It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Back Problems Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-05-2005, 09:15 AM   #1
Senior Veteran
(female)
 
Join Date: Apr 2004
Location: Fl
Posts: 571
Bionicwan HB User
former member w/failed fusion

Hi,

Haven't posted here in a VERY long time. Just dx'd w/failed fusion L4, L5, S1.

Has any one been where I am now? Would love some insight, info & 1st hand experience
__________________
Lami L4 5 S1
Fusion L4 5 S1
Neuropathy Fibro Arachnoiditis
Pseudoarthrosis
awaiting fusion redo

 
Old 02-05-2005, 03:22 PM   #2
Senior Member
(male)
 
Join Date: Jul 2004
Location: wagga wagga, australia
Posts: 157
rachelmc HB User
Re: former member w/failed fusion

hi bionicwitch, i am right with you i dont know how long it has been scince you had your op, what is your pain like?
It has been nearly 2 years for me and im in more pain than i ever was (old pain plus new)
What does your neuro surgeon have to say? have you consulted new ones?
I really cant offer you any advice as i am stuck between a rock and a hard place at the moment not knowing where to go or what to do either.
I have been told that further surgery at the moment will not benifit me at the moment i have nerve damage that is unfixable and will keep deteriorating .
But i am here to listen to you and offer support.
rachelmc

 
Sponsors Lightbulb
   
Old 02-05-2005, 04:29 PM   #3
Senior Veteran
(female)
 
Join Date: Oct 2004
Location: Ft. Worth
Posts: 521
myspine HB User
Re: former member w/failed fusion

Hi ya'll
I had a fusion in June. The fusion itself was good but the nerve damage and such is so bad that I am in the boat with all, you know the one that came without the paddle I went yesterday for a consult for the SCS and am waiting for approval from insurance for the trial. I can't wait to get there> I know it is not for everyone and may not be for me, but I will not know til I try it . I have three little kids and after 12 years, I guess I can I can keep trying.
Good luck to ya'll
shelley

 
Old 02-05-2005, 04:35 PM   #4
Senior Member
(male)
 
Join Date: Jul 2004
Location: wagga wagga, australia
Posts: 157
rachelmc HB User
Re: former member w/failed fusion

hi shelly can u please tell me what scs is please as im from australia and i dont think i have heard of that.
im about will ing to try anything as like you i have 3 little kids.
thanks rachel

 
Old 02-05-2005, 06:20 PM   #5
Senior Veteran
(female)
 
Join Date: Feb 2004
Location: Pennsylvania
Posts: 593
Jessie1 HB User
Re: former member w/failed fusion

Hi Bionicwitch! I'm sorry to hear that your fusion failed. I'm not sure what they do after that. I know of a couple of people who have had the surgery again, and have fused well after the second surgery. I think each person is different though, and you should definitely talk to your doctor and get a second/third opinion. Good luck!

Jessie

 
Old 02-05-2005, 06:28 PM   #6
Junior Member
(female)
 
Join Date: Dec 2004
Posts: 19
aikidoka96 HB User
Re: former member w/failed fusion

Hi,
This is the first time that I am posting to this board. I have been lurking since I became a member. I was recently told that the fusion ( L4 - S1) that I had in 1983 never took on the right side. The part that bothers me is that I had a decompression lami in Oct. '98 and March 2004 and nothing was EVER mentioned. Go figure!! I am presently being followed by 2 pain management docs.One of them has been following me prior to my last surgery and the other will be putting in a SCS,soon,I HOPE. The SCS doc went over to India to help the tsunami disaster victims. He did put in the temp. SCS in Dec and I had VERY GOOD results. I went to the shrink mid January for the eval for the insurance company and now am awaiting my "due date." I am only 45 y/o and have lived with back pain since I was 12. I am hoping that this SCS works. Should it not; then my last alternative is the implantable morphine pump.
I look forward to the support that I can give as well as receive.

Marianne

BTW, I know that many of you ask about med success and failures but I haven't read anything about alternatives being suggested in lieu of meds(reiki,acupuncture,massage therapy,guided imagery,deep breathing,meditation,Tai chi,TENS units,prayer,etc...). Meds are not the only answer when you have to be concerned with liver and or kidney damage. Alternatives can be the solution. Just a thought...

