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Old 08-25-2004, 10:20 AM   #1
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leaving backs, moving on to PM?(saw doc today)

well, if you have been following my "story", then here is what has been decided.
When the doc looked at my MRI, he said that I have a significant bulge at C5-C6, this is much larger than the ones at L5-S1 or L4-5. He believes that this bulge is causing my pain in my low back to legs. I got no difinitive answers, and when he mentioned the ESI, I immediately started to cry. I guess I assumed I would leave with some knowledge of my prognosis. As for my back, well, short of a fusion there isn't anything that can be done, and he is not willing to do that on a 26 y/o at this time. So, I will be referred to a pain management clinic and they will do what they can. The bulge in my neck is quite large, and thinking now, I understand and I know that he wants to cover all bases before considering surgery.
One answer I got, I cannot return to work as a nursing asst. NO LIFTING. He said I cannot b/c the low back discs look like crap and there isn't much of them left. But, he doesn't at this time believe they are causing my pain.
Makes sense though, that if the nerves in the neck are misfiring and they go down to my back and mis fire more b/c of the smaller bulges, that I would have more pain. So, we will first try to fix the neck and see if I can get some relief there first, before trying anything else. He basically said if I don't go to PM, there is nothing he can do to help me. So much for sticking w/no ESI, huh? Looks like that will be the next thing done. I cried so hard b/c my last one was so painful, I couldn't imagine having another. But, guess I will have to if I want to fix this.
Well, I suppose I should venture at some time over to the PM boards, unless anyone thinks this is still a good board for me.
Thank you for all your help and advice.
Melissa

 
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Old 08-25-2004, 10:35 AM   #2
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Re: leaving backs, moving on to PM?(saw doc today)

How is the ESI going to fix this?

 
Old 08-25-2004, 11:13 AM   #3
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Re: leaving backs, moving on to PM?(saw doc today)

I guess it is supposed to shrink the bulge. It didn't work for the bulge I had in my back in 2001, so I don't know. He was suprised I even had the surgery in the first place, like the docs didn't do right by me. BUt, he didn't exactly let me tell him my history either, that that injury was two years old, I did therapy, and the injection. So, for me the surgery was the last resort. He wasn't very "nice" but most specialists I have seen are pretty to the point, and I am not very receptive to that. I expect a little empathy, I guess.

 
Old 08-25-2004, 11:34 AM   #4
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Re: leaving backs, moving on to PM?(saw doc today)

I'm so sorry you're going through this. Why do these docs just give up when the answers aren't easy. Probably because they're not the ones suffering.

I can sympathize with your feelings on ESI's. I've had two, the first helped a little for about 2 weeks. The second made my sciatica 10 times WORSE. I literally was unable to walk after the 2nd one and had surgery a few weeks later. The hospital told me that can be a "side-effect" sometimes.....nobody told me! Anyway, I don't believe in them. They're nothing but a "quick fix" and don't solve the problem. I hope you don't have to have one.

Good luck with PM and I pray you can find some answers and relief soon.

I'm having a setback right now, so am not doing so hot myself.

Paula

 
Old 08-25-2004, 12:24 PM   #5
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Re: leaving backs, moving on to PM?(saw doc today)

I am so frustrated. I have never just started crying in an MD's office before. I fully expected surgery to be brought up, but gosh. I don't know what is going to happen, and I guess I am the kind of person who wants a quick fix, and am scared nothing is going to work, and three to six months from now I will be begging for sx. I don't know. I thought I knew some stuff, now I am not so sure. I don't even know what all my options are! Anyone know what kinds of thing the PM teams do????? Would they end up suggesting a surgery if nothing works? I can't imagine going back to him and telling him nothing worked. I am scared of that

 
Old 08-25-2004, 12:39 PM   #6
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Re: leaving backs, moving on to PM?(saw doc today)

I would suggest you drop by the PM boards most of us over there have similar health problems as you and are quite diversified when it comes to medications and general PM.
There are some good topics on what to expect when you go to a PM and various medications and modalities. PM'ing as a whole is just not about medications it also includes therapy, psychological services, pain courses and various other items which makes the program more complete as a whole. A person can not rely on medication alone nor is it intended to be that way.
Hopefully it won't take you long to find a good pm who doesn't push the injections, many of them do unfortunately, and you get on a good plan to help ease some of that pain you are having.

