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lorieann33 10-26-2004 07:22 AM

Hospital for Special surgeries
 
Hello everyone...I have an appointment to be seen by a Neuroloigist January 15th at the Rehab clinic at the Hospital for Special surgeries.
Just wondering if anyone out there knows anything about this place (in Manhattan) (nyc) I would appreciate hearing your experiences with this place.

This is actually my third attempt at getting a diagnosis...I have seen two docs and gotten two different diagnosis and I still havent recieved any relief for my pain (one doc perscribed celebrex which i had a horrible reaction to and one doc had me fitted for a milwaulkee brace)
one said that my ribs are rotating and he said in five years if left untreated i would be needing assistance with breathing...the other said that guy was crazy and gave me xrays and told me that i was fine.

i'm just surprised that they could both be so opposite each other and I am only looking for pain relief.

I am tired of hurting all the time...and it has definitely cut into my normal routine(cant sit too long cant stand too long hurts walking distances...)
I am 33 years old and have five children.
The second doc gave me a diagnosis of shumermanns disease...and the first said it was scoliosis....i dont know what to do in the meanwhile...January is a long way off and it hurts so much i am in tears just sitting here....

any info you can give about HSS i would apperciate.

thanks
Lorieann in Brooklyn :wave:

onthemendnow 10-26-2004 11:25 AM

Re: Hospital for Special surgeries
 
I don't have info about the Hosp for SS. However, since you're willing to go into NYC I wanted to let you know that I had my surgery at the Hospital for Joint Diseases in their Spine Center. I know several people who've had surgery there, all with very good outcomes.

injured betty 10-26-2004 11:32 AM

Re: Hospital for Special surgeries
 
lori: See if you can find the book, The Gift That Nobody Wants, on line, or at a used book store. It deals with pain and how to live with it. It sounds like you are having a hard time and are anxious. I am not suggesting living with pain, but inbetween, when you need answers, it can be a hard time. Just reading this book took my mind off of my pain for the time that I was reading it and the worrying about if I would find a solution. It is a great read.

It is filled with various ways to deal with pain that most of us have never thought of or have and didn't think would work. It also tells about people who have no pain receptors and what happens to them. It explains pain.

A teaching hospital or one where they do only surgeries is a great place to get one done. I was reading that docs going into Neuro or Ortho can now specialize and go on to become a specialist in spine surgery and combine Neuro and ortho into one. There is no specific board to certify them but they are working on it. If I were to have surgery, I would want one of those. One that had years and years of training in just spine/nerves.

good luck :)

onthemendnow 10-26-2004 12:53 PM

Re: Hospital for Special surgeries
 
I agree strongly with Betty about teaching hospitals. HJD is affiliated with NYU. Spine Center does only spines, and the dr. who did my surgery is the Director -- lots of experience.

tophatter 10-26-2004 06:17 PM

Re: Hospital for Special surgeries
 
Lori, The hospital you mentioned is an excellant hospital & so is Hospital for Joint D both in NYC. At the hospital for special surgery Dr. Frank Cammisa is the chief of spinal surgery and is supposed to be excellant. The other hospital HJJ also has excellant doctors that specialize in spinal problems. Do a seach and see who takes your ins. but you will get good advise from any of the 2 hospital affiliates. Good Luck

BobiM 10-26-2004 06:34 PM

Re: Hospital for Special surgeries
 
[QUOTE=lorieann33]Hello everyone...I have an appointment to be seen by a Neuroloigist January 15th at the Rehab clinic at the Hospital for Special surgeries.
Just wondering if anyone out there knows anything about this place (in Manhattan) (nyc) I would appreciate hearing your experiences with this place.>>


It is a top rated hospital.

Bobi

khoff 10-27-2004 01:48 PM

Re: Hospital for Special surgeries
 
LoriAnn -

For what it is worth, HSS is one the 5 best hospitals in the U.S. according to USNews best rated hospitals. This is where the top 5 include the mayo clinic, John Hopkins, and Massachussetes General.
Also according to specific ranking by specialty, HSS is second in orthopedics. Your going to one of the best.

Ken

Mistina 10-27-2004 03:57 PM

Re: Hospital for Special surgeries
 
I went to the hospital for Special Surgery over the summer due to major problems and I have had a previous scoliosis fusion at age 17. I saw Boachie, he is a genius, I mean that. I know of many people who have traveled from all over the US to see him. I recommend him definetely!

lorieann33 10-28-2004 07:18 AM

Re: Hospital for Special surgeries
 
thanks all to those who replied...i feel much more confident about going here and the wait seems much more bearable. It will be nice to recieve a diagnosis i can trust...its very frusterating to recieve multiple diagnosis'.
thanks so much for taking the time to respond i appreciate it much more than u know

lorieann

shg 10-28-2004 08:24 AM

Re: Hospital for Special surgeries
 
lorianne33,

I do know the hospital for ss and it is a great institution. I met with a surgeon there for my back however, did not feel comfortable as I did not like the atmosphere. That in no way means they are not amazing as they are. For me, a surgeon, nerologist, etc has to be personable because the way I look at it is, if I chose them, it's not a short term thing. If you want a spinal specialist in NYC, I have one and he is incredible. In fact, he performed 3 of my surgeries and I have referred many people to him who love him. In fact, I've referred people as far away as Binghamton and Phili and they have had some of the most complex cases ever scene and he has helped them all.

shg

BobiM 10-28-2004 10:30 AM

Re: Hospital for Special surgeries
 
[QUOTE=shg]lorianne33,

I do know the hospital for ss and it is a great institution. I met with a surgeon there for my back however, did not feel comfortable as I did not like the atmosphere. That in no way means they are not amazing as they are. For me, a surgeon, nerologist, etc has to be personable because the way I look at it is, if I chose them, it's not a short term thing. If you want a spinal specialist in NYC, I have one and he is incredible. In fact, he performed 3 of my surgeries and I have referred many people to him who love him. In fact, I've referred people as far away as Binghamton and Phili and they have had some of the most complex cases ever scene and he has helped them all.

shg[/QUOTE]

Who is your surgeon in NYC?

shg 10-28-2004 03:23 PM

Re: Hospital for Special surgeries
 
franco cerabona at st. vincent's hospital in manhattan. he's the head of spinal surgery. also, there's another doctor who the doctor's go to and who you go to when you've lost all hope, his name is patrick o'leary and he used to be with ss but is now at lenox hill...he's who the cops and fireman also go to. my doc trained under him.

motek875 10-28-2004 05:24 PM

Re: Hospital for Special surgeries
 
Lorieann,
I am from Brooklyn too, I used Paul Cooper as my neurosurgeon, he is the head of Spinal Surgery at NYU and he was amazing. Also at NYU and at Joint Diseases is Dr. Thomas Errico, he is an Orthopedist. If you want to stay in Brooklyn, Jean-Pierre Farcy is at Maimonides and at Joint Diseases. He is also an Orthopedist. Good luck.


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