 
Old 02-05-2005, 06:33 PM   #7
Senior Veteran
(female)
 
Join Date: Jul 2004
Location: usa
Posts: 2,943
mel1977 HB User
Re: former member w/failed fusion

I am so sorry about the failed fusion. I am healing from my first one (l4-S1) just two months post op and hope I do okay. I am 27 and I'd really prefer not to have another! I wish you the best and hope you all get some kind of pain relief.

 
Old 02-05-2005, 08:44 PM   #8
Senior Veteran
(female)
 
Join Date: Oct 2004
Location: Ft. Worth
Posts: 521
myspine HB User
Re: former member w/failed fusion

Hi Rachel
the SCS is the spinal cord stimulator, it is a implant that is put in that is sort of like a internal TENS unit, it uses electrical impulses to fool the brain about the pain, it is mainly for nerve pain in the limbs, I am hoping it will help the hip and leg pain I am having. I am 34 and really hoping for a difference.
shelley

 
Old 02-05-2005, 10:39 PM   #9
Inactive
(female)
 
Join Date: Feb 2004
Posts: 2,139
injured betty HB User
Re: former member w/failed fusion

It is sad to hear that you had a failed fusion but it happens. Did they use bone paste or an actual bone? If they used bone paste, then you still have a good chance of getting it done again, this time using a piece of your illiac. They usually save this option for cases such as this.

The first try, they usually use your own bone marrow, mixed with BMP, and then wait and maybe a piece of cadaver bone. If this fails, they go in and take a piece of your illiac and use that. That is the gold standard in fusions, but they hold out on it until the end.

I saw a rating system on fusions. If they only do cadaver, your chances of fusion are very low. If they use your own marrow and mix it with BMP and cadaver the chances are much better, but if they go all out and use your own bone, then fusion usually works.

Let us know which method they used.

take care,

 
Old 02-06-2005, 12:34 AM   #10
Senior Veteran
(female)
 
Join Date: Jul 2004
Location: usa
Posts: 2,943
mel1977 HB User
Re: former member w/failed fusion

I had cadaver and am doing very well. I think it would depend on the individual person, wouldn't it??

 
Old 02-06-2005, 01:27 AM   #11
Senior Member
(female)
 
Join Date: Jan 2005
Posts: 231
misery HB User
Re: former member w/failed fusion

Hi,I hate to say it but welcome back.I'm so very sorry to hear that your fusion failed.It just isn't any fun is it.
I do know exactly how you feel as I am a failed fusion also in the same location.I have been dealing with mine for over 20yrs, but the last 3 have been awful!
I do hope that we will be able to offer you some comfort and support.Hang in there at some piont something just has to get better,we all just have to have HOPE!At least that is what I try to keep telling myself.Take care,Heather

 
Old 02-06-2005, 04:50 AM   #12
Senior Veteran
(female)
 
Join Date: Apr 2004
Location: Fl
Posts: 571
Bionicwan HB User
Thumbs up Re: former member w/failed fusion

wow!

Thanks to EACH of you for your informative and supportive replies!

Heather: hard to believe you've been able to endure this for so many years..as you know each day is a struggle.

Rachel: To answer your ? I had my fusion Sept 9th 2003. - I am unsure why your doctors are not proceeding with a revision if you have a non union? I hope your outcome is good and I wish you all the luck in the world - I too have exstensive nerve damage and realize it's non reversible but that is really the least of my problems - although the neuropathy is incidious the unstability of my spine is taking me to new levels of pain that I haven't experienced since waking in recovery after fusion. Since my fusion has failed the way the ns explained it all the weight is being dispursed to the hardware which was not designed to support it ~ and he is worried now about hardware failure

Shelly: BEST of LUCK to you!!!! ~ you have a VERY positive attitude!
IF your pain is primarily in your extremities I am sure the SCS will give to relief My pain mgmnt doc said I would not be a good candidate for this for luckily all of my sciatica is gone.

Maryanne: Sorry to hear you also had a failed fusion My failure appears to be the top? Top of graft is concave on films while bottom is flush and "appears" solid. Perhaps I missed it with so many replies, but what is next for you?

Mel1977: Hang in there - your definitely home free and the worst hopefully behind you ~ please be careful and NOT "Over-Do" this is the most important advice I could offer you 2mo post op

I go Tuesday 2/8 for bone scan and CT. Will have results when I see ns late that afternoon. He has all but told me that IF this confirms his suspicion that the only remedy will be another sugery

I'll keep everyone posted

Again thank you all for your support!

