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Old 10-07-2004, 03:33 PM   #1
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Goldar HB User
Unhappy I'm scared

My dad took me to the doctor's today and they said that I have scoliosis and that I might have to have surgery. The doctor said that if it's not treated, I will die. I'm very scared and I've never had surgery before. The thought of it really freaks me out. I'm afraid that it'll hurt a lot, and just the thought of someone cutting into me really scares me.

Can anyone please help me?

 
Old 10-07-2004, 05:52 PM   #2
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AlSmith HB User
Re: I'm scared

G, the best thing you can do is educate yourself as much as possible as to what type of surgery your doc says you need. I know for me, knowing what the surgeon was going to do helped relieve some anxiety. Prior to surgery, I had HORRIBLE pain in my leg. The pain from the surgery has been a piece of cake compared to that.

Surgery is never something you want to have but people have back surgery every day and do well. I also think surgery is a better option than death. Now that you have joined this club, we do not want to lose you to anything but a pain free life.

Alan

 
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Old 10-07-2004, 05:57 PM   #3
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Re: I'm scared

you poor thing. first of the doctor really said youl will die if no surgery? how old are you. for you dont say that to a child
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Old 10-07-2004, 06:00 PM   #4
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Re: I'm scared

I have never heard of anyone dying from Scoliosis. It is a curvature of the spine. What reasons did they give you?

If you were born with it, then you might never have to do anything about it because your body adapts to it. If it is newly acquired then you need to see a PT and see if they can work on it.

 
Old 10-07-2004, 06:07 PM   #5
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Re: I'm scared

Lynns, I'm 18, but that is only how old I am. I don't think that I have the mind of an 18 year old, though.

Betty, the doctor said it would kill me if it got so bad that it crushed my lungs and I wouldn't be able to breathe. This scared me a lot. I can't seem to get my mind off of it.

Last edited by Goldar; 10-07-2004 at 06:08 PM.

 
Old 10-07-2004, 06:11 PM   #6
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injured betty HB User
Re: I'm scared

I am trying to picture this, a twisted back crushing lungs. Can't seem to do that. You might want to seek another opinion.

 
Old 10-07-2004, 06:18 PM   #7
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Re: I'm scared

My dad said that he would take me to another doctor because he didn't like the way this guy talked to me. I cried for a long time on the way home and a few hours after I got home because this was bothering me so much. Maybe if I do have to have surgery, it won't be as bad as I think it will be.

 
Old 10-07-2004, 10:12 PM   #8
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mel1977 HB User
Re: I'm scared

I am guessing the curvature is pretty severe already?? My mom has scoliosis, and is just fine. But, I am no doc and all cases are different, but I too never heard of anyone dying from that.

 
Old 10-07-2004, 10:29 PM   #9
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Re: I'm scared

You poor thing . I think you've been mislead. I strongly urge you to get another opinion. Sciliosis is a difficult thing to live with but I've never heard of anybody dying from it. Even if it comes down to surgery, you will be okay. Like somebody else mentioned, educate yourself on your possible surgery procedure. I know for myself before I started having all my health problems I was terrified of hospitals, needles, blood, surgery and so on. But once I forced myself to get educated, I was able to deal with it with a lot better. Once you start looking into it and educating yourself, you will be surprised at what you learn and how you're able to deal with the situation. I have not had my surgery, and yes of course I am scared but I know that it will be okay.
You've come to the right place, whenever you need to talk or need advice or need to vent, come here. THis board is a god send. There are so many people that know what you are going through and are here to help. Please, please get yourself a second opinion from someone who knows what they are talking about. Any good doctor would not have treated you like that. There are a lot of really good websites out there that will teach you a lot. Take care of yourself and please let me know what you decide to do and if you do see another doctor (spine "specialist"), let me know how it goes. I wish you the best of luck. Good luck. Kristy.

 
Old 10-07-2004, 10:56 PM   #10
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Re: I'm scared

I know how it feels to leave the dr crying. When I saw my ortho for the first time, my husband wanted to hit him. I cried in the office and the whole way home. There is no reason we should ever be treated with disrespect, or like our lives aren't important. So, I promptly found a new dr, and am much much happier with him. Start looking around and see who you could see for another opinion. Good luck, I will be thinking about you!

 
Old 10-08-2004, 05:20 AM   #11
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Re: I'm scared

I have Scoliosis and had fusion for it when I was 17. They told me that if I didn't get the surgery, eventually it will interfere with my heart and lungs but that's not something that happens over night. Meaning, get the surgery now so you don't have to deal with that later. What degree is your curve? Mine was about 50 something and that is the point where surgery is usually advised. It will most likely progess into that is probably what he means, even then, if it did come to that to start happening it can still be fixed. You aren't going to up and die from it, if he did say it this way, I think he is awfully rude, as if your not dealing with enough. Don't be afraid of fusion for this, it is very common. Mine went wonderfully, I didn't have problems or complications from the surgery at all. Good luck to you and keep us posted!

Christina

 
Old 10-08-2004, 09:39 PM   #12
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Re: I'm scared

Type Scolliosis and death from, in the search engine, I use Google, and see what comes up. There used to be a school of thought that it could kill you but that was in the dark ages. There is a lot of new information on it. Dying from Scolliosis is just not an option in our modern times. I would tell the doc that he is a bully and a nut case and then go elsewhere.

 
Old 10-24-2004, 11:23 AM   #13
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Lightbulb Re: I'm scared

I used to work for Vocational Rehab, and like Mistina said, if the curvature becomes so severe it could crush the heart and lungs. I had a client that had to have the surgery on her back to prevent that. She came through the surgery with flying colors. I think that you have just been to a doctor that doesn't have a very good bedside manner. People don't have to die in this day and age because of the surgery to prevent the crushing of organs...but scolosis can progress.....Tell your dad to take you to another specialist, surgeron and keep going until you find one that your family is comfortable with. You have plenty of time. It's not something that will kill you overnight in most cases, depending on the degree of the curvature. You should have time to seek out several other surgerons and find one who you can feel comfortable with. This doctor seems like he was crass and rude, and talked down to you, or not at all to you (the patient) and only to your father....and that's poor ethics in my mind. Good luck sweetie, and chin up...the surgery will be fine....It has a HIGH rate of success.

I'll be praying for ya! Let us know how it goes.

Becky

 
Old 10-24-2004, 04:58 PM   #14
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Re: I'm scared

Believe me, you need to see a different doctor. Any doctor who would say such a thing is nuts! Nor have I ever heard of dying from scoliosis, though I suppose it is possible. However, since you are breathing easily, I would say you are a long, long way from it. Please, insist on another opinion by a good orthopedist who won't try to get you into surgery with such drastic tales.
Good luck, honey.

Carol
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Old 11-10-2004, 02:48 PM   #15
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Re: I'm scared

I'm going to see a specialist on January 7th. My dad read about this guy, and he's one of the best ones, and that he only does surgery if he thinks that it's absolutely necessary.

I'm not very scared anymore. Getting surgery done is a lot better than dying, and I get to stay out of school for a while, which means that I'll get more time to play video games and watch my anime DVDs.

 
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