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Old 02-06-2005, 03:43 PM   #1
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Marianne?????

Hi Marianne
I saw on the other post where you are having the SCS put in. I did not want to interupt that thread, so tell me all about it. I have had 4 lumbar surgeries and the 360 with hardware and a exploratory with decompression 4 weeks ago and have some horrible hip and thigh pain that crept up 2 months after my fusion. I saw the doctor for my consult friday on the SCS and am excited about the possibiltiy of reducing some of this pain. I know it is not a 100 % fix, but could you tell me how the procedure of the trial went? I was told it would last 5 days, and then decide from there. Was it great for you? what kind of pain do you have and how much did it relieve? Please give me any insight that you have. Thanks in advance.
shelley

 
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Old 02-06-2005, 03:49 PM   #2
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Re: Marianne?????

I hope you don't mind my posting as I am excited myself I'm having the SCS implanted on the 22 and I'm really anxious.
I had the trial for 7 days and I have to say I wasn't expecting much so was pleasantly happy when it turned out so good. The trial is kind of hard to get a good idea as the connection is not real stable but it was still good enough for me to know I was ready to have it done..
If I can be of any help please let me know, I spent a lot of time researching before the trial and since.
Linda

 
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Old 02-06-2005, 07:10 PM   #3
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Re: Marianne?????

Hi Linda
Please feel free to jump right on in I am waiting on approval, but my surgeon said I by far meet any criteria to approve this trial. The doc who is going to do it talked to me Friday and said alot of people are not willing to try it, but this is MY and only MY opinion, How can a person complain about being in pain everyday but not atleast give something a try that might have a chance. I have had a fusion with hardware and lots of other things, and my doctor said this IS completly reversible and non destructive to the nerves. So I am waiting for the go ahead. He also prepared me that it may not work as well, so I am aware of that. Tell me about the trial. How did it get placed? were you sore the next day? able to work the next day? Post back and good luck to you as well
shelley

 
Old 02-07-2005, 05:22 AM   #4
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Re: Marianne?????

Shelly, I agree with you about the pain I know after living this way for 6yrs and finally getting a diagnosis and finding out that I am not operable I HAD to try the SCS.
I know that it is most common that ins.co. require physcological counseling before hand though mine didn't(they know I'm crazy).
Anyway I thought the incision site was painful during the trial mostly when leaning back or lying down as only one stitch was holding the line in place so it pulled quit a bit.The line was in the middle of my lower back and as I said it isn't real stable so jumped around alot but even though it still proved to me to be a real relief, I have blockage to the S1 nerve so my pain is the whole length of the nerve and meds don't really touch it.
There will be two incsions when implanted one in the mid-back and one in the hip and recovery is 6 weeks over-all I know that the relief I got during the trial was fantastic.
Check around with the co. that make these as some are much more advanced then others.
My family was so impressed by how much better I got around during the trial. NOTHING is 100% and don't think this is or you will be dissappointed but I know it cut my pain by 75% and sleeping was SO much better.
If you have any other questions please let me know. I can hardly wait to have the implant.
Linda

 
Old 02-07-2005, 04:16 PM   #5
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Re: Marianne?????

Hi Linda,
How long after the trial can I go back to work? I had exploratory surgery with a decompression and lami and was back 5 days later. Oh the by the way my insurance probably thinks I am crazy too LOL. I am so glad it worked for you. That gives me great hope. You know I am 34 with 3 kids and work full time and am hoping for a break. I bet you are so excited. Tell me what is the psych . eval about? Don't they know by the time we are ready to try the SCS we are crazy I told my doctor that he did not have to talk me into to trying it, I would be crazy to tell him it would not work without ever giving it a chance and then expect them to be sympathetic when I am in pain. Do you know what I am trying to say? I guess I am just at the point where the pain by far ways out the risk of trying it or any little scar on my back. Heck bikini season was thrown out after having all three boys LOL
Keep Posting. It is great to talk with someone else going through this.
Shelley

 
Old 02-07-2005, 10:41 PM   #6
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Re: Marianne?????