Together we CAN get through this
__________________
Lami L4 5 S1
Fusion L4 5 S1
Neuropathy Fibro Arachnoiditis
Pseudoarthrosis
awaiting fusion redo

 
Old 02-06-2005, 05:02 AM   #13
Senior Veteran
(female)
 
Join Date: Apr 2004
Location: Fl
Posts: 571
Bionicwan HB User
Re: former member w/failed fusion

[QUOTE=rachelmc] hi bionicwitch, i am right with you i dont know how long it has been scince you had your op, what is your pain like?
It has been nearly 2 years for me and im in more pain than i ever was (old pain plus new)
What does your neuro surgeon have to say? have you consulted new ones?
I really cant offer you any advice as i am stuck between a rock and a hard place at the moment not knowing where to go or what to do either.
I have been told that further surgery at the moment will not benifit me at the moment i have nerve damage that is unfixable and will keep deteriorating .
But i am here to listen to you and offer support.
rachelmc[/QUOTE]


Rach:

forgot some of your answers *grin

I DID consult with new Dr. Had to ~ after 4 yrs with other one ~ I FIRED HIM.

9 mo post of (from fusin) pain was steadily increasing and I was scared to death - I did what I thought I should and informed him of my concerns and bluntly asked him IF I was "as good as I was gonna get?" or could I possibly still be healing? and he SCREAMED at me, I WAS ASKING HIM UNREASONABLE QUESTIONS OF WHICH HE HAD NO ANSWERS TO! I said, "Well if I can't ask YOU then WHO do I ask??? Doooooooh - I told him obviously it was a waste of my time having driven the 90min drive to see him and I left. Never went back. I am again communting to see new Dr for NO DR in my county would touch me! I am in Central Florida and my new Dr is Bernard Guiot. He is the Director of Spine at the University of South Florida College of medicine. Among his other specialties he is supposed to be quite the expert of fixing other Dr's screw ups

So, we'll see ~ 'cuz I'm betting the farm on him
__________________
Lami L4 5 S1
Fusion L4 5 S1
Neuropathy Fibro Arachnoiditis
Pseudoarthrosis
awaiting fusion redo

 
Old 02-06-2005, 05:44 AM   #14
Senior Veteran
(female)
 
Join Date: Apr 2004
Location: Fl
Posts: 571
Bionicwan HB User
Re: former member w/failed fusion

Illiac was not used.
Cadaver was.
As much as I dread this added procedure I too believe it may be my best option.

Although I shall probably know what my future (surgical wise) lloks like on Tuesday - Do any of you know if a 360 is the norm or yeilds the best results? This is yet another huge fear - So far both my surgeries have been posterior?

Thanks and wishes for a pain free day ~
__________________
Lami L4 5 S1
Fusion L4 5 S1
Neuropathy Fibro Arachnoiditis
Pseudoarthrosis
awaiting fusion redo

 
Old 02-06-2005, 06:10 AM   #15
Senior Veteran
 
Join Date: Jul 2003
Posts: 1,134
flyonthewall HB User
Re: former member w/failed fusion

I had a posteriolateral fusion, L3-S1, with BMP on sponges that were laid on either side of the spine. At almost 8 months it's looking good.
fly

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Failed Fusion Moonstruck88 Back Problems 17 01-12-2011 02:19 PM
Been away from the boards, back now, seeking advice zuzu23 Pain Management 8 12-20-2009 06:30 AM
Any have Failed Back Surgery? babyboomer6 Back Problems 11 11-21-2007 03:53 AM
New Member mrkwass Back Problems 13 06-25-2007 05:42 AM
Confirmed Failed Fusion and Screw misplaced - What does the future hold? galpster Back Problems 3 05-21-2006 04:57 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is Off
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ibuprofen
Lyrica
Morphine
Neurontin
Oxycontin
  Percocet
Soma Tylenol
Valium
Vicodin




TOP THANKED CONTRIBUTORS



teteri66 (1109), gmak (131), SweetPeainSF (78), maltluver (71), twohands (64), pebblebeach3 (63), cheryl1213 (51), Moldova (46), ibake&pray (41), workinmom572 (40)

Site Wide Totals

teteri66 (1166), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 08:43 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!