is he a good surgeon? Perhaps he could do your surgery or suggest some other options for you.

I had a anterior/posterior interbody fusion with cadaever bone disc replacements with BMP, 6 screws and 2 rods, 3 weeks ago. I'm very glad I did. I'm getting a little better everyday, I know a FULL recovery will take months, but I'm doing really well. For the most part, the presurgical pain is gone, and I'm just dealing with pain from incisions (although these barely hurt anymore) and muscle pain due to the retractors that they use to seperate your back muscles during surgery.

I wish you good luck and relief from pain. Let us know how things go.
Take care,
Julie
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Julie

APLIF T4-S1 on july 19, 2004
Harrington rod T5 - T12 1982

 
Old 08-07-2004, 09:14 AM   #3
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Join Date: Apr 2004
Posts: 85
GranEEjay8 HB User
Re: Hi I'm new here

Hello and welcome to the board. I'm fairly new here too and your right there is a lot of support, caring and help here. I agree with Jenna's mom, I would go back to the ortho you saw before and see if you can get help, because it's not going to get better without it. I'm having similar problems only it's my left leg, but because I just had my third back surgery a little less than a year ago my ortho really doesn't want to do anything right now, if I can live with it. He put me on celebrex and told me to ice my hip and lower back at the source of the pain and to do this for 20 minutes about every hour or so. This has really helped me a lot. He said the ice will help calm down the inflamation an give some relief. Of course this is just a temporary fix. You really do need to get a permanent solution. Hang in there and GOOD LUCK!
GranEEjay8

 
Old 08-07-2004, 04:52 PM   #4
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Join Date: Nov 2003
Location: Missouri
Posts: 2,128
carol632 HB User
Re: Hi I'm new here

Hi, daisy. Wow, you sure have been getting the good old run-around. You need to get an attorney who specializes in work. comp cases as starters.
I cannot understand why these doctors are not being more aggressive in treating you. It sounds like you have had your yearly limit of steroids...no more than 3 rounds (oral or injectable combined) in a years time. More than that can cause more problems such as bone thinning, tissue necrosis, arachnoiditis, and hosts of other problems. Why has no one offered surgery to help you? Have you ever brought it up to the doctors?
It sounds like you are having nerve impingement that is causing you to lose strength in your leg...it is time to do something before it becomes permanent!
You might possibly try talking to the dr. who agreed your back was in bad shape, or you might want to start fresh, but either way you go, something needs to happen.
Good luck to you, daisy. Please post some more and let us know how you are doing.

Carol
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2 lami's, 3 fusions
bone spur removal
cerv. fusion, 1 level
morphine pump

 
Old 08-09-2004, 07:55 PM   #5
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Join Date: Aug 2004
Location: New York
Posts: 12
adaisy HB User
Re: Hi I'm new here

Thank you everyone for your replies. After checking the boards out for a while I have developed a backbone (maybe not a spine) and really need to call my Dr's. Last monday when I couldn't even walk I called my spine specialist because I was on the verge of a serious breakdown from the pain. I just wanted some options...something. His nurse told me to go to the ER if my pain got too bad. I've worked in the medical profession since I was 16. I work in a level one trauma center and specifically a burn ICU. I know what pain is and I really wouldn't be wasting anyone's time if I hadn't reached my limit. I also know how easy it is to be labeled as a drug seeker when you show up in an ER for a problem your already being followed (by more than one Dr) for. So why am I being treated this way? It's crazy, you break a foot and the Dr's send you home with vicodin or oxycodone but you have chronic pain and their afraid to even treat you. I tried to explain to the spine specialist how Tylenol 3 wasn't working because I only took it at night, by that time I am in so much pain nothing works. This kind of pain is one you need to stay ahead of. Thank god for pain managment Dr's, and boards like this one too!

 
Old 08-10-2004, 05:57 AM   #6
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Join Date: Jul 2004
Location: Los Angeles
Posts: 249
Jenna'sMom HB User
Re: Hi I'm new here

Daisy,
You sound so much better emotionally. I'm so glad reading the boards has helped.
I'm even more surprised that your doctor would treat someone in the same profession so poorly. And here I thought you insiders got preferential treatment....wrong. You sound like you're ready to go demand the help you need. Please let us know what happens.

Take care, and go gett'em girl,
Julie
__________________
Julie

APLIF T4-S1 on july 19, 2004
Harrington rod T5 - T12 1982

 
Old 08-10-2004, 06:14 AM   #7
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Join Date: Nov 2003
Posts: 590
Mistina HB User
Re: Hi I'm new here

I'm sorry your going through all of this. I am 29 now but my problems started at 25 and I'm only just now going to get a fusion because my case started out workers comp. and the doctors weren't there to help me out, they were there to help the comp company out.
I saw doctor after doctor who gave me the run around also and I had no idea that I was being taken by these doctors until now.
I was told that my problem was a simple herniation and to pretty much live with it. Well, my mobility diminished and my life has been a roller coaster ever since. I finally gave up on the comp thing, something I shouldn't have done and I don't encourage you to do the same thing cause everyones situation is different but once I gave that up, I started getting answers and found doctors who would help ME out.
Have you gotton a doctor of your own. Most comp companies will only let you see the doctors in their panel but be real careful cause those doctors are being paid by comp to turn you down and pretty much tell you to live with it and that your fine.
Once you find a doctor of your own, and make sure you know he's trying to help you, then you should start getting answers and if you don't, find another one. It's a roller coaster of events but sometimes you have to do it for yourself.
I have now found out that my disc has completely collapsed and it is bone on bone and there is spurring trapping my nerves. It's a real problem and was being told that they don't know why I am in so much pain. Grrrrrrrrr, IDIOTS! I have been through hell with this and now fusion at that level is my only hope and I pray that it works. But, the whole time I though I'd been going crazy but I was right all along. I knew something was seriously wrong.
I'm really sorry you have to go through all of this, I know how hard it is. Just make sure you stand up for yourself and when they tell you there is nothing they can do for you, don't take their word for it. You've got to stand up for yourself with these 'comp' doctors.
I hope that you find help soon. Keep us posted!

Take care,
Christina

 
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