 
Old 08-25-2004, 01:53 PM   #7
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Re: leaving backs, moving on to PM?(saw doc today)

Mel,
I am sorry that you did not have a god doctor visit. . Do npt be forced into something you do not wamt. Take time to really share your ideas and experiences before starting anything. Ask qiestioms and do research on the options offered. It took ne 10 months to finally decide to go to pain management.My pain was intense. I was not taking narcotic pain meds, nore did I want any.Ultram took the edge off. Narcs made me so sick. They did not take away enough of the pain to put up with the side effects. PM wanted to put me on Neurontin, and I refused. I did take Trileptyl...it did not work. I ended up with a series of three steriod injections into the nerve sheath of my sciatic nerve. They were not helpful. He referred me to a surgeon who said a fusion was necessary. I am seven months post fusion and my pain is gone. People are different, and problems are different. I founf PM to be a place where the staff listened and were empathetic.Yjru were available for qhone questions. Every visit I had to do a pain diary...drawing and rating my pain on a 1 to 10 scale. This was my experience in PM. Prayers and healing, Mary

 
Old 08-25-2004, 02:51 PM   #8
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Re: leaving backs, moving on to PM?(saw doc today)

thanks everyone. I made a post on the pm boards, we'll see how that goes. The only thing that concerns me is working with a large bulge in my neck-I would have to be pretty darn pain free to be sure that I wouldn't have a lot of sick days b/c I wake up with pain. But, that is just borrowing trouble. I will just have to wait and see what the pm people say.

 
Old 08-25-2004, 03:32 PM   #9
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Re: leaving backs, moving on to PM?(saw doc today)

I just got back from reading a little on PM boards, and I am not happy w/what I have read. What is wrong with me??? I don't want to wait months and months to see if a medication or group therapy is going to work! NOT with this pain. I would consider it better if I had some pain that was residual from something, but how is all that stuff going to fix 3 bulges, spinal stenosis AND a tear? Maybe I am just being stupid, I don't know, but I have seen so many people get good help and I wonder why that is not being suggested to me? It is like the doc just washed his hands of me and didn't want to help. He didn't even say he wanted to see me again. I am angry, I want to cry, and I have no idea what is going to happen!!!! Call me stupid, maybe I do just want surgery b/c in my mind it can fix the problem as all my past surgeries have. Maybe I have the wrong mind frame and thinking to do this-I am terrified that in six months I will be begging someone to cut into me b/c the PM did not work, well, I don't have six months to sit and wait for this to work. I know Iam seriously jumping ahead of myself, and getting worked up over a minor thing, but darnit! This is MY body!! I don't understand!! I KNOW what is wrong with me and I KNOW what my options are and I KNOW there are very inevasive procedure for these problems-why did he treat me like I have no idea? gosh, I am so sorry, but I had to get this out.

 
Old 08-25-2004, 03:55 PM   #10
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Re: leaving backs, moving on to PM?(saw doc today)

Mel,
PM's try a lot of different approaches. There are natural ways to ease pain, narcs, and non-narcs. There is PT, Tens, visualization, Prolotherapy, Accupunture, lots of things that they can suggest. Time is one of the biggest factors. If you can make it through the time that it takes for the body to heal itself, and do it with as little intervention as possible, that is the way to go. Narcs is where most people end up. Then it is a game of finding who will prescribe what, and then you become an addict, then what? Only you can weigh "quality of life". This is what my pharmacist told me when I refused to fill a script. I had decided to look around and Prolotherapy worked for me, but it took a lot of money, searching, and pain. It has been over a year since my injury and although I think that I am not in pain, it comes back in fleeting moments when I overdo.

Have you tried a physiatrist? They are highly specilized PT/MDs. They are covered by most insurance companies but hard to get in to see. You can find one in your area through a search engine.

 
Old 08-25-2004, 04:03 PM   #11
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Re: leaving backs, moving on to PM?(saw doc today)

I have not looked into physiatrists. I think I over reacted to the posts I read on PM regarding what is done. I am reading more into what my dr wants me to do, I think... I believe he just wants me to try the ESI. That was the only thing he suggested when I saw him today, no other kinds of treatment. Guess I will just have to wait and see. If that doesn't help, and he doesn't help, I will get a second opinion, maybe.

 
Old 08-25-2004, 04:08 PM   #12
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Re: leaving backs, moving on to PM?(saw doc today)

Mel, it is just my opinion, but I would skip the shot. They are just trying to buy time and rule out/diagnose you with it. I am here to say that I have permanant damage in my shouder from those shots. The doctor admitted it when I turned down the last one that they offered so she sent me back to PT. They have to offer them, but you can educate yourself on the dangers of them and turn them down. It is your right.

 
Old 08-25-2004, 04:09 PM   #13
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Re: leaving backs, moving on to PM?(saw doc today)

whoops, I forgot, that was a physiatrist, a highly educated and trained MD that does PT, not a physciatrist (sp?) who is a shrink.

 
Old 08-25-2004, 04:32 PM   #14
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Re: leaving backs, moving on to PM?(saw doc today)

When I told the doc I didn't want the injection, b/c I had a bad experience, he basically told me there wouldn't be a thing he could do for me. I am going to start a new post, hopefully my last rant. I am just getting upset, again

 
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