Hi Shelley and Linda, ,
Nice to meet up with other SCS candidates. I had my trial before Christmas and told the doc that I didn't want to give him back the stimulator.I felt like a new woman. I would say that my pain was decreased about 70%. I am presently having a lot of burning as well as numbness and tingling relative to the L4-L5 levels. I have suffered with back pain since I was 12 y/o.I had my first lami with fusion when I was 23. I got 15 years on the first surgery. Then in 1998 I had to have a decompression lami of L3-L4.My last surgery was in March of 2004 and was another decmpression of L2-L4. The 2 decompressions were for scar tissue as well as DDD and spinal stenosis. A 360 could be done but my spine specialist said that this may not even touch the pain that I am having. He said that I have arachnoiditis for which we know there is no cure. He sent me to a pain management who gave me 4 options: 1) do nothing 2) continue with all the meds 3) SCS 4) implantable morphine pump. I chose option 3 and he agreed that given my age(45) that this is the best option. I am SOOOOOOOOOOOOOO tired of taking pills and worry about the long term effects on the liver and kidneys. I am hoping to get a date this week as to when the procedure will take place.I do not work,so I cannot help you out with that question. I was put out on disability because in 2000 I was diagnosed with rheumatoid arthritis. I have alot of other medical problems that prevent me from working.
When I went for my visit to the shrink he wondered what I was doing there??? I had to enlighten him. I think that he was very interested in this SCS.It is a far cry from psych!!! My pain management doc didn't understand why I needed an eval because I am far from depressed or a narc abuser. If his schedule would have permitted he would have put it in the following day.But, he was over in India helping the tsunami victims. I feel that good things come to those who wait. I have waited patiently and feel that this is going to work for me.The doc feels that he can help me. He did tell me that if it doesn't help then we will go to the implanted pump.
Best of luck to you both. It is nice to know that we have a place to go and get support as well as give it. Keep us posted.

Marianne

 
Old 02-08-2005, 06:13 AM   #7
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Re: Marianne?????

Shelly, I don't know about going to work during the trial depends I guess on what you do , the trial is 5-7 days and you can't bend life or twist so you don't pull the line out they want you to be active as much as possible to get a good idea how it works, as for after the trial I was fine right afterwards. I know they told me that I can't do much of anything for 6 weeks after the implant as so no not to interupt or tear the lines lose they want scar tissue to form around the im-lant to hold everything in place.
As for the physc evaluation I imagine it has to do with the facr they are implanting something foriegn in to your body I can imagine for a lot of people that would be hard to come to terms with.
As for me I lost any hopes of wearing a bikini or much of anything since this happened I have gained 30#'s and have no quailty of life and am hoping that this will help me get a life again.
My concern is I have cord comp. in the thoracic that isn't operable and this won't do anything for that but to help with the lower back and leg pain is enough for now as I said I am really anxious to get it in and over.
Marianne, I understand what you mean about taking all the pills ect. I am waiting for my disabilty trial and have been forever believe I'd much rather be out working then having no life at all.
Catch you both later and hope today is a good day.
Linda

 
Old 02-08-2005, 03:51 PM   #8
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Re: Marianne?????


O.k. there we are, I think are legs look great LOL
Anyway I too am tired of all the meds. But without them I would not be able to move Hey Linda You have the thoracic issue, but mine is a horrible cervical mess. They have only injected several times and done PT but without any relief, it is getting worse. It is nice to have other eletrical pals around. I hope my trial goes well too. As far as something foreign in my body... What about all this hardware LOL! I am waiting patiently for the call. I honestly do not know how I make it at work each day but I need that insurance to pay for that SCS , so that is reason enough to keep going so I can get powered up!!!!!!!!!!!!!! Talk to ya'll soon
shelley

 
Old 02-08-2005, 04:39 PM   #9
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Re: Marianne?????

