I just found this board yesterday and am so excited. I wanted to “tell my story” before I started posting so that everyone knows who I am.
In 1999 I was stop at a red light and rear ended by a drunk driver. My car was half its original size after the accident. I know that there was something watching over me that night because the only area in my car left intact was the driver’s seat. The engine block stopped inches before coming into my lap. All in all I thought I was going to be fine, I was 19 and had my whole life ahead of me. Little did I know that I didn’t die that night but the life that I had lived was over.
After tests and tests and more tests, (accident to surgery was a little over 2 years) and countless doctors telling me that I was crazy I was referred to a Pain Mgt doc. luckily he decided to perform a disco gram to confirm that there was nothing “fixable”. The disco gram showed that there was a tear at L5-S1 that was causing a significant leak. The MRI never showed any hint of this, the disc was slightly bulged but not enough for the drs to be concerned. I underwent a full fusion with bone graft (from my hip) and within weeks was doing significantly better. In fact within a year I was 95% pain free, I thought I had finally made God happy and he had rewarded me.
I refer to those 2 years as the dark years. And they were, I was depressed, angry, every emotion in the book. My boyfriend of the time (my husband now) was insane to have stayed with me, but luckily he did. By the time someone told me I was a candidate for surgery I was ready to show up with bells on.
Fast forward to today….
6 months ago I began to experience an increase in pain and symptoms. Luckily this time I was armed with all the information from the last time. I knew what test to push for and how hard to push. At the end of December we received all the results, and they are basically the same as last time. L4-L5 has slight bulge but is torn. And here is the kicker my original fusion at L5-S1 never fused. I have been walking around on a cage for 5 years with virtually no pain. The disco gram confirmed that there is pain in 5-1 so the thought is that possibly something is loose that can’t be detected on the MRI.
So I am waiting to get a surgery date for a 360 fusion of 4-5 and a revision of 5-1. I have good and bad days both emotionally and physically. I am on a high level of opiates and have all the side affects associated with them. Overall I feel that I am dealing better this time than last, mostly because I am not so angry. But I am more depressed.
On top of this mess my life is one bucket of stress. I am no longer working due to my back. In the past 6 months I have had 2 deaths in my family, one of which was very traumatic. My sister has terminal cancer and my father is also dying. My husband and I moved to Boston for his job 3 years ago, all my family and friends live in OKC which means I have a very small support group available to me.
My hope with this board is to not only give support and advice that I have learned over the years but to receive support that only someone in the same position can give.
I hope to hear from all of you and form fast friendships!