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Old 01-22-2005, 07:26 AM   #1
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toelle HB User
Unhappy Had Electronic Stimulator removed

I had the electronic stimulator taken out on Thurs. It just did'nt cover my pain even though I was feeling the stimulation. I dont' know what to do from here. My pain Dr. says he can no longer do anything for me and suggests I see a nerologist. It's not like I have to take pain meds every day. Some days the pain is bearable. But today we are expecting a cold front and that's when the pain becomes unbearable. I just HAD to take a Lortab today to be able to function. I'm so afraid that I'm going to have trouble getting the meds I need to stay reletively pain free. My primary Dr. is no help at all and basically thinks my pain is made worse by my emotional state. Well she ought to try being in pain all the time and see what her emotional state is! Tonight I'm having friends over for a belated birthday party and the only way I can get through it is with drugs. I really try to take as little of them as I can get by with but I just cant' make it all the time without them. Should I find a new primary care Dr? Will the pain Dr. sends me to a nerulogist to help manage my pain? Have any of you exhausted all avenues of pain management with out the use of pain meds? What happens now? Toelle

 
Old 01-22-2005, 08:20 AM   #2
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myspine HB User
Re: Had Electronic Stimulator removed

Oh my gosh Toelle
Are you no longer being seen by you PM doc. I do not understand .. can they just tell you if you do not do this then it is nothing else and to go on your way! Especially if you do not even need meds every day.. That makes me so mad. Of course your mental state affects your pain because pain affects your mental state don't they know that YET!!!!! You get out there and get a new doctor. Do not let them make you suffer. Someone will listen they have to. There are compassionate doctors out there I have to believe that for you and for all of us. I am so very sorry for what you are going through. I truly am sitting here with my heart hurting for you because I KNOW what you are going through. Maybe not the same exact situation, but I know the SCS situation is going to come up for me at my visit. Please keep posting so everyone can atleast tell you we are here for you and do not let 1 or 2 doctors dictate how you will live the rest of your life and tell you it will have to be in pain
Happy belated Birthday and Good luck to you
shelley

Last edited by myspine; 01-22-2005 at 08:21 AM.

 
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Old 01-22-2005, 10:33 AM   #3
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jdlfmc HB User
Re: Had Electronic Stimulator removed

Toelle, Sorry to hear that it has come to this, I'm having the SCS implanted soon, I have wide range pain but found in the trial it was great to have relief from any of the pain, I have although been on meds for close to 6 yrs, I really don't know where you can go from here if your not in pain all the time I don't believe they'll do the pain pump.
A dr can release you at anythime when threy feel as if there is nothing more they can do for you.
I recommend you try to find a new PM dr that will presscibe your meds since you don't need them all the time it shouldn't be to hard to do.Though I knwoin places they are few and far between maybe even a new primary dr is in order I have a PM but my GP is the one that writes all my scripts .
I wish you the best in your serach.Linda

 
Old 01-22-2005, 11:29 AM   #4
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StarAngel3 HB User
Unhappy Re: Had Electronic Stimulator removed

Toelle,
That doctor is a jerk! You tried what he wanted, and know he doesn't even want to give you any pain medicine, after you just let him do a very expensive procedure on you, what an ungreatful man. I with the others, go find another pain mangagement doctor, and seeing the neurologist might not be a bad idea, either..Good to see both, if you can afford it.. I am sorry they are treating you so badly.But choose your own doctors don't let that doctor pick any doctors for you...Hugs..StarAngel..

 
Old 01-22-2005, 02:47 PM   #5
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myspine HB User
Re: Had Electronic Stimulator removed

jdlmc
Hi Linda
Can you tell me about your trial with the SCS...any and all info would be great . You say you have a wide pain range. can you explain? I think my doc will be talking with me about it soon and I want to know all the info I can. I am on a multitude of meds now, with little relief How did the trial work and what % relief did you get. Is it noticeable to others? Is it bulky? Is it a great difference in pain relief for you? Anything you can offer would be great.....
Thanks
shelley

 
Old 01-22-2005, 06:00 PM   #6
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carol632 HB User
Re: Had Electronic Stimulator removed

I'm sorry to hear that, toelle. I was really hoping for success for you. I don't understand why your pm hasn't suggested the pump if you don't get relief from the scs. Perhaps a good neurosurgeon or your own spine specialist might consider that. I have one and it is the best thing I ever did for me. Do you have nerve pain? If I were you, I would at least ask one of the dr's involved with your care and see what the response is.

Good luck.

Carol
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Old 01-23-2005, 05:45 AM   #7
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jdlfmc HB User
Re: Had Electronic Stimulator removed

Shelley, I'll be happy to tell you I don't want to jump Toelle's thread so if you mind please let me know okay !!
I have S1 nerve damage and have had lower back and leg pain for 6yrs that meds haven't really helped, I also have cord comp. in the thoracic spine that is not operable and bulging dissc and spondyolois in the neck well the list goes on anyway I had the trial for one week and it's really kind of hard to tell during the trial it isn't real stable but anyway I got enough pain relief and was better then I have been since this happened so I have decieded to go with it, I'd rather get as much relief as possible and know that I haven't hope of finding it any other way right now.I have to say I hated having to have the trial taken out .
Please feel free to ask me any questions you have and I'll answer them nest I can.
Linda

 
Old 01-24-2005, 05:20 AM   #8
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Re: Had Electronic Stimulator removed

I am trying to figure out just why this doc implanted the stimulator in someone who is not having severe pain on a 24/7 basis.This is the criteria for placement as stated by the manufacturer.It just seems a little too much for the type of pain you were having.What other things have you tried?I think i would move onto another pain doc.I know after my spinal cord surgery i was having much more pain than I was before the surgery.My NS wanted to go right to the stimulator without even having really tried anything else first.I was rather suprised that he wanted to go that drastic right away and told him that I would really like to explore other options before going that route.I knew I had made the right decision when I went to the medtronics web site(the manufacturer)and it states right on it that the stimulator should only be used as a last resort after trying many other modalities without success.I would like to really offer some good sugestions for you but I need a little more info from you first.what exactly is your pain coming from?How severe is it on a daily basis? and the biggie here,what other things have you tried.If you have tried meds, what were they?Thanks,Marcia
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Old 01-25-2005, 09:19 AM   #9
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toelle HB User
Re: Had Electronic Stimulator removed

To any of you who are considering the electronic pain stimulator I will relate what my experience was with it. For me it just did'nt get rid of my pain. At first I thought it was working but then when a weather front came in my pain got much worse and I had to continue taking pain meds. The pain Dr. and I both decided this was not for me. The proceedure itself is simple enough. I went in as an outpatient surgery and they gave me light sedation and the whole surgery took about 20 minutes. When you wake up they have a lead coming out of your back hooked up to the stimulator device that you can adjust to where it's comfortable to you. They gave me 9 days to decide if I wanted to go ahead with the final implant. I dont know where I'm going from here; the pain Dr. says he cant do anything else for me and is possibly going to send me to a Nerulogist. I'll keep you all posted on my progress. I just hope someone will be prescribing me my pain meds because at times the pain is just unbearable. Right now I have about 1 months supply left. Toelle

Last edited by toelle; 01-25-2005 at 09:21 AM.

 
Old 01-25-2005, 10:11 AM   #10
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myspine HB User
Re: Had Electronic Stimulator removed

I am so sorry you did not get the relief you need. Keep looking though and you will find it. I really have to believe that I think your doc should be able to prescribe you meds til you find someone , but what do i know . Please keep posting Toelle so we all know how you are doing and know we are all here for you!!
shelley

 
Old 01-25-2005, 11:24 AM   #11
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jdlfmc HB User
Re: Had Electronic Stimulator removed

Toelle, I'm really sorry this didn't work for you and hope you find relief soon.
I'd like to add for any others thinking of trying this my dr informed me that only 1 out 5 will get the implant and during the trial it is rather hard to judge as it is not as stable as when it is implanted, also when it is implanted there isn't any wires or such leading out. Also it is rare that a person will be able to stop pain meds after the implant but hopefully be able to decrease.
As for with my self among much more I have damage to the S1 nerve that pain meds don't touch I also have much pain with the thoracic and little in the cervical for as some one like myself that is in pain 24/7 going on 6yrs with the lower back and legs it is a great relief to have any reduction in pain.
Every one is different and it depends on your need as to rather this can work but I have been to so many drs and through so many test and confirmed that my condition is not operable that this or the pain pump are my only alternatives and the pain meds are just not that good at touching nerve pain.
As I said Toelle I'm really sorry this didn't work for you but hope that all can keep a open-mind to know that everyone is different and when suffering keep an open mind, I went in with a very negative outlook so I was much amazed at the results I got.
Linda

Last edited by jdlfmc; 01-25-2005 at 11:24 AM.

 
Old 01-25-2005, 11:44 AM   #12
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TexasWildRose04 HB User
Re: Had Electronic Stimulator removed

Hi All..... I am actually going to my second visit with the in house Psychologist that my Pain Management Doctor has on staff at his office to help people with chronic pain...This is what this guy specializes in.. and has for over 20 years.....the one thing he told me is that your mental state can make your pain worse...from being tense and this and that..... so he is going to work with me to try and help me find ways of basically trying to get my mind off the pain...help me with ways to mentally and physically relax.... and also he is helping me work with my depression and such from having the on going pain so that perhaps my pain will ease up some.... he has said he wants to see me right now at minimum 10 times.... once a week for 10 weeks... then see how things are and go from there.... Toelle this could be something you could check into as well....Hope things get better for you.. and everyone else out there...

Take Care..

 
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