Shelly, Yep!! Nice Legs!!!
I haven't worked in almost 2 yrs thank Goodness my husbans carries the ins.
I've ben really fortuante in how speedy all this is happening also. I know if it wasn't for the meds I couldn't get through a day it's just all the side effecs and being so tired all the time, also the meds don't really do much for the berve pain and walking is getting harder by the day and some days not at all.
I have spondylosis and bulging disc in the cervical also it's not bad except during a flare up. The thoracic well that's another story and what gets me is the dr only wants to addrerss one problem at a time. I've had aqua threapy that helped the thoracic but caused the flare up in the lumbar and legs.
Tell me how do we win? I am very optimistic about the SCS though.
I was talking to someone the other day that told me something my dr didn't tell that is once you have the SCs implanted you have to take anti-biodics before you can even have your teeth cleaned.Wonder what else I don't know.
It's really great having you to chat with about this as not to many are real familar with the SCS.
Linda

 
Old 02-08-2005, 07:12 PM   #10
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Re: Marianne?????

I did not know about the antibiotic thing, and your right the meds only take an edge off of nerve pain, I am finding it gets worse each day ( along with my spelling). I know you can not have MRI, ultrasound, and theft detectors can be ugly to you to with it. So I can say " Oh excuse me I am battery operated and can not go through your theft detector" LOL I am not sure what else can give you an extra jolt or two, maybe I can blame my bad hair day on electricity huh Now I better not let me kids know they may find a way to torture me.....I never thought about that. What do ya'll think? I keep waiting for my cell to ring with my trial date...oh the anticipation. How long between the trial and the perm. one ? I know it may not work for me..............But then again it just MIGHT
shelley

 
Old 02-09-2005, 12:06 AM   #11
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memawhurts HB User
Re: Marianne?????

Hey guys,
Sorry to butt into your conversation, but I just wanted to let you know, that after my 1st set of hardware was put in, my neuro told me then that I would have to have antibiotics before any dental procedures.
Memaw

 
Old 02-09-2005, 09:46 AM   #12
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Re: Marianne?????

Hi Memaw
You are not butting in at all! The more the merrier . Now I have not had anitbiotics from having my hardware but maybe I should . Hmm more questions to ask.
shelley

 
Old 02-09-2005, 04:24 PM   #13
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Smile Re: Marianne?????

To my new found friends,
Just got the word today that all systems are a go...SCS implantation will be 10 AM next Thursday. I am looking forward to the procedure being done and have great confidence in my pain management doctor.I will keep you all posted.

Marianne

 
Old 02-09-2005, 04:57 PM   #14
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myspine HB User
Re: Marianne?????

Wow
I am so happy for you. How long did it take between your trial and the o.k. for the perm? How long did it take for the insurance to o.k. your trial?? I am so tired of the pain. I want to further my degree in school also and cannot as long as I am like this. I feel like I am on perma hold. Feeling a bit down today, lots of neck and hip/leg pain and still no call on the cell phone with a date. But I am happy for you
shelley

 
Old 02-09-2005, 09:23 PM   #15
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Re: Marianne?????

Hi Shelley,
My temp.SCS was put in on Monday Dec.13th and removed on Friday Dec. 17th.Since the trial went well,now it was on to the psych eval which I had to wait 3 weeks before I could see the shrink.I went to the shrink on Jan. 18th.A day later the dr's office as well as myself received word that the insurance company okayed the permanent SCS.Now go figure,they wanted a psych eval meanwhile they ok the procedure without the shrink's report????!!! I just got my date today because my doc was over in India helping the tsunami survivors.Had he not been over in India;this probably would all be behind me(no pun intended)!!!
I also try to expedite things by calling the insurance company,doctor's office,etc and I keep VERY GOOD notes as to whom I spoke to and what was said. If you need to;chase them down. Don't wait for the phone to ring...make sure that they know who Shelley is and why she keeps calling.As we know,living with pain is a part of our lives but we need to be our own advocate.
Take care and if you think of anything else;feel free to ask.

Marianne

 
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