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Old 12-17-2004, 04:56 AM   #1
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cleve60 HB User
8mm nerve root sheath cyst

Hello. I just moved from Minnestoa to Cleveland last October. I have been diagnoised with a 8 mm nerve root sheath cyst and have no idea what to expect or even what to do about this new disorder. Has anyone been through this ? I have lots of pain if I sit to long, stand to long or climb to many stairs. I did bring my MRI films and medical reports with me from Minnesota. I have been to one dr but this was not his field. I intend to go to Metrohealth since I do not have medical insurance due to lay off at my job. I do receive unemployment but no insurance. I do have a little bit of a drop foot on my right foot. Mostly agravating stage with that right now. Doesnt happen alot as of yet . Mainly if I do alot of walking. I also have Degenerative Disc Desease, herniated disc on my C4/C5 area of my neck so that makes a double whammy on my spinal cord. Along with all this I have type 2 diabetes and COPD. Both diabetes and COPD are not severe (yet) so I am able to deal with those two things. All this and only 51 years old. Can anyone walk me through this since I honestly do not know what to expect with the 8mm nerve root sheath cyst or the herniated disc in my neck. I dont know what to ask the doctor or even what ot expect from all this. Please help fill me in on anything you can help me with on this Thanks

 
Old 12-19-2004, 01:29 AM   #2
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Brenygirl HB User
Re: 8mm nerve root sheath cyst

I am sorry for the pain you are in. I have not experienced this, however I would talk to the doctor that you are seeing and ask about it. Ask the doc what to expect from this. You can ask what the treatment options are. Make sure you take your MRI with you to the appointment. Your doctor can best tell you what to expect. If you think of any questions before the appointment, make sure you right them down. It is easy once you get to the appointment to forget what you wanted to ask.

Good Luck & Keep us posted,
Breny

 
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Old 12-19-2004, 03:38 AM   #3
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beachgirl01 HB User
Re: 8mm nerve root sheath cyst

Hi there,
That is a lot to deal with at one time. And the worst of it is not having the coverage to be able to go ahead and take care of these problems, trust me I know your situation all too well All I can say is that the best thing to do would be to get a referral to a spine specialist and get a recent MRI. Try to find a good ortho or neurosurgeon that has a lot of experience that's not going to screw you around. You need to be pro-active, I know it's tough but it's what ultimatly has to be done. I am here for support if you need it and I would love to hear your process so please keep me posted. I hope this helped a bit. Take care. Kristy.

 
Old 12-19-2004, 12:12 PM   #4
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cleve60 HB User
Re: 8mm nerve root sheath cyst

Thanks Kristyg and Brenygirl. I took your advise and wrote down a couple of questions I came up with as you suggested. Its hard to get a physician to help me because I dont have the insurance but hopefully I will find one that will not think of total money and remember why he became a doctor in the first place and hope it was so he could help people I will keep you up to date. Thanks so very much for your input. I really appreciated it. I know nothing about this stuff and its hard for my husband or anyone who knows me to realize the pain I am in so I just forge ahead as if nothing is wrong and deal with the pain myself. Ya know how folks can roll their eyes when you tell them its a bad day for you haha. So I take a few Ibuprophin and go about my busiess. I do get upse though lol

 
Old 12-21-2004, 12:50 AM   #5
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Brenygirl HB User
Re: 8mm nerve root sheath cyst

Oh I know how you feel & all about the eye rolling. Check into insurance thru you state. I am on it & pay a small premium for it (125/mo) because my husband is on SSDI & my job does not offer insurance. It could well be worth looking into. Just call your county social service office to find out about it. Take care & do let us know how you are doing. Somedays just reading the posts helps take my mind off the pain I am in, if only for a short while.

Happy Holidays!
Breny

 
Old 12-23-2004, 05:24 AM   #6
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cleve60 HB User
Wink Re: 8mm nerve root sheath cyst

Thanks for the info on the medical help. I took your advice and was so surprised to know there were programs out there. I thought they were all for people with children. I have two sons but they are married and on their own. Office visit only cost me $ 10.00 so trust me I was happy. lol.. My new Dr. took all sorts of lab work and gave me new meds for my copd which is really helping. I can breath really good now. My neck is really hurting today. Think the weather has something to do with it.Really cold with snow and freezing rain here in Cleveland today. My doc wanted to take a day to look at my medical file since I only gave it to her the day of my visit. I brought it with me from Minnesota so she didnt have a chance to look at it really good. My next visit will be more in depth so will know what she wants to do next visit in a couple weeks. You guys have been so wonderful with the info helping me in this situation. Its hard when at 51 - I am diabetic (Type2) have COPD and degenerative disc desease on top of herniated disc in my neck and the cyst in my spin. Who ever said we grow old gracefully lied haha. I hope you all have the best holiday ever. Will keep you all updated. thanks again and Merry Christmas

 
Old 12-23-2004, 01:55 PM   #7
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CupCaked HB User
Re: 8mm nerve root sheath cyst

You poor thing! I don't know much about cervical problems and after my recent lumbar surgery, I hope never to have to learn, but I DID have a synovial cyst of about one and a half centimeters between L4/L5. It was pressing on my nerve resulting in pain. I also had two herniated dics, vertabral slippage (or what is called spondylolisthesis) and DDD. I had fusion surgery on October 25th and I'm doing very well.

I think that because of your cyst that you may be asked to consider surgery. My regular ortho doctor, after I had my x-rays and MRIs, and was diagnosed, said "don't screw around with this!", so I had to find myself a spine specialist. I can't emphasis this enough, to talk to a spine specialist who is a neuro/ortho surgeon.

Good luck to you and happy holidays.

 
Old 06-30-2005, 11:04 AM   #8
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cleve60 HB User
Re: 8mm nerve root sheath cyst

Hello everyone. I havent been on much lately but thought I would give you an update. I have a job now where I have insurance so I will be able to start getting things rolling on taking care of my problems. As I mentioned before I have an 8mm nerve root sheath cyst in my L5 /S1 region and also a herniated disc in my neck. A long with DDD and arthritis. Yesterday I went shopping with my mother and had foot and leg cramps in both feet that lasted almost a half hour. I couldnt walk. I had to try to walk it off but the pain was unbareable and then I tried to just lean over some boxes to try to get the pain to go away. Nothing helped. The spasm was the worst I ever had. Usually they last only a few minutes but this time I was in tears and almost called an ambulance. I am having my dr set up an appt for another MRI so i can make an appt with a nerologist. Thought I would fill you all in.

 
Old 06-30-2005, 02:18 PM   #9
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nsmatch HB User
Re: 8mm nerve root sheath cyst

Nerve root sheaths, often mean juxtafacet cyst - look that up in google, and are fairly common things, that can cause pain down one leg. Having cramps in both feet, is perhaps a sign of a vascular (blood vessel problem).

Get a new MRI, take an antiinflammatory medication, like advil, and start writing down specifically every symptom you have and where exactly it located, e.g. the pain went down the back of the leg into the big toe. The numbness is on the front part of my shin only. The cramp was in my quads only. That type of stuff really helps your doctor/surgeon determine where and what is going on.

Best of luck.